I feel a bit of a fraud posting here as we don't have a diagnosis yet, but I'm so worried about DH and didn't know where else to post.
He had a umbilical (incisional - caused by an appendectomy a few years prior) hernia repair back in Nov-22. It took a long time for the incision to heal and he was seeing the tissue viability nurse for a few weeks, he also developed pneumonia not long after the surgery, and had about 48 hours worth of blood filled wee at the same time. He recovered from the pneumonia and had an ultrasound and bloods for the gross haematuria (visible blood in urine) which all came back OK, which was put down to a reaction to the pneumonia.
Fast forward to about 6 weeks ago and he had another minor surgery (a septoplasty to fix a childhood injury which has recently been causing issues with sleep apnoea), again, not long afterwards he developed about 24 hrs of lots of blood in his wee (confirms no uti, although bloods came back with high white blood cell count and CRP). Whilst we were awaiting more tests for that he started getting very dark and tarry stools, and started to look incredibly grey. I was pushing him to see the GP again, but he insisted on waiting for his upcoming urology appointment. When he did attend this they shipped him off to A&E as he looked so awful, where he stayed for 4 days as they suspected a bleeding ulcer and wanted to monitor his bloods as he was very anaemic (the tarry stools were confirmed as blood).
Eventually they let him out, awaiting further tests. He hasn't had any bleeding from either place (!) since, and his last blood count had a slight improvement in his red blood cells/haemoglobin/iron and the infection/inflammation markers have normalised. But he is still incredibly grey and exhausted (which is most likely the anaemia - I've had it before a few times and it utterly wipes you out). He can't start iron tablets until they've finished all the testing, although the tablets are at home ready and waiting.
His urologist has done a prostate check, a cystoscopy and CT with contrast which have all been normal and he's been signed off from their service. The Gastro team have done an endoscopy down to his duodenum which is normal, we're still waiting for the colonoscopy which is on Thursday (it's taken weeks to sort out, even though he was on the 2-week pathway.
I'm just getting more and more worried that the colonoscopy is going to show something insidious, i.e. cancer, but it's just so utterly bizarre that he's had bleeding in his wee and his poo. And the correlation between his relatively minor surgeries and the onset of the symptoms is bizarre.
This waiting is awful - and I'm getting a bit teary when I'm on my own. I'm usually the one with shit luck with my health, and I hate seeing him feeling so rotten all the time - his skin is the same colour as his grey hair at the moment.