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Advanced Prostrate Cancer: Urgent advice required

9 replies

BearAusten · 01/08/2017 15:58

My FIL has advanced prostrate cancer. It would appear the cancer has now spread into the bone in the head (it does not appear to be in the brain as of yet).

Is there any type of treatment to temporarily halt it?

Are there are questions that should be asked when the oncologist is seen?

OP posts:
RTKangaMummy · 03/08/2017 13:01

I am sorry but I don't know the answers but look up

PROSTATE CANCER UK website

They have fab nurses who you can ring on his behalf on a helpline on the website

There is also a forum that has people who have been thru all different kinds of treatment

RTKangaMummy · 03/08/2017 13:02

Actually you could ask about HORMONE treatment or at least look it up

BearAusten · 03/08/2017 17:04

Thank you for the website address. I knew the website but was not aware of the forum. It seems that the way forward is more radiotherapy. Have to see how this affects things and then hormone treatment possibly last resort.

OP posts:
RTKangaMummy · 03/08/2017 17:33

Ring the nurses they are really fab and can talk you thru all the options

The forum is fab too

I think he can prob have hormones and RT at same time but nurses will know

You don't have to tell them your RL name

or they also do a thing that you can "talk" to them online a sort of chat but in real time iyswim if it is easier to type rather than speak

passmethegunandaskmeagain · 05/08/2017 08:11

Sorry to hear your news. My father was diagnosed with advanced prostate cancer 5yrs ago. It was in his bones and his lymphatic system. The family found the prostate cancer uk organisation very helpful including the forum and the nurses over the phone.
Treatment is very particular to the individual and also, to a certain extent, the specialist. For Dad the first treatment was hormone therapy with aurologist.. When that stopped working he was transferred to an oncologist and had two rounds of chemo each 5mths in duration starting 12mths apart. He is now out of treatment options. He has defied all prognosies over life expectancy but no one is quite sure why! My point is that it may look bleak now but whilst it can't be cured it is possible to keep it at bay for quite a while. The treatments can be tough at times.
Dad had taken a remarkably positive approach to the whole experience, I don't know how he's done it to be honest.
I wish you and him all the best. If you have any questions then I'll try to answer them but pcuk should be your first port of call.

passmethegunandaskmeagain · 05/08/2017 08:14

Urologist, not aurologist!

BearAusten · 05/08/2017 08:51

Sorry to hear about your father passmethegun. Thank you for your kind words. He went through a round of chemo last year. Radiotherapy to start again soon. Everything seems to be relying on this working. My grandfather died of prostrate cancer, but was very different towards the final stages. It doesn't seem to be common to have it spreading into the bone in the head.

OP posts:
Ktown · 05/08/2017 08:57

Hi - your hospital will be able to advise. Look at the patient websites and cancer research uk too.
He can also ask his oncologist about clinical trials. Drop them an email?

passmethegunandaskmeagain · 05/08/2017 09:33

Ah, sorry, I misread your post and assumed it was a new diagnosis. Sounds like you are veterans of the different treatment cycles!
So it's in his skull? Dad has it in his neck vertebrae which i think is 'normal' but I've not seen reference to it in the head before.
Dad's experience is that his oncologist was reluctant to talk beyond current treatment regimes but often got more info by asking "so what does this mean for me?" "What are the next steps or implications". This tended to lead to a more detailed and useful response.
Keep strong!

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