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Life-limiting illness

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Any advice on moving & handling while waiting for carers?

4 replies

buckeejit · 26/08/2021 13:33

Dm has a brain tumour & in last 2 weeks has gone from walking ok to barely being able to take a step or 2 with 2 people supporting her.

We're waiting for carers to get in place & for equipment-as it palliative it's supposed to be high priority but we're still in a queue - the system is so broken, it's heartbreaking & makes the family feel so much more despairing & unsupported. My brother has been to the health minister's office this morning to complain about the wait for carers which I felt was pointless & makes me feel even more stressed.

I've left a message for OT to try to come out today & offer advice & show us the best way to use a handling belt that I collected yesterday, but if anyone has any links or tips on things that might help when someone hasn't much ability to cooperate, I'd be so grateful

OP posts:
Lentil63 · 26/08/2021 13:45

Is your mother under the care of a hospice? When we were looking after my dad at home the hospice nurse was absolutely amazing at pulling strings and making things happen. If your mum is under the care of a hospice she should have an allocated nurse and if you contact that person I’m sure they will do all they can to help. If your mum is not under the care of a hospice your GP should be able to arrange this.
I know this is a stressful time and my thoughts are with you and your family.

buckeejit · 26/08/2021 13:50

Thanks so much @Lentil63 She does have a hospice nurse but all they've done so far is a benefits check for attendance allowance.

I will try to give the hospice nurse a call & see if she can help-that's good advice

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bg21 · 26/08/2021 13:55

what moving and handling does she need ?

buckeejit · 26/08/2021 14:04

She's not comfortable in bed or a particular chair so in & out of bed & into the wheelchair to the toilet etc. Perhaps we should be trying to move her less but we'd struggle asking her to stay somewhere that she isn't comfortable.

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