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Life-limiting illness

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Flat and angry

32 replies

Ludoole · 25/08/2014 20:30

Dp has his appointment thursday where we will find out the full extent of his bowel cancer and how much it has spread.
We also find out if they will be giving him palliative chemo.

He seems to be handling things quite well (we talk a fair bit about his illness when he wants to).

I seem to have adopted a cheery positive attitude when talking to anyone about his illness but inside i alternate between feeling completely flat and raging with anger.

I hate that our longterm plans have been ripped away from us. I hate that other people we know dont understand how lonely this illness has made us. I hate people telling us to enjoy every moment together - how can we do that knowing that hes going to die???

I feel utterly selfish for venting about other people. I know they just dont understand or dont know what to say but neither do I...

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MrsTeee · 03/09/2014 00:17

I second Musicaltheatre's recommendation of Maggie's Centres. The best thing about them is that they are drop-in. so you could just go there one day and see if you are brave enough to go in; once you are in, you will feel as if you are at home. They are very easy places to be. Thanks

Ludoole · 03/09/2014 01:04

Im sure Maggies centres work very well for lots of people but I personally dont like talking face to face with people at the best of times, let alone about my deepest fears.
I hope the centres continue to help others and im so glad that there are services available. Its just not for me im afraid.

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EverythingCounts · 03/09/2014 01:19

I don't think I can add a lot that's helpful but just wanted to say that I think your reaction to other people is very understandable and not selfish. It's a shitty situation you and your DP have ended up with. I hope the chemo works well for him.

theclockticksslowly · 03/09/2014 16:43

I never liked talking face to face with strangers (or majority of people I know actually!) either. Just feels very uncomfortable. When I did try the counselling sessions I would come out feeling that it wasn't at all useful. I know many people have benefitted from it however it wasn't for me.

theclockticksslowly · 03/09/2014 16:45

How is your DP today Ludoole? Flowers

Ludoole · 03/09/2014 23:32

theclock He's ok, thankyou for asking. His wound is granulating beautiful. Hes having trouble sleeping although hes exhausted. We asked his gp for some sleeping tablets but he prescribed tranquillisers that dp cant gave anyway due to his other medical condition myasthenia gravis.... we are changing doctors very soon....
How are you and your daughter getting on? Flowers

Chemo starts 24th sept. We are praying for 5 years but we'll see...fingers crossed !

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Ludoole · 03/09/2014 23:40

My predictive text changed words Angry
Beautiful=beautifully
Gave=have

Flipping phones probably got bloody cancer!!!

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