My dad has been diagnosed with a GBM

[Buttybach]

Hi there Im just hoping for some support of those who may have been through the same shitty situation.
My amazing Dad started showing signs of being unwell 5 weeks ago, total loss of balance and unable to put a sentence together. We thought it was a urinary tract infection.
3 weeks ago he was taken into hospital. We have been unable to see him due to Covid restrictions.
they have diagnosed him with a Glioblastoma. It is untreatable and they told us to prepare the home for palliative care. 6 weeks ago he was gardening and doing DIY.
Sadly after preparing his and my mums home, they said he would need to go into a care facility when he is discharged. We are awaiting a decision on what that care will be.
They cannot give a prognosis but in two weeks he has lost his speech and is sleeping a lot. We have managed a phone call and video call. They still wont let us visit yet.
It all feels so futile and sudden. We have had all this relayed via phone calls. It's so cruel.
Is there anyone else going through this at the moment x

What are your hospital rules ? My DH was in hospital last week (terminal lung cancer- he's out now) and wasn't allowed to see him, our hospital let's you have a 1 hour visit if they are in 21 days.

Are you involved in the planning at all? On the 'important' doctor visits they rang me so I was involved in the decisions.

You poor love. My mum was diagnosed with GBM last year. We had 3 months, assisted by a lot of steroids, but too far gone to get to any other treatment. It’s such a cruel disease as it seems to come quickly from nowhere.

We obviously went through this last year, and have talked about how we are relieved not to be going through it now, so I can only imagine how hard it would be with current restrictions. Handholding, look after yourself as best you can x

Thank you so much for replying x I am so sorry you have been through the same
It happens so quickly it's cruel.
We have had a call today to say he is deteriorating but they are still not allowed to let us in to visit.
I have been so tearful thinking that he is going through this alone. It's so cruel.

It does - there’s very little time to get used to what’s happening. It’s so awful that you aren’t able to see him, that must be so incredibly hard.

It won’t be any comfort, but from what I understand about GBM is that it generally doesn’t cause any pain or discomfort for the patient, and we certainly felt that was the case for mum.