My DM (75) , was diagnosed with PF, scarring of the lungs, in 2019 and she is getting worse now on a monthly basis.
She is on oxygen more or less 24hours a day at home. On level 6 when resting, level 8 while doing anything like getting dressed, going to the toilet.
She's recently had a chest infection that meant she could not stand up without becoming breathless, even with the oxygen.
She's been refused medication to slow down the illness because it's only suitable for those on level 1-2 oxygen. Same goes for lung transplant - she doesn't qualify.
So, is this it for DM?
We're talking about her coming here in the summer for a BBQ (with her being far from any flames) but realistically, she and I knows it will never happen. But planning it and looking forward to it is making her happy so we're discussing having oxygen machine brought here by her supplier so she's not depending on small tanks that don't last long.
How do I support her and my DF when we don't dare mention end of life out loud?
note from MNHQ: please read the OP's latest updates before posting.