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Life-limiting illness

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Is there one person that can help me do this?

9 replies

Thissucksmonkeynuts · 20/06/2021 13:47

Who do I need to help me plan legally and financially for the future, who will also have knowledge of the benefits system and care costs?
Currently we are working through rearranging everything taking advice from a solicitor, financial advisor, accountant and mortgage broker, but it feels a bit perilous
Dh is 43 and has Parkinson's, we have 2 young dc, currently both work part time and have some assets both in cash and BTL properties.
Maybe I'm worrying too much about getting this right, but I want to try and maintain some assets for my own care needs and the dc future.

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FortVictoria · 20/06/2021 13:50

Thissucksmonkeynuts - I don’t live in the UK so can’t give any useful advice, but I just wanted to say I am so sorry to hear about your situation Flowers I hope someone more knowledgeable will be along soon. Hugs to you.

Summerhillsquare · 20/06/2021 13:54

Is there a Parkinson's disease charity/society that can advise you? There will be others in your position. My sympathy, it must be wretched.

334bu · 20/06/2021 14:12

Your local hospice will have some kind of advice service, also most Cancer centre hospitals will have specialist advice services and even drop in facilities for people with life limiting illnesses. Macmillan and Marie Curie could also help.

Well done for being practical and sorting things out.

Thissucksmonkeynuts · 20/06/2021 14:13

Thanks both, it's rubbish, but I am making the best of the crappy situation.
I've contacted relevant charities, if it was cancer there would be heaps of specialist advice, but not so for pd.

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WhiteFeministWarMachine · 20/06/2021 14:14

Marie Curie can also advice, they have a fantastic helpline. 💐

Thissucksmonkeynuts · 20/06/2021 14:16

334bu, I'll try the hospices, thank you.

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334bu · 20/06/2021 20:20

Macmillan and Marie Curie don't just work with cancer patients , likewise hospices so don't hesitate to approach any of their drop in services.

hatgirl · 20/06/2021 20:32

Your local authority can offer you a 'Pre Service Financial Assessment' which should explain what they will and won't take into account in relation to assets and they can also advise which benefits you might be entitled to. Although from your brief description it sounds like he is still a while off needing a formal service.

Ultimately though the property you live in won't be taken into account at all in any circumstance.

His share of any individual or joint savings or income/assets will be taken into account. Your share won't be touched.

Don't start moving finances around in your favour just to avoid care fees because it will be viewed as deprivation of assets.

It will be difficult for anyone person to give you the advice you need as it can be quite scenario specific.

I can try and help with any specific questions you have about care costs though?

Try not to worry too much at this stage, whatever happens you and the children won't be left penniless due to care costs.

Thissucksmonkeynuts · 20/06/2021 21:06

hatgirl, thank you so much, I will have a think and work out what I can ask you, I really appreciate your response.
The situation is currently slightly complicated because before his diagnosis we were getting divorced and I had had a new will made which is currently really unfit for purpose and would leave him in a difficult situation financially. On a cognative/emotional level he really struggles to deal with everything that needs doing and can be very obstructive with what seems to me like straightforward admin. His medical team are happy that he is functioning well because he can discuss current affairs, but I live with a man who can't remember how to get to the next town along the main road and who cries because cooking chicken nuggets and chips for us all is too overwhelming.
We haven't moved anything to deprive assets, but the advice overall has been to not have things in joint names. The solicitor has suggested changing how we jointly own the btls, but I need to check with the mortgage lenders as to whether they will permit this.

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