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Life-limiting illness

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End of life

18 replies

Tinkerbell36 · 21/07/2017 07:49

My father has taken a turn for the worst and since Tuesday has been unresponsive and is now on a syringe pump of diamorphine and midazolam (he kept fitting). He is very peaceful. My mum and me are sleeping downstairs with him on the sofa and a blow up mattress. I know no one can tell us but I just feel in limbo waiting for an inevitable outcome. I'm rushing between my parents and my own family. We keep talking to him in case he can hear us and lots of his friends have popped in to say goodbye. My little boy is very upset as they are very close but I think he's too young to see him. Just need a bit if hand holding and wonder if anyone else has been here - how long might it take! It's so heartbreaking xxxx

OP posts:
PurpleDaisies · 21/07/2017 07:53

So sorry to hear this. Flowers

Unfortunately nobody can tell you how long these things go on for-it's really variable but the most important thing is that his pain is well controlled and he's peaceful which it sounds like has been managed.

Do you have people who can support you with practical things like food or babysitting if you need a break?

Tinkerbell36 · 21/07/2017 12:14

I have a lovely friend who's on standby to get my little boy from school if needed. I've just cooked a spag bol while the carer washed him. The district nurse just came to change his syringe driver and his hands and feet are now icy cold. Still chatting to him and hoping he can hear me xxx

OP posts:
supafish · 22/07/2017 15:24

Don't leave your dad . Marie curie nurse here and your dear dad is near the end . Sending hugs xx

bluediamonds · 22/07/2017 17:38
Flowers
SelenaValentina · 22/07/2017 20:33

Flowers. My DH died very peacefully 3 weeks ago tomorrow, whilst we were chatting around him about holidays. A gentle, kind, way helped by the syringe drive to keep him painfree.

mineofuselessinformation · 22/07/2017 20:39

I've been where you are OP. You are in my thoughts. Flowers

Logoplanter · 22/07/2017 20:55

Thinking of you Flowers

Tinkerbell36 · 23/07/2017 21:14

My wonderful dad went to join the angels at 5.55 this morning. My mum and I were with with him holding his hand and talking to him the whole time. I feel privileged to have been with him and helped the nurses wash him. Thank you for all your kind words and advice it's very much appreciated xxxx

OP posts:
mrsRosaPimento · 23/07/2017 21:18

I'm so sorry for the loss of your dad. I'm glad you were with him. Flowers

ofudginghell · 23/07/2017 21:23

Flowers for you and your family op.
He's at peace now and it sounds like it was a very calm time for all of you.

Xx

Scottishgymnast · 23/07/2017 21:23

I'm so sorry. I have been where you are. I got so much comfort from being there at the end and I hope you will too. Be kind to yourself and your DM. Take your time and focus on the little bits of happiness that you will share with your DC. That helped me anyway. Sending strength.

wtffgs · 23/07/2017 21:30

Brew So sorry for the hard time you are going through x

SelenaValentina · 23/07/2017 21:50

Flowers to you and your family.

mummymummums · 23/07/2017 22:01

So sorry for your loss. I hope there is some comfort for you in being there and that he felt well loved at the very end.
My Dad has a short time left but could be days or months. I always imagined I'd be there but I think more likely now he will just fall asleep one night. He needs 24/7 care so is in a nursing home.
Your Dad's passing sounds peaceful and with those he loved - if we can pick a way that has to be a good way. FlowersFlowersFlowers

Ffswtf · 23/07/2017 22:02

So sorry for your loss Flowers May you find comfort and peace from your time together. I went through similar with my mum a couple of months ago. Be kind to yourself xxx

mineofuselessinformation · 23/07/2017 22:47

You did a wonderful thing for your DF, allowing him to go peacefully and calmly. It shows the love that you have for him.
My thoughts are with you and your family. Flowers

supafish · 25/07/2017 21:41

So sorry for your loss, sending you strength and a great big cyber hug xxx

echt · 31/07/2017 13:02

Thanks and thoughts, Tinkerbell

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