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Original poster

Pulmonary (lung) Fibrosis

62 replies

MyGuideJools · 14/05/2017 17:21

Has anyone had a family member with this? A loved one has been diagnosed and we know it's terminal. There's no cure, it just worsens over time.
Loved one has obviously been on Dr googleHmm and thinks his time is up. Despite the consultant telling him it could stay the same for years or suddenly worsen.
I've never heard of it so am grateful to anyone who can share anything, good or bad!
TIA

OP posts:
Original poster
MyGuideJools · 14/07/2017 18:15

Sorry for the rant, I'm just so sad for him.

OP posts:
Original poster
MyGuideJools · 07/08/2017 20:01

Hi, just thought I'd update and see how everyone is doing?
Dad's had the surgery to take biopsies. He was fine the next day but has since gone downhill, vomiting and very breathless. He's also hardly eatingSad
We now have to wait for another appointment to discuss the biopsy results. It just goes on and on......
libby how is your mum?

OP posts:
Original poster
MyGuideJools · 31/08/2017 17:50

Well, it's cancerSad mesothelioma (caused by working with asbestos years ago!)
Not sure where we go from here, absolutely gutted.

OP posts:
winewolfhowls · 02/09/2017 19:48

So sorry to hear this Flowers.

Original poster
MyGuideJools · 09/09/2017 14:44

My wonderful dad died this week, no more suffering for him. I will miss him so so muchSad

OP posts:
SoPassRemarkable · 09/09/2017 15:01

I'm so sorry Flowers

JennyOnAPlate · 09/09/2017 17:08

I'm so sorry for your loss Flowers

Ruhrpott · 10/09/2017 23:12

So sorry for your lossFlowers

LIBBY70 · 12/09/2017 22:33

I'm so so sorry to hear your sad news

Original poster
MyGuideJools · 12/09/2017 23:10

Thanks everyone. I miss him so muchSad

OP posts:
notevenamum1 · 12/09/2017 23:24

I am so sorry for your loss ❤️ My dad has plf too. I couldn't live without him x

Tiredstressed · 13/09/2017 17:52

I'm so sorry for your loss. That is very sad news.

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