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Chemo starts wednesday!!!

12 replies

Ludoole · 22/09/2014 02:10

So dp starts chemo on Wednesday. We are both petrified....
He has an auto immune illness on top of the bloody metastisizing cancer and we are so worried how hes going to react...
He's so frightened and im being there for him in every way i can. Its not much but i listen to his fears (without telling him my own), i hug and kiss him and tell him i love him but im frightened too and am doing everything i can to reassure him.
What can i do to help???
Any suggestions???? And how do i keep my own sanity while being there for him?????

OP posts:
theclockticksslowly · 22/09/2014 03:10
Flowers

have the nurses/doctors explained all the possible side effects and what they can do to counteract them as much as possible? Tablets for nausea etc.

In terms of what you can do I think you're doing well, you're there and supporting him. The hospital my DH was in had regular talks/informal seminar things about chemo/effects/ etc which patients and or their loved ones could go to to find out more. Does the hospital offer anything like that?

It's obviously important that you can both talk to each other about how you're feelkng etc but equally we found having an escape route type thing/sense of normality while it was all going on was helpful. We'd watch films/tv programmes on our tablet (get headphone splitter if in shared room so can both have a set) cuddled up in the hospital bed. For an hour or so would take our mind off things and be doing something non illness related together. Hard to forget when in hospital faced with IVs etc etc.

What sort of chemo is it? Will your DP be in hospital for it all/afterwards?

You're doing a great job supporting your DP but it's also important you have support yourself -someone to discuss your fears with. Do you have any close friends/relatives you feel you can talk with? Just so it doesn't build up inside.

Thumbwitch · 22/09/2014 03:23

www.mumsnet.com/Talk/general_health/1647229-chat-and-hand-holding-for-those-of-us-supporting-a-DH-with-cancer-new-thread-for-the-new-year This thread might be useful for you - you'll get to chat with a fair few (too many :( ) other MNers who have been/are going through what you are now.

Ludoole · 23/09/2014 01:41

The side effects have been explained in general terms. Problem is, dp has an auto immune disease and there is so many things that interact with his illness.
Chemo is on a cycle so wednesday will be a 4 and a half hour intravenous drip followed by tablets then a new cycle.

If he gets through wednesday then i'll feel more reassured. Im just worried about initial reaction i guess. Im worried he'll react badly to the chemo like he did with the general anaesthetic...

I cant bear to lose him a day before i have to. I know i will but we have built our dreams on at least 5 years.

OP posts:
CatWitch · 23/09/2014 01:52

I am thinking about you both. If it is ok with you, I will pray for your darling husband. Flowers

Barbie1 · 23/09/2014 02:09

Sorry you are having to face this.

I have just returned from the uk where I have just spent the summer supporting my mum through her second fight with breast cancer.

I can tell you that the first chemo is the worst. It's the stepping into the unknown that makes it all the more difficult.

In turns of support just being there is the best you can do. Be a voice if your dp can't find his. I know my mum was grateful for me asking the questions she was too scared to ask.

Be prepared for a long wait, often oncology runs late for appointments which will heighten anxiety and stress levels, books, snacks, music...whatever gets you through pack in a bag.

My mum is having chemo weekly. After the third week we got into a routine, which I'm sure
You will recognize and work around.

For instance. Tues =chemo. We know she will be starving after so right after the hospital we take her to wherever she fancies to bulk her up...doesn't matter the last few times have been KFC

Wednesday, she feels ok so she does her food shop and errands.

Thursday and Friday are rest days, minimum visitors.

Saturday, slowly starts to feel better

Sunday. A day for her to do what she wants

Monday, doctors for pre chemo bloods and checks.

And repeat.

Like your dp my mum has lots of secondary problems which interfer with the chemo.

The first two weeks we spend about 30 hours in the hospital in various departments for various reasons. It was bloody draining, more so than the first chemo session.

Be prepared for the depressive moods. It took me quite by surprise to hear mum talking so negatively at one point Sad I wish I had asked for help.

Which brings me to you...make use of any resources offered. Cancer effects us all and the very worse thing you could do is burden yourself and end up burning out.

I wish you all the best on this long, frustrating and emotional journey.

Here if you need to talk Thanks

Eyespy24 · 24/09/2014 12:41

Ludoole I hope things go well today for your DH.

Ludoole · 25/09/2014 19:12

After all the worry chemo actually went really well!!
Worst thing for dp was the 8 hours we ended up being at the hospital.
Thanks to everyone for the kind words.
Hopefully the avastin, oxyplatin and the tablets (whose name escapes my tired brain at the moment) will give us a few more years together.

OP posts:
Eyespy24 · 26/09/2014 12:29

So pleased to hear. Fingers crossed it does the trick. How many cycles is he having?

Ludoole · 26/09/2014 16:33

Eyespy
Hes having 8 cycles then they will just do maintenence sessions to try and hold it off as long as possible.

OP posts:
CariadsDarling · 29/09/2014 02:24

Ludoole, how are you and yours?

Ludoole · 29/09/2014 19:36

CariadsDarling Emotionally, physically and mentally knackered is the easiest way to sum everything up... Thanks for asking.

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CariadsDarling · 01/10/2014 06:34

Im sorry to hear that and wish you all better days very soon. xxxxx

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