A thread for those supporting relatives with life limiting diseases.

[CharleyDavidson]

I know a lot of people come onto here because they are suffering themselves but I wondered if there would be a use for a thread for those who are supporting those who are suffering. Being strong for someone else is HARD and this could be a place to discuss the things that we are up against.

My own dad has a prognosis of a few months for a cancer diagnosis and it's just awful to see how ill he is and how sad he is about things. :(

DMIL was meant to be going on holiday on Tuesday before starting her palliative radio but is getting v breathless so not sure if they can go, I so hope she can as suspect will be her last holiday. They've also let on there are two distinct tumours in efferent parts of the brain and further lesions.

So sorry for everyone struggling at the mo

Has she got good pain relief, Livin? And are they giving her something for the agitation?

I'm thinking of you. It's a helpless feeling and you're doing an amazing thing by being there for her in those moments that she's finding it distressing. Take care. xx

My dh Dm was diagnosed with the dreaded C a few weeks ago it's already spread to a lot of other areas. We live 3 hours away do poor dh is splitting his time as we don't know how long she has. I accept this and being left looking after our children (we can't take Dd to hospital to visit as she has an immune system issue so we are staying at home) my issues are in feel helpless at helping (I've sent food) and how to deal with dh who is very stressed and got a very short fuse with our dc who are struggling with it all too. If I ask him to try being a bit more tolerant with dc he goes off on one. I appreciate he's having a tough time. What can I do any advice?

Thank you for your kind words and thoughts.

It has been a scarily rapid decline, although I feel in my heart of hearts I knew this surgery wouldn't take place...or if it had that it wouldn't have been sucessful. I knew he was deteriorating far too quickly for it to be a positive outcome

Nickname, sounds like I am reacting in a similar way to your dh. Lack of tolerance and quick to snap? No advice tbh but it seems not an uncommon response.

Hi everyone especially charleydavidson.The place you scattered some of your beloved Dads ashes looks lovely.thank you for sharing the picture with us.
My lovely DF who i didnt think would make last christmas has just seen his 14th grandchild arrive :).He has just had a trip away too.Our family has not been too involved in worry for him or dm who has had her cancer battles.they celebrated their 50th wedding anniversary in feb and apart from dfs swollen legs and skin tearing every day and bleeding due to all his pills you wouldnt know he was given a yr to live in march 2015.We have been so very lucky after a couple of heart wrenching yrs watching them both on chemo.My thoughts are with you all and im sure i will be back on this page .dfs hoping to be well for his birthday this month :).Thinking of you all.xx

Oh loki. Am so sorry to hear this and hoping you are okay x

Sorry to hear that, Livin. Dad was only agitated for half a day before he passed, so I did wonder if it would be soon, but hoped that you would have longer with her, so didn't want to worry you. I'm glad she was peaceful. That will mean a lot at some point when it's not so raw. Hope you are ok.

Livin, I'm so sorry to hear about your mum.

oh Livin i am so sorry for your loss.Look after yourself .

Oh Livin. So sorry for you but glad you managed to be there with her X x

Livin, I'm so very sorry to hear about your mum. Sending you lots of strength

I am so sorry about your mum Livin,just awful you went through this with your dad and now your mum,at least she will be at peace now. I'm glad you were with her at the end, I wil be thinking about you,love & hugs to you xxx

, Livin. xxx

My dad has now got a syringe driver,they are saying it is the end stages now& doctor says it is days rather than weeks now,even though we are expecting it,it makes it more real now,all so horrible.

My darling dad passed away on Wednesday night, after a long & hard 7months and we all managed to be there at the end.He went peaceful at least so that was a blessing. Mixed emotions,no more suffering but will be sorely missed.Rest in Peace Dad xx

I am so sorry 40nanny x

I've just found this section after searching for bowel obstruction on Google ...and sorry to be joining.

DM after taking her to hospital for feeling ill and sore, has advanced ovarian cancer and now bowel obstruction. She lives 100's miles away but I am going home tomorrow to see if we can get her home for a few weeks. Macmillan nurses are saying a few weeks to a month or so.

DM is not accepting this news, thinks there are being negative and is very cross that they are not doing chemo or surgery.

My beautiful grandad died on monday.

Not sure how exactly I am going to get over this

My heart goes out to all of you facing a similar battle xx