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Residential Retirement Village - Price hike by over £4K per annum and other problems - Help please

28 replies

NatM70 · 08/09/2023 21:16

I hope I'm posting in the right please, and I'll try to keep this sort.

Mum moved in to a residential village last December (2022).
And it has been an absolute nightmare, so many issues, I won't list them all here, but primarily, I have grave concerns about these issues, and wondered if anyone knows if I can do anything about these please?

  • The retirement village put the price up by over £4,000pa per tenant in March '23, less than three months after mum moved in. This was a huge shock and I challenged it and asked for complete transparency of when they were aware these prices increases were known about, as if they'd known when we agreed to the tenancy, mum would not have agreed to it, and stayed where she was (saving herself an absolute fortune as she's spent thousands doing the place up along with paying the rent and service charges). After months and months of chasing them, I finally got a reply, quite condescendingly telling me they apologised for the technical jargon, like I am some kind of idiot! - So I was determined to read this and understand it, as it was definitely trying to throw me off the scent. In their email, it is stated three times that they were aware of upcoming 'substantial increases in prices' before my mum agreed to the tenancy. So, they knew about it, but failed to tell us. Which took away our ability to decide against the tenancy had we known about these increases. A later email tries to backtrack saying there are some mistakes in their first email (hard to believe, it's from a manager apparently), but still state they were aware of substantial increased before my mum agreed to the tenancy. Can I do anything about this does anyone know? I probably need legal advice, but thought I'd ask on here in case anyone can advise in the meantime.
  • When we went to view, they said that mum had to have care package as it was a care apartment. This is £21.34ph, for 4 hours pw - The very basic level. She doesn't need care to be honest, but they said if she wanted the apartment, she'd have to have their care plan. I have since found out from Adult Social Services that this is a lie, mum did not need to accept their care, so they lied to us. I did ask how long she would be on the waiting list if mum didn't take the 'care apartment', and they said months to years, so I felt they put us on the spot, lied to us, and pushed us in to making a quick decision based on these now apparent lies. They're now saying mum hasn't paid for any of the care she's had, and owes them over £3,115. Before we signed the tenancy, I checked with them the total amount that she'd be paying per month so I could budget for her, and they gave me a figure, which we agreed to (pre price hike above), and presumed the care was within this as I'd asked for a total price and they insisted she had to have the care plan, so to have a call today saying they've not charged her in error, demanding proof of her paying monthly via bank statements, etc., is a huge shock. Can they do this? They've been to see her and told her this, and she's so upset. She's elderly, not in great health and is vulnerable. I am furious with them, I have specifically told them to deal with me and not to bother mum. They've ignored me yet again, and now mum is in a right state.
  • Huge amounts of a controlled drug (the strongest cocodamol) were recently going missing from mum's apartment. This only started when the carers started to administer her medication in April of this year. Only this medication was taken, and yes it was taken, leaving surplus of other medication. I noticed an unsealed box which I thought was strange as I know mum never takes it, so I opened it and at a glance it looked like the medication was in there as the information leaflet was manipulated to make it look like there were blister packs under the info leaflet. However, I removed the leaflet and saw 60 out of 100 tablets were missing. I checked another box, and 80 out of 100 were missing, with another whole box completely missing. A further 10 went missing after I'd checked and then removed them from her apartment for safeguarding, so 250 in total have been taken. I had been meaning to call her GP to say to only administer on an 'as needed' basis, as mum never takes them as they affect her bowels. She has not taken these tablets, and no one else has access to where this medication was. And like I said, it's only since the carers started to administer her medication that it started to go missing. They've apparently done an investigation and obviously (as expected) denied it, but it's now out of my hands, as Social Services are investigating the residential home re this, and I hope that they get to the bottom of this, because even though I don't have solid proof, I know without doubt that these were stolen from mum. And the only ones who had access were the so called carers.

There's so much more, I am at my wits end. The place is a nightmare, and totally unlike what people had told me about the place, else I'd never have let mum go in there.
Mum's running out of money at an alarming rate with this price hike (she was breaking even before this increase), and I need to get her out of there, but it was a nightmare getting her in, and she's just started to settle, so I dread to think we've got to go through this again and mum will be uprooted only to have to try and settle in somewhere else.

Can anyone help with any of the above issues please?

Thanks for taking the time to read, I do appreciate it.

TIA.

OP posts:
Silverdogblue · 08/09/2023 21:38

Crikey OP. Just bumping for you. Sounds so stressful for you.

pickledandpuzzled · 08/09/2023 21:52

Sounds appalling and very alarming for anyone who has to make similar choices in future.

Is there a CAB you can go to? Or perhaps ask the local authority?

BruceAndNosh · 08/09/2023 21:58

Is the ppace under the Quality Care Commission?

endofthelinefinally · 08/09/2023 22:08

As well as reporting to social services and QCC, I would write to your mum's MP outlining everything and report the theft of drugs to the police. Does your mum have property insurance of any kind? Sometimes free legal advice is included in the policy.
Speak to Age UK too.
This kind of thing is getting more and more common as these companies exploit elderly people.

trulyunruly01 · 08/09/2023 22:09

It very much sounds as if it will fall under the auspices of the Car3 Quality Commission so I'd definitely call them in. If Adult Social Services were involved in your mum's placement then make a formal complaint there.
Help the Aged?
I think possibly the police too if you suspect thefts of controlled drugs (although it doesn't even sound as though they are storing or recording controlled drugs correctly).

endofthelinefinally · 08/09/2023 22:09

Sorry, that should be CQC.

saraclara · 08/09/2023 22:15

The missing drugs should definitely be reported to the CQC.

Is there a MAR chart in her flat that lists her medications and when they're given to her? There should be, and it should also say how many tablets remain.
If it's not there, ask the care provider where it is.

Regarding her general situation and the lies about payments, give Age Concern a call. Their advisers are absolutely excellent.

Theeyeballsinthesky · 08/09/2023 22:16

so sorry OP that sounds super stressful M. Im not clear from your post whether it’s a retirement village, extra care housing or a residential home.

I would start by ringing age uk advice line or independent age advice line. They will be able to give you advice & put you in touch with specialist advisors in this area.

SaturdayGiraffe · 08/09/2023 22:17

No advice but suggest you remove any small items of value for safe keeping as well.

RadioBamboo · 08/09/2023 22:17

On the price increase you need to look closely at the paperwork. Unless there is either (a) something in the contract guaranteeing no increases for a certain period or (b) something in your correspondence with them with a similar promise, then unfortunately I don't think you have much ground to complain.

saraclara · 08/09/2023 22:26

Regarding her general situation and the lies about payments, give Age Concern a call. Their advisers are absolutely excellent

Sorry. My mistake. It's Age UK now..

endofthelinefinally · 08/09/2023 22:31

Yes, if drugs are being stolen, jewellery and money/bank cards will be fair game too.

endofthelinefinally · 08/09/2023 22:33

You might consider a small camera near the place where the drugs are kept.

Highandlows · 08/09/2023 22:57

I can imagine these care places are mostly dreadful. So hard for the elderly and their families. I sympathise with you and hope you can get her to a better place. If they are acting dodgy and dishonest in your face imagine how is behind the scenes.

NatM70 · 09/09/2023 10:09

Thanks so much for you replies, I really appreciate it.

It's Extra Care / Your Housing Group.

I've reported to the CQC, but they don't seem interested.
Adult Social Services are looking in to the missing drugs.

I tried to get copies of archived carer's notes, to see if I could find a pattern, but they say due to Data Protection, they can't give them to me - Very strange as I'm named as having authority and they've shared everything with me until now. Including, in error, emails to me containing sensitive information about other residents.

I also called mum's gp re this and strangely, I'd been taken off 'person with auhority', right after the residential village had called them.
Call me a cynic, but that's no coincidence!
I now have that back in place and have asked the gp not to talk to the residential village at all.

There is a MAR chart, but they say they don't have to account for any they've returned or destroyed.
I know they've not done any of these as there are surplus of other meds which have not been taken.
But I can't prove this!
They're trying to cover their backs and refusing to look in to this properly.

I'll call Age UK and see what they say.
Thanks for this, I never thought to call them.

Then I'll go the legal route if that's what I can do.

As for the caring element they say mum hasn't been charged for, I'm simply not going to pay that.
They gave us a total price which they said included everything.
They've not done anything in the way of care, and as I see it, they're the only ones who had access to the missing medication, so I'm not paying for someone to steal from mum.

I'll call social services too as they said if all else fails, they'll help me to move her to somewhere better.

Thanks so much.

OP posts:
ElsieMc · 09/09/2023 10:47

Op, this is appalling. Your poor mum. I would see a solicitor. I would ring round a few firms to see if there is anyone who specialises. If there is, tell them what the issue is so they can prepare and you also be prepared to pay for their legal advice. There are always suggestions that it will be free but in reality you need proper advice, put in writing in reference to the extra charges they failed to make you aware of and the enforcement of the "care package". It seems like a contact issue . You don't need to instruct anyone long term, just pay for specific advice. You can then decide if you wish them to write to the organisation involved.

Whilst you have done the right thing reporting matters to various authorities/organisations often people will pass the buck.

The missing drugs are a police matter. Good luck.

DyslexicPoster · 09/09/2023 10:54

I would leave the medicines out in her kitchen and record the kitchen when the carer is there. Or even put a open purse with a couple of notes on the kitchen table. If you hot that on film I'm pretty sure you could get her out of there asap. It's a horrible situation. However these recordings have made the news multiple times.

Seeleyboo · 09/09/2023 11:01

Secret cameras.

SafeguardingSocialWorker · 09/09/2023 11:20

I wrote a really long post out and mumsnet crashed just as I was about to post.

In a nutshell CQC won't be interested at this stage, they don't deal with individual complaints generally unless it's a really serious incident like a death, any information they get is passed on to the local authority to investigate first.

The CQC are also unlikely to be the regulatory body for the housing provider as normally the housing provider and the care provider in these set ups operate as two different companies even if on the face of things they appear to be the same company.

If they haven't been keeping proper records of medications that have been disposed of or returned then they have a BIG problem

If you are LPOA for health and welfare you can make a subject access request on behalf of your mum for her information.

Are social services 'looking into it' or has it been opened as a safeguarding enquiry? There's at least 2 or 3 potential abuses detailed in your posts that would meet the safeguarding threshold so I would be asking if it has been referred for safeguarding if you haven't been explicitly told either way.

Turmerictolly · 09/09/2023 11:32

Instal cameras (I think you have to make the care home aware of this but they can't stop you). When your mum signed the tenancy agreement, the charges should have been laid out in writing. Social Services should carry out a financial assessment to see how much she contributes towards her care costs. Is she getting all the money she's entitled to ie; Attendance Allowance?

ohtowinthelottery · 09/09/2023 11:44

You say your mother hasn't had any care, but then you talk about carers notes and administration of drugs - which is surely classed as care?

I'd start talking to Adult Social Care about finding a alternative place for your mother to live and Age UK is Citizens Advice about the legal aspects of breaking the tenancy based on you been misled about the fees.

SafeguardingSocialWorker · 09/09/2023 11:55

I've just had a look at Your Housing Group as it's not one I'm familiar with.

I can't see any evidence they are a care provider - they just operate the housing side of the business so CQC definitely won't be interested in any complaints about them.

The financial issues you have with YHG them with the rent increases need to be treated separately to the issues you are having with the care provider around medications etc.

You/ adult social care need to speak to the regulated provider of the care - it is the care provider who are the ones that need tackling about the meds issues etc entirely separately to the issue you have with the housing provider.

endofthelinefinally · 09/09/2023 13:00

We actually bought cameras for MIL's flat, but we were so busy we didn't get to install them for a few weeks, by which time the carers had stolen all her jewellery.

NatM70 · 09/09/2023 15:41

Thanks so much, some great advice here.

I'll answer what I can -

I've got Age UK's number and will call them on Monday.
I've sent an email to my cousin's husband, who is a partner in a law firm here, laying out the issues to see if I do have a case.

I'm telling YHG/Extra Care that I do not want any carers going in to her any more.
Especially now I know we never needed to have them - I would never have agreed to this had they not told us that we had to have them else mum couldn't have the apartment.
Yes, they did administer meds from April, but that's about all they've done.
They're rude and surly. And thieves.
the service is certainly not worth over £3,000.
And because of the stolen medication, I'm simply not paying it.
They told me at the very start that the monthly fee we were quoted / given included everything - If they've omitted the care element then that's their problem.
I'm so angry with them, I will not be paying it.
They can take me to court - they really don't want to do that because I'm ready to go to the tabloids with what's been going on in there.

They say they do NOT need to keep records of any medication they've destroyed, removed, or returned to chemist.
The chemist, sadly, do not keep records of returned meds.
And that's where their get out clause is.
And therefore even though I'm certain they've stolen from her, I can't prove it.

Social Services are treating the 'missing' medication as a safeguarding issue.
I'll call them on Monday re these other issues, though they are already aware of the huge price hike.

I have the contract, no where does it say she'll be paying extra than what we were quoted.

YHG own the property, and Extra Care are the ones who provide the care, etc.

I'm so sorry to hear that @endofthelinefinally, That's absolutely disgusting.

OP posts:
Sureaseggs44 · 30/01/2024 17:45

Do you have full power of attorney financial and medical ? That will take a lot of pressure off your mother . It’s simple to do on line with gov uk .