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Original poster

Lots of MN handholding please - relapse

180 replies

DashingRedhead · 28/09/2014 22:14

Hi everyone, some will have seen my posts in biscuits' threads and I know lots of you have very kindly passed on the word about my stem cell donor search. But now I need a miracle: the leukaemia is back but this time in my central nervous system.

This is not only very rare, it's also really difficult to treat: chemo intravenously but also to the central nervous system via the ventricles of the brain. It's really unpleasant, though I shan't care if it manages to cure it.

My husband and parents last week were told to start preparing for the worst. However, one of the consultants wasn't happy and I've been referred for a second opinion to the Marsden in the hope they may be able to treat me.

I'm so scared but at the same time feeling hopeful that at least they haven't given up yet. Any prayers, candles, support, good vibes you can spare, please please please think of me tomorrow. I have two DC who need their mummy and so much to live for.

OP posts:
Original poster
DashingRedhead · 31/12/2014 11:15

And how could I forget to thank you all for your support, good wishes, prayers and everything. MN is a lovely place and it's great to know you're all there. Best wishes for 2015 to all of you, lovely people that you are! EnvyBiscuitWineBrewThanks - take your pick, but please have one on me.

OP posts:
ChippingInLovesChristmasLights · 31/12/2014 11:20

It's good to hear from you, I keep checking to see if you've popped in. I totally understand you not being up to posting though, it all sounds so utterly, utterly miserable:(. This is your thread, we are all here when you want to post, but it's important that you don't feel it's something you have to do, just do it when you want to.

I'm surprised they couldn't give you anything to stop the nausea.

Will this mean you need a different donor or are they able to make your current donor well enough to donate? It must have been a huge blow to find that out.

Hopefully they'll be able to sort out your current infection and get you home again ASAP.

If there's anything I can do, don't hesitate to let me know. It's not an empty offer. If I can do it, arrange it, send it, cross my fingers for it, I will.

Xxx

ChippingInLovesChristmasLights · 31/12/2014 11:25

Thanks are completely and totally unnecessary but if that's a latte going begging Xmas Grin

I really, really hope that 2015 is a good year for you, that the transplant gets sorted ASAP and that by this time next year this is all behind you.
Xx

LinesThatICouldntChange · 31/12/2014 16:17

So good to hear from you Dashing! Sorry to hear it's been so horrid though. I must say you sound remarkably resilient about it all, and hopefully once this latest infection is sorted you'll be turning a corner in 2015.
And echoing everything chipping said... Don't even think of needing to explain any periods of silence.. We're all here on the sidelines and thinking of you whether you're posting or not.
Hopefully the donor thing is a temporary blip- but I know how frustrating that must be for you. From the other side of the fence (as a donor) there are a million and one things which can delay the process, and my dates were chopped and changed several times.
Wishing you and your family all the best - oh and if chipping has shotgunned the latte, I'll grab the glass of wine!

StillProcrastinating · 12/02/2015 20:58

How's things Dashing? Are you in the middle of transplant stuff now? Hope it's all going okay, and that if you're still waiting it's not driving you potty, and if you've already had it that all's going well.

Original poster
DashingRedhead · 23/02/2015 13:01

Hi everyone, thanks for hanging in here with me. I go into the Royal Marsden on Sunday. I'm still finding it quite trying to eat and get out of bed. But we're nearly there now. Got my last appointment in preparation tomorrow.

I can't pretend I'm not afraid. The risks are high but I have to accept them. We're now getting to the most dangerous part - got to keep it together, all of us. I hate being away from them all but the sooner it starts, the sooner it'll be over. And try to just accept the fear.

OP posts:
AFingerofFudge · 23/02/2015 13:06

Thinking of you and wishing you and your family the best xThanks

LinesThatICouldntChange · 23/02/2015 18:12

Good to hear from you DashingRedhead, and to hear things are moving forward. Sending lots of love your way

desertgirl · 23/02/2015 18:25

thinking of you. FlowersFlowers

barefootcook · 24/02/2015 07:19

Thinking of you Dashing. Love and prayers.

Corriewatcher · 24/02/2015 09:09

All the best wishes in the world to you Dashing. I was diagnosed with AML in Sept last year and am just coming to the end of treatment so I have an inkling of the fear you're going through.

Stay strong. We'll all be keeping everything crossed for you. Flowers

Ludoole · 24/02/2015 12:43

You will be in my thoughts today. Flowers
Hoping things go well for you.

Original poster
DashingRedhead · 24/02/2015 16:21

My doctor is amazing - he fills me with hope and optimism! Bring it on Sunday - I'm ready for you!

OP posts:
LinesThatICouldntChange · 28/02/2015 18:03

Thinking of you and winging positive vibes your way x

Corriewatcher · 01/03/2015 08:43

Thinking of you as you go to the Royal Marsden today. Flowers

Mama1980 · 01/03/2015 08:47

Thinking of you today and sending positive thoughts x

StillProcrastinating · 02/03/2015 22:20

Good work Dashing, hope you're doing well ...

GrumpySwivelHead · 08/03/2015 22:54

Thinking and praying for you dashing Flowers

Annietheacrobat · 09/03/2015 18:18

Hope all is going well dashing. Am sure the RMH team are looking after you

LinesThatICouldntChange · 09/03/2015 19:28

Flowers xxxx

ILoveAGoodFuck · 11/03/2015 20:26

Hi dashing hope you're getting along ok x

motherinferior · 22/03/2015 17:17

Hi: I hate to have to have to tell you this but Geoff (DRH's DH) has asked me to tell you that she died yesterday. She had the transplant and then developed an infection.

Please PM me if you would like me to pass any messages on.

BIWI · 22/03/2015 17:23

Oh no Sad

ImperialBlether · 22/03/2015 17:28

Oh no! That's terrible news. Her poor family. RIP.

Thanks
DishwasherDogs · 22/03/2015 17:33

I'm so sorry :(