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Stem cell transplant

3 replies

Andanot · 11/10/2021 12:10

Hi guys. My dad is going into hospital soon for a stem cell transplant and I would like to put together a selection of things to help him while he is in hospital. I’m aware that we will need to be careful about things being sterile. I wonder if anyone has experience of this procedure themselves or as s family member who could suggest some of the things he may struggle with and things that may provide some comfort. Thank you.

OP posts:
StrongTeaDropOfMilkNoSugar · 25/10/2021 22:55

My husband had a stem cell transplant three years ago as part of his first line treatment for myeloma. Off the top of my head, a few things that might be handy to know:

If they offer your dad ice lollies to suck whilst having the chemo infusion, try plain ice cubes instead. Much less sickly. Also, be prepared to never want to smell sweetcorn again. Something to do with the liquid the stem cells are frozen in, but people who have had a transplant smell of it too for a day or so. It’s very odd.

My H struggled to swallow/eat/drink due to mucosiitis, so I brought him
yogurts (not live/probiotic) and jelly to try and eat. He didn’t manage much in the early days, but the hospital gave him Ensure meal replacement drinks which he tried to sip and managed to get some nutrients.

It’s probably different for everyone, but he didn’t really feel much like reading or doing puzzle books as he had done earlier in his treatment. He just tried to sleep as much as possible. However, it might be nice to have some things to keep him occupied just in case he feels up to it.

Changes of PJs and bed socks in soft fabrics were nice too, especially as he found his skin was very sensitive even months afterwards.

The worst of the sickness lasted about 10 days, then he was able to come home and was much more comfortable recuperating in his own space. He was back at work in a new job about 12 weeks later.

Good luck to your Dad, and remember that although it’s not nice to go through (or watch from the sidelines), the side effects are usually short term. Fingers crossed for a good response and remission for him.

jeffersonsam · 17/11/2021 07:36

@StrongTeaDropOfMilkNoSugar

My husband had a stem cell transplant three years ago as part of his first line treatment for myeloma. Off the top of my head, a few things that might be handy to know:

If they offer your dad ice lollies to suck whilst having the chemo infusion, try plain ice cubes instead. Much less sickly. Also, be prepared to never want to smell sweetcorn again. Something to do with the liquid the stem cells are frozen in, but people who have had a transplant smell of it too for a day or so. It’s very odd.

My H struggled to swallow/eat/drink due to mucosiitis, so I brought him
yogurts (not live/probiotic) and jelly to try and eat. He didn’t manage much in the early days, but the hospital gave him Ensure meal replacement drinks which he tried to sip and managed to get some nutrients.

It’s probably different for everyone, but he didn’t really feel much like reading or doing puzzle books as he had done earlier in his treatment. He just tried to sleep as much as possible. However, it might be nice to have some things to keep him occupied just in case he feels up to it.

Changes of PJs and bed socks in soft fabrics were nice too, especially as he found his skin was very sensitive even months afterwards.

The worst of the sickness lasted about 10 days, then he was able to come home and was much more comfortable recuperating in his own space. He was back at work in a new job about 12 weeks later.

Good luck to your Dad, and remember that although it’s not nice to go through (or watch from the sidelines), the side effects are usually short term. Fingers crossed for a good response and remission for him.

Thanks for sharing your experience, this may be helpful to several people.
MyNameIsArthur · 24/11/2021 12:51

Hi

Sorry to hear your dad is needing a stem cell transplant. I hope he will be okay. The prognosis these days is much better than it used to be. I'm nearly five years post transplant and am in good shape now. Take a look at the following MN thread that may be of help to you:

www.mumsnet.com/Talk/life_limiting_illness/4095101-Bone-marrow-transplant

There are a couple of Facebook groups that will be a great help to you:

Bone Marrow & Stem Cell Transplant Support

UK Bone Marrow & Stem Cell Transplant Patient Support

I wish your dad all the best with his transplant and treatment and recovery afterwards

Best wishes

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