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Dp has tumors in lungs and bones

34 replies

blamethecat · 31/08/2015 20:28

He is 35, we are getting results from biopsy Thursday. We have 2yo ds. It seems very unlikely that anything significant can be done for him. How do we manage? Practically and financially we will really struggle, no insurance, no savings, I don't drive. I won't get paid time off work. Not sure about do work, he hasn't told them as it is pretty sudden and unexpected following a referral after an eye test.

OP posts:
blamethecat · 18/09/2015 17:28

It sounds like he is in for some pretty intense treatment, he has been told he will pretty much be in Hospital for 4 weeks with an odd day at home, we already knew it was pretty advanced which has reduced the cure chance to 50% but as they are still talking about curing it then we need to stay positive.
In terms of me taking time off I can but I won't get paid and we really can not afford for me to loose any income, the spare money I have will have to be saved for when his sick pay stops to cover paying rent etc.
I have a few days holiday so if I need to I can take that for any important meetings.

OP posts:
slicedfinger · 18/09/2015 17:49

I know it was mentioned above, but can I just reiterate that the support you will get at Maggie's is second to none. When my DB needed financial advice in a similar situation they knew exactly what he needed to apply for and how, and told him about lots of additional financial help he didn't know he could get. Phone them to make sure someone with financial advice will be there when you do go.

blamethecat · 18/09/2015 17:52

Thanks sliced I will be going Sunday so will try and find out more then. he is really struggling, i think with it being so sudden then being told he will be in for a longer period than expected he hasn't had time to process it, but now he is on his own with too much time to think.

OP posts:
OffMyAyersRocker · 18/09/2015 17:57

OP I have no words of wisdom but just couldn't read without commenting. I hope your DP makes a full recovery. That type of news, and the speed of it is shocking. I hope you are doing OK too Flowers

Wolpertinger · 18/09/2015 19:00

The Maggie's Centre will prob be shut on Sunday but you should be able to phone them for advice during the week. You need to do this as soon possible as the months fly by.

Sundays are tricky as his main team won't necessarily be around to answer your questions but you can at least get support from the ward nurses.

Have you got a phone number for his nurse specialist? They will be v important for making sure you know what's going on, especially if you need to work so can't always be at ward rounds etc.

Four weeks of in-patient treatment is going to be really really tough treatment but they only do this to people who they seriously think they can cure, they are clearly really going for it.

ricohricoh · 18/09/2015 19:11
Flowers
blamethecat · 22/09/2015 11:21

I'm struggling a bit today, he won't be home for another week at least. i miss having someone to snuggle down next to in bed. We saw him Sunday but his parents were hanging around so we only got about 15 minutes together on our own.

OP posts:
PausingFlatly · 22/09/2015 12:27
Thanks
LavenderRain · 29/11/2015 14:39

How are things going blamethecat?
Thanks

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