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Life-limiting illness

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Original poster

DM has a brain tumour.

12 replies

lostthepoint · 13/09/2019 08:11

1 month ago my DM was told she had a bleed on the brain (after a car accident) and was diagnosed with a brain tumour. The doctors said that she needs surgery to remove it soon. I’m so scared that I might loose her, she has been different for a couple of weeks now.

Wondering if anyone had any advice on how to help DM before surgery etc?

OP posts:

dinodiva · 14/09/2019 05:29

No answers but unmumsnetty hugs. My mum has recently been diagnosed with a brain tumour too. It really sucks.

ShippingNews · 14/09/2019 05:44

It would be good if you spoke to her doctor about the tumour and the possible prognosis. It might be fine once the tumour is removed. My DH had one removed 8 years ago, and after the first few weeks he returned to normal functioning. A lot depends on where the tumour is, and whether is it cancerous or not.

There isn't much you can do to help DM before the surgery - just spend time with her and don't dwell on the future. Just be in the moment and enjoy your time together.

Original poster

lostthepoint · 15/09/2019 12:34

Thanks for the replies. I have spoken to the doctors and they have no idea what it is, whether it’s cancerous or not. They know it is in the center of the brain and approx the size of a golf ball.

OP posts:

Luscinia · 16/09/2019 19:27

Practical things to do: Just be supportive and get things in place for after surgery. Maybe help her pack a bag and get her a few treats to put in. Organise a visitor's rota/or keep people away until she wants visitors. Reassure her that you will be there.

As to the outcome, you will have to wait and see. A friend of mine thought her mother may not be ok after a brain tumour but she recovered well and is still fine after 20 years.

I hope it goes well.

Luscinia · 16/09/2019 19:35

Sorry, I didn't mean that last paragraph to be so abrupt, I was trying to say that things may not be as bad as you fear. You must be really scared and worried and I'm sorry you and your mother are having to go through this.

Original poster

lostthepoint · 19/09/2019 19:31

I have been trying to be as supportive as I can. After an appointment today and deteriorating a lot she has been admitted to hospital with surgery tomorrow. Thankfully we had the hospital bag ready to make things easier. Just hoping tomorrow will go well

OP posts:

IneedPositivityxx · 20/09/2019 00:24

I hope tomorrow goes well xx

Carno13 · 21/09/2019 16:35

Hope it went well x

Original poster

lostthepoint · 27/09/2019 10:52

Thankfully the surgery went well, it was longer than expected but they got rid of most of it. She is on a drain to get rid of the fluid and has been since the surgery (Friday)

OP posts:

Original poster

lostthepoint · 27/09/2019 14:38

*that should say remaining fluid posted in a rush

OP posts:

Luscinia · 27/09/2019 17:41

I'm glad the surgery went well and I hope she recovers quickly.

Nat2345 · 03/12/2019 13:04

Hi ya just wondered how your mum is? My mum has a brain tumor removed in June this year unfortunately the biopsy came back and she has glioblastoma grade 4 she has had two weeks of radiotherapy and is on her third cycle of chemo at the moment but no mention of another scan until early next year! My poor mum is half a shall of a person she used to be, she’s very forgetful, gets her words mixed up and very repetitive.
Hope your mums operation went well xx

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