Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Lymphoma and terrified

5 replies

Muffintop8 · 16/07/2020 19:59

So I’ve had 2/3 lumps under my right jaw for months now and one also on the back of my neck. I’ve been to the dr during Lockdown and she’s told me because they aren’t over 2cm I’ve just to wait and see basically. I’ve also found a lump (rubbery) on my groin/pubic area since. I always seem to have an ache pain from that side of my neck down to my collarbone which makes me feel uneasy about it and sometimes upto my ear.
But.. for the last 18 months I’ve been going through horrible severe stomach pains (I’ve had alll the anti acids, checked and treated helicobacter, an endoscopy and an mrcp plus gallbladder scan. All clear) they are the worse pains in the world to the point I think I’m having a heart attack or something. I don’t know if this would also be a symptom of lymphoma or something on its own but these things have me feeling anxious every single day. I have two little boys 3&4 and I feel like I cannot even focus or be a mother because I’m terrified of what’s going on inside me. I can’t go back to the dr (covid) they only offer telephone appts but I just can’t sit and wait I’m so terrified. this is something else the pain and obvious lumps are shaking me to the core and I just don’t know how to cope if they aren’t gonna refer me to be checked what can I do? I’m just absolutely terrified for my life everyday and wanna cry when I look at my kids. I’m gonna give my dr a call again and see if there’s anything going she can do but for the time being I’m stuck in limbo and not coping.

OP posts:
Pacif1cDogwood · 16/07/2020 20:03

Contact your GP again.
They may well offer telephone triage, however will have a system in place to SAFELY bring you down to the surgery if examination/blood tests or whatever is required.
Nobody on the interweb will be able to give you the reassurance you seek, I am so sorry.
You need to try very hard to not get ahaed of yourself and to not catastrophise as you do NOT know that you have lumphoma. Most palpable lymphnodes are reactive ie a sign of a functioning immune system. If you DO have lymphoma, then you need to have specialist advice and treatment and many blood cancers are very amenable to treatment.
Thanks

Muffintop8 · 16/07/2020 20:56

They done my bloods at the time they were fine but when I questioned it saying I’ve read a lot of people who have clear bloods all the way through and she agreed and basically said she won’t do a referral right now. I don’t know what to do I feel so scared and helpless.

OP posts:
Arrowcat · 16/07/2020 21:04

It sounds like prominent lymph nodes. Very common.
I'd be surprised if it was lymphoma given the history you've given here.
Ask for a ultrasound neck referral (or have one done privately - they arnt expensive). You should be able to have direct gp access referral but if not you can go through ENT/OMFS. All the hospitals I know of are getting routine patients back in now - not just urgent referrals. You're likely to have a long wait though.
Can't help with stomach stuff I'm afraid.
Good luck and don't use Dr Google - you'll just work yourself up.

Muffintop8 · 16/07/2020 21:13

I should mention I suffer from hypothyroidism hashimoto which is also linked to lymphoma

OP posts:
eveningfalls · 17/07/2020 20:50

I'd be pushing to go back to her and mention the lump you now have in your groin, one or 2 isolated swollen lymph nodes are common enough, but with this development she should be reassessing you.

New posts on this thread. Refresh page