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Mesothelioma

46 replies

hoodeeharhar · 02/05/2019 08:10

Bloody bastard asbestos.
My dad's just been diagnosed with mesothelioma.
It's just not fair. 😞

OP posts:
Lougle · 11/07/2019 11:51

@notapizzaeater your Dad may have understood very well. Sometimes people need to cling on to hope of the future, even though the reality is that they won't see it. Flowers

notapizzaeater · 11/07/2019 14:43

@Lougle - it's my DH 😭. Yes I'm letting him carry on with the dream tbh, the alternative I think is too hard for him to face.

MyGuideJools · 11/07/2019 15:40

Dibbler that is bad luck. Bless your DS, they cope well in my experience.
I'm glad the procedure worked and hope it brings your MIL some comfort for a reasonable timeFlowers
pizzaeater I'm.sure your DH knows, my dad was the same, he knew he didn't have long but he talked about events in years to come. Of course we let him carry on, I think it's human nature to be optimistic at times like these. My heart goes out to youFlowers

Lougle · 11/07/2019 16:20

Oh I'm sorry for my mistake! Reality will come in its own time. Live the dream for now Flowers

hoodeeharhar · 27/07/2019 22:13

Hi everyone, so sorry others are going through this.
Thought I'd update.
Dad went downhill rapidly, and had gone into Sue Ryder hospice. He was only there two days and died peacefully today with all his loved ones around him.

It took us by surprise, we were hoping we had a few more months but it was not to be.

OP posts:
notapizzaeater · 28/07/2019 09:55

So sorry for your loss @hoodeeharhar

FanFckingTastic · 30/07/2019 12:32

So sorry for you @hoodeeharhar. Sending hugs x x

CMOTDibbler · 11/08/2019 18:15

I'm so sorry Hoodeharhar.

MIL has been in hospital after a big infection and the pleural fluid is back. She and FIL are still planning on going on a 3 week holiday overseas in September and it seems like a complete disaster waiting to happen Sad

FanFckingTastic · 02/09/2019 12:02

Hi everyone, I hope that you are all doing as well as can be. My Dad is still battling on but has been in hospital for the past week due to an infection in the plueral fluid - it all got a bit scary as the infection had really taken hold. Fingers crossed it's now under control although my Dad seems very weak and fragile now. The doctors seem to think that this is as a result of the chest drain so have removed it. He was draining around a litre a day so I'm not sure what's going to happen now that it's been removed, if the fluid builds up again we are back to square one. Has this happened with any of your loved ones? I just want to know what to expect... it's very hard because the doctors don't seem to know themselves so it's a bit of a guessing game.

CMOTDibbler · 21/09/2019 20:47

How is your dad Fan? Sorry I missed your update.
MIL had a couple more infections and fluid build up, and got an indwelling catheter fitted. She's much weaker and has lost a lot of power in her arms which I assume is due to tumour. Their long holiday was cancelled thankfully.

LayTheTableMabel · 01/10/2019 14:33

I'm sorry hoodeharhar, that is so sad and so quick.

We have been told by the doctor that he is 95% sure my beautiful mum has this. She is 66. She has been retired a year. She loves my baby boy so much. I am devestated. Does anyone have any advice? We are waiting for a pet scan and a lung biop.

greenflamingo · 17/10/2019 13:14

Sorry to read the experiences of loss. Also dealing with the diagnosis of a loved one and it's helpful to read what you've all shared. I'm so sorry for your recent news LayTheTableMabel - how are you coping? x

LayTheTableMabel · 07/11/2019 19:53

Hi greenflamingo. We are all processing it in different ways. Mum has been given 1-2 years which is so short. I have a 1 year old who thinks his nana is the best person ever so he keeps us all laughing and focusing on the positives. How are you doing? Is treatment an option? Mum starts chemo in a couple of weeks.

CMOTDibbler · 08/11/2019 17:03

Hopefully the chemo will help your mum have some good quality of life Mabel.
My MIL has some intractable rib pain now where the tumour is invading it, and it looks like she'll be having some radiotherapy to help ease the pain

FanFckingTastic · 31/01/2020 18:24

Hi All, hope that you and your loved ones are doing ok. I just thought that I would update on my Dad, who was diagnosed with Mesothelioma in June. He went downhill very fast in January and lost the fight in the early hours of Tuesday morning this week. We had been told that he only had a few weeks left but it happened much faster than we had anticipated. He was still up walking even at the very end so we kind of assumed that all the while he wasn't bedridden we would have more time. We did have a hospice place but he died before we could transfer him - quite a blessing actually as he was able to die at home which is what I know he really wanted. Anyhow, I just wanted to let you know and offer my support to those having to deal with this awful disease. I feel like I have been robbed.

greenflamingo · 31/01/2020 20:24

I’m so very sorry to hear that. Hope you’ve got lots of support and love. Sending a ginormous hug.

CMOTDibbler · 07/02/2020 19:02

I'm so sorry to hear that Fan Flowers

GoodFollow · 19/02/2020 19:24

I've been diagnosed with that disease and now I am afraid of my life

LegalFist · 19/02/2020 20:12

As far as I know, if you were diagnosed with Mesothelioma you need to act fast, this disease could be expensive in treatment. If you were exposed to work with asbestos, this is where the diagnoses came, and if you were exposed with your agreement, well, you are in trouble my friend. But if you didn't knew that you are working with asbestos or you were working on this site without agreement, you can easily have your compensation. You better find an mesothelioma lawyer that could help you to solve this issue of yours, even handle the case in the court. You will be able to have a great compensation, a solid amount of money in your pocket could really help you to treat this disease. At least this is what I would do if I were you

greenflamingo · 19/02/2020 23:38

So sorry to hear about your diagnosis goodfollow. I hope it’s early stage and lots of treatment options are available to you. Must feel like a lot to get your head around. Sending much love.

GoodFollow · 25/02/2020 21:36

This is very awful, I know how it feels, I've been diagnosed with mesothelioma some months ago and I am really tired to be treated

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