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DB refusing palliative care. What happens now (heart failure)

28 replies

helpmehelpmybrother · 04/11/2022 07:09

DB is paralysed and also has underlying conditions.He was recently diagnosed with severe heart failure. His left ventricle is damaged and he has an EFR of between 20 and 25 percent, though likely at the lower end of that.

He has been discharged into his nursing home with a Referral to the heart failure team.

Yesterday his nursing home called and said that his blood pressure/heart rate is still very unstable so they contacted his GP. He recommended that the blood pressure meds be withdrawn and my brother put on palliative care.

Brother is refusing. He is determined to continue the medicine and not go onto palliative care. So the home were contacting the GP to speak to him.

He hasn't yet.

Can he refuse palliative care? What happens now? I spoke to a cardiac nurse yesterday who advised that once he stops treatment and palliative care begins, in her experience things move very quickly.

I know its likely the best thing for him, but I'm just not ready to lose my brother.

OP posts:
ValerieDoonican · 04/11/2022 20:54

Jesus, I'd be raging! So glad you were able to knock some sense into the GP. Well done, very well done. 💐to both of you

CoffeandTiaMaria · 05/11/2022 20:02

i have severe heart failure and this charity is very supportive and helpful www.cardiomyopathy.org
I was given a poor prognosis 4 years ago and I am doing well on medication with regular reviews.
Do you have Power of Attourney (health) for your brother? It may be worth looking at.

kitcat15 · 05/11/2022 20:18

helpmehelpmybrother · 04/11/2022 07:55

That's what I thought too @Yummymummy2020
Just called his home and apparently the doctor is coming out today. He is also apparently furious at the DNR in place in his file.
As his next of kin I was asked about this while he was in hospital recently and I agreed to it after a conversation with the doctor in the hospital, thinking that's what he would have wanted, but it looks like I was wrong. So, now I'm scared he's going to spend what time he has left hating me. God I actually feel sick.

A DNR would never have been your decision....you have just been informed as nearest relative

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