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Feeling a tad overwhelmed

11 replies

PumpkinPie2016 · 14/03/2020 11:20

I'll try to keep this brief but it may end up long (sorry!).

My Nana is 86. 10 years ago she was diagnosed with breast cancer in both breasts. Mastectomy done on the worst side. Some radiotherapy on the other side. For a few years, things were as ok as they can be (we were lucky I know!).

Anyhow, a few years later, we found out Nana has bone metastases. No treatment as she was older/more frail. She hasn't been well for a few years but we have been plodding on. She has continued to live in her flat with support from family. She had a bad episode last year and we were told she had developed diabetes (diet controlled, no medication).

The last two weeks, it's all gone a bit wrong. Over this period she has been sleeping loads and barely eating. I had to call an ambulance Monday as she hadn't eaten for nearly two days, barely drinking and was unresponsive.

Hospital brought the blood sugars up but also found she has had a heart attack and a scan/bloods show abnormality of liver.

Basically, she is extremely frail so nothing to be done for the heart (not for resuscitation either). From speaking to the doctors and given her symptoms it looks like the metastases have spread to the liver. They won't investigate further because there would be no treatment done (fair enough).

So, essentially, they have said she can go home (which she wants) and i am awaiting a call from the social care team about support in place for when she comes home. I plan to contact Macmillan on Mon.

I'm utterly exhausted and overwhelmed Sad I want her to be where she is happiest which is at home (if possible). However, I am concerned that she won't eat/drink enough to maintain blood sugar and may not drink enough of the special sugary drinks they are sending home to maintain blood sugars.

Stupid as it sounds, I don't know what to do if/when she deteriorates further. I feel like calling an ambulance isn't the right thing because they can't do anything. So is it just GP/Macmillan?

I suppose I have to face the fact that we are in the end of life stage but it's so, so hard. I work full time and have a little boy so although I do what I can, I am limited as are other family members which is why I am asking social care/Macmillan for support now as we can't continue as we are.

Sorry for rambling- I am close to my Nan and this week has almost broken me emotionally and physically. I am utterly exhausted.

OP posts:
Jackrusselsarecute · 17/03/2020 06:09

Ahh, that sounds so tough. Have you been able to get in touch with McMillan?

6000choccybiccies · 17/03/2020 06:17

She should have been referred to the Palliative Care team who will help you through this. If hospital hasn't done it GP can. So sorry you are going through this

notapizzaeater · 17/03/2020 09:58

You need palliative care at home, ask for a referral ((hugs)) x

PumpkinPie2016 · 17/03/2020 18:09

Thank you for your kind responses.

I have now got us a named Macmillan nurse who has already got going with a couple of things.

We are planning discharge home with support from the palliative care team as there is nothing more that can be done medically.

So at least things are going in the right direction and I have support now.

She is so frail/weak bless her but I am glad that she can at least go back to her own home and be as comfortable as is possible for however long she has left.

Keeping fingers crossed she will be home by the end of the week.

OP posts:
6000choccybiccies · 17/03/2020 18:39

Thinking of you and your Nana. Glad you both have support and wishing you both peace in the times ahead

PumpkinPie2016 · 18/03/2020 21:35

Today has been so hard Sad

Nana was really upset that she couldn't go home today. I feel absolutely awful and so guilty Sad

I'm working my socks off to sort things out so she can go home and all being well, I will be taking her home tomorrow. She initially said to the social worker that she didn't need 4 carer visits per day but the social worker managed to persuade her to give it a go for a few weeks and then she can drop down if she doesn't need them.

Truth is, the help is needed but I suspect that the carers will be dispensed with quite quickly.

I need to arrange for her GP/palliative team to meet with us and discuss the plan going forward. For example, if she deteriorates, should I call an ambulance like I did last week or just call the Macmillan nurse/GP.

I honestly never imagined how bloody hard it would all be Sad

OP posts:
6000choccybiccies · 18/03/2020 22:16

What does your Nana think about staying at home for care vs going back to hospital?

6000choccybiccies · 18/03/2020 22:17

I'm sorry it's all so hard and hope your Nana gets where she wants to be tomorrow x

PumpkinPie2016 · 19/03/2020 20:55

Thanks 6000choccybiccys .

Thankfully, my hard work paid off, as well as that of the wonderful staff and we took Nana home this afternoon. She was pleased to be home.

Ultimately, she would rather just stay at home rather than go back to hospital - I can see why, especially as she is so frail so moving her can be painful for her and there is nothing medically that can be done. Think I will talk to Macmillan tomorrow/Mon as they will be able to help.

She is so exhausted bless her and I am just glad that she is where she wants to be now so that she can be as comfortable and happy as possible.

I think the coming weeks will be hard but you have to keep plodding on don't you.

OP posts:
Jackrusselsarecute · 22/03/2020 17:02

I'm glad to hear that you got her home. Good luck got for coming weeks Thanks

Jackrusselsarecute · 22/03/2020 17:02

for not got!!

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