My DM has terminal cancer and in the last two weeks has become very poorly to the point that in the last two days she has not eaten anything and is not able to sit propped up in bed. We know that this is part of the process of her reaching the end of her life.
She wanted/wants to stay at home. My DF and more so me, my DSis and DB have been providing care - from personal care to giving medicine etc, sleeping in her room overnight for the past fortnight. This is on top of the usual responsibilities with our children, jobs.
What had shocked me is that despite having the funding approved 6 days ago due a carer package to support my DM (and us) we have not had a single care visit and only sporadic visits from the district nurse. No one has picked up the funding and wanted to deliver the care so we don't get any.
I remember 10 years ago when my granny was ill she received care visits. I am so shocked that this is the state of social care - am I being naive and should I have expected this?!