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NHS Complaint about miscarriage experience, possible trigger warning graphic descriptions, need an opinion

14 replies

missedmiscarriage · 31/07/2022 11:46

I had a missed miscarriage earlier in the year, the baby had died shortly after 12 weeks but it was picked up at just shy of 18 weeks. There are a few things that happened that I still feel so angry about and in order to move on I do feel like I want to put a complaint in about how I was treated by the hospital, it is an nhs hospital so I feel guilty doing so and obviously have strong emotions on everything that happened so I wanted an outside opinion on whether these complaints are valid

Admitted on a Friday evening, midwife had been unable to find heartbeat at home appointment day before and I had begun bleeding Friday evening. A scan was done at A&E on a small scanning device and no heartbeat was found. They would not confirm that the baby was dead until I had a proper ultrasound which took place Monday morning despite 3 small transportable device scans being done over the weekend and no heartbeats being found on them or doppler. They kept me in limbo over the weekend and I didn’t feel that was necessary after so much confirmation that there was no heartbeat. Also would of surely been obvious they were not looking at a baby of 18 weeks on all of these scans even if not a full ultrasound?

Despite the fact the entire weekend they would not confirm whether the baby was dead or not they left my notes in front of me and my husband read them and they had wrote that during a speculum they could smell decomposition. This made my husband cry and when I was asking what was wrong he took my notes away so I would not see. Not sure if can complain about this as perhaps he shouldn’t of read them but I do feel if they smelt decomposition I should of been told and it’s more reason they could of confirmed death a lot quicker

Once the baby had been confirmed dead on Monday the terminology very quickly changed to fetal remains when talking about my options and throughout the rest of my stay. This was a baby to me and very difficult to hear.

Once the baby had been confirmed on the ultrasound to of died shortly after 12 weeks they very much treated me like I had an early miscarriage and it felt almost forgotten that I was a women who was 18 weeks pregnant, my body had retained the pregnancy for over 5 weeks and my hormones had continued to be produced. Issues arising from this were that I was not prescriped any medication to stop my milk coming in, it was insisted it was impossible when the baby had died so early. Upon my own research it was definitely not and my milk very much came in and really made a horrible situation so much worse. It took a week to go away and was a painful and constant reminder of what had happened. Other ways in which I feel it was treated like a very early miscarriage as opposed to my experience of being nearly halfway through my pregnancy was the way the doctors spoke to me, about how it’s just one of those things and happens to 1 in 4 pregnancies etc. kept saying early miscarriage. Of course I understand now that technically maybe it was an ‘early miscarriage’ in reality but by experience it was a late loss and I do not feel the emotional impacts of this were considered either.

I had medical management and afterwards when they asked if I wanted to see the baby I was clear and said that yes I’d like to say goodbye but only if it isn’t going to be anymore traumatising, as I was in my head 18 weeks pregnant and it was a real baby to me and I knew what I would see wouldn’t be that but I didn’t know what a 12 week baby looked like and I only wanted to see if it looked like a baby. They said it did and he was shown to me. Unfortunately he didn’t at all, a crude description but he looked one of those toy gooey aliens and it broke my heart. I still have visions of him sometimes and find it very difficult. straight after seeing him I was sobbing that he wasn’t a baby, so why did I feel like I’d lost my baby. Again with time I of course understand he wasn’t technically a baby but a foetus and that perhaps my request of what I wanted to see was subjective. But I do wish I’d been told that it wouldn’t be what I thought. I would of preferred to remember him how he was in my head, a baby, as opposed to what I saw.

During the medical management I was warned I would feel some cramping like period pains, I feel I was drastically downplayed the reality, it felt like full blown labour and went on for 5 hours. I appreciate that the baby coming out wasn’t as painful as birth due to the size, but the contractions were just that, contractions and they were relentless and excruciating. The induction pessaries were rapidly put in and I wasn’t eased into it, it went from 0 to 100 very very quickly. I was heartbroken and in pain and just kept getting called a warrior by the midwives but felt really scared and unprepared

When I actually passed the baby he was obviously attached to the placenta which hadn’t come out, I was stood over the toilet and I could feel the fetus had come out and was lying against my thigh. It took the midwife 15 minutes to come and clamp and remove him from me. That felt absolutely traumatic and I feel like it should of been instant. We had to ask the health care assistant 5 times to go and get her and she kept saying she was doing controlled medicines stock or something. If she was with a patient perhaps I’d be more sympathetic but to leave me in that position for that reason didn’t feel fair

Discharged with zero aftercare, not told to take a pregnancy test which would of made my retained tissue problems be dealt with weeks quicker, told I’d hear from a bereavement midwife and never did, really was just left to it with no support

was told post mortem results would take 18 weeks but chased up a couple of weeks ago and was told I can expect a wait of atleast another 6 months

OP posts:
missedmiscarriage · 31/07/2022 11:47

I will add I do not want money or anything more than just an acknowledgement of how I feel and an explanation for some of the things that happened. An apology. Just feel so let down.

OP posts:
Neeway · 31/07/2022 11:53

There’s so much pain in your post OP. Having suffered a MMC myself I found the limbo of not knowing especially painful.
It sounds like you have had a particularly painful time and that includes not being seen as half way through your pregnancy. The change of language is a difficult one as it very quickly becomes a medical language rather than your baby.
Look after yourself, you’re in a particularly vulnerable place right now.

missedmiscarriage · 31/07/2022 12:20

Thank you, and I’m sorry you’ve been through this too. I’ve tried so hard to just draw a line and move on, I’m actually pregnant again which I think I desperately felt like I needed to do to move on but of course now I am I realise that it wasn’t the answer and now I just have all this unprocessed grief from last time as well as the anxiety about a new pregnancy. Even just writing this post and having someone validate that it was traumatic helps in a weird way. I think for my own closure I need to voice my experiences to the hospital, I do understand it’s a horrible scenario and no women are going to walk away thinking of it as a positive one, but I do think I could of walked away thinking it was horrible but handled well. I don’t feel that way.

OP posts:
Positivevibes2022 · 31/07/2022 12:32

Wow. I’m so sorry you had to go through that. Sounds horrific ☹️ I would 110% make a complaint. It’s not acceptable at all. Good luck with your current pregnancy x

Motnight · 31/07/2022 12:42

Op that sounds horrific, I am so sorry for your loss.

pastabest · 31/07/2022 12:43

I'm so sorry to hear your experience OP and I've written here previously about my own similar experience of miscarriage.

I don't think anyone has done anything particularly wrong though from your description. Your experience is unfortuantely reflective of the fact that there just isn't enough people and resources in the NHS to provide the level of service we expect. There isn't a 7 day a week 24 hour service for e.g. the ultrasounds or extra staff to cover when medication rounds are taking place.

you have had a particularly horrible experience, it's normal to feel traumatised by it and I hope writing it all out has been cathartic for you.

my experience was that talking about it and telling others about the realities of miscarriage care gave me the sense that I was ' doing something' about it. We don't talk about it enough, it's taboo and many women go into pregnancy and subsequently miscarriage completely unprepared for when things go wrong and left feeling devastated and helpless when a life and relationship defining/changing event for you is essentially just another medical procedure for the NHS.

lifehappens12 · 31/07/2022 21:48

I am so sorry about your experience. There are parts that feel "can't be helped" ie lack of ultrasound at the weekend. However if you were on a ward - couldn't a consultant come with a portable scanner?

The other parts - poor language use and poor care - it would not cost any money for the ward/midwifes to consider their language.- you can share your experience back through a complaint and hope that maybe for the next person who goes through your experience - it will be different for them.

I wish you all the best for your next pregnancy. I lost two before my last pregnancy (losses at 8/9 weeks) and even though I felt like I had a good community midwife - even she admitted there is little they can do before 20 ish weeks. She was largely absent until I hit the 25 week mark but then she was great and always said I could have extra appointments if that would help me cope to the end.

RedHelenB · 01/08/2022 06:09

missedmiscarriage · 31/07/2022 11:47

I will add I do not want money or anything more than just an acknowledgement of how I feel and an explanation for some of the things that happened. An apology. Just feel so let down.

I'm trying to be gentle but I can't see anything really to complain about.
I'm so sorry you went through a miscarriage, I had a missed miscarriage and know the sense of loss you feel but with time this will.ease. I hated my GP telling me the mc stats and that the likelihood was the baby had abnormalities, but she was right and I did go on to have a healthy pregnancy a year later

PlantSpider · 01/08/2022 06:19

I’m so very sorry that happened to you and your baby. I don’t agree with previous comments about things that couldn’t be helped. How you’re spoken to matters, the language they use matters. That costs nothing and is basic decency. They should know better. I’m very sorry Flowers

KJPrice · 01/08/2022 06:20

RedHelenB · 01/08/2022 06:09

I'm trying to be gentle but I can't see anything really to complain about.
I'm so sorry you went through a miscarriage, I had a missed miscarriage and know the sense of loss you feel but with time this will.ease. I hated my GP telling me the mc stats and that the likelihood was the baby had abnormalities, but she was right and I did go on to have a healthy pregnancy a year later

I'm trying to be gentle but I can't see anything really to complain about.

I'm so sorry you went through a miscarriage, I had a missed miscarriage and know the sense of loss you feel but with time this will.ease. I hated my GP telling me the mc stats and that the likelihood was the baby had abnormalities, but she was right. and I did go on to have a healthy pregnancy a year later.

There was no need for your last sentence. Insensitive much?

RedHelenB · 01/08/2022 06:32

KJPrice · 01/08/2022 06:20

I'm trying to be gentle but I can't see anything really to complain about.

I'm so sorry you went through a miscarriage, I had a missed miscarriage and know the sense of loss you feel but with time this will.ease. I hated my GP telling me the mc stats and that the likelihood was the baby had abnormalities, but she was right. and I did go on to have a healthy pregnancy a year later.

There was no need for your last sentence. Insensitive much?

Why is offering hope when the OP is pregnant again insensitive ?

Maybeonedayeventually · 01/08/2022 07:01

Really sorry for your loss

Gently, other than the bereavement midwife not contacting you I don't think anything you've described is clearly poor practice. This said, they can always improve and it would definitely be helpful to feedback how you felt about the various aspects of your care during the miscarriage.

I'd assume they're unable to confirm a baby has gone without a full ultrasound, it does sound like they were clear either you that there was no heartbeat though. I'm going through a MMC now and I do understand how hard that 0.1% hope can be but I see shat else could have been done? It must have be very upsetting to know they could smell decomposition, and it's a shame your husband read this as it must have been difficult to hear without it being explained.

The terminology is subjective, some people would hate to hear the word 'baby' and would prefer something more medical and less emotive. It would have been good practice to ask you your preference though.

I'm sorry you saw your baby and didn't feel they looked like a baby. I can imagine that compared to a mc at 5-8 weeks your baby was recognisable as a little human to them, but this must have been so difficult for you.

It is surprising that they weren't available when you had delivered your baby. Controlled drugs need 2x nurses/midwives to administer. They can't easily be put down, and it may have been a medicine that wad urgently needed - or it may not have been and they perhaps could/should have prioritised you. Again worth spelling out how this felt.

scarfandhat · 01/08/2022 07:25

Really sorry for your loss. I'd suggest contacting PALS at the hospital when you feel able to. I wrote to them after our missed miscarriage. The circumstances were different, but I wrote, much like your OP, describing how the various parts made me feel and how it felt they'd added unnecessary additional distress. PALS we're lovely and I ended up meeting a senior midwife to talk through what had happened with a view to helping them improve their care, particularly when women come in through A&E.

WiseUpJanetWeiss · 01/08/2022 07:34

I am so sorry for your loss OP. Flowers

You are clearly traumatised, and need some help with that. I have very little knowledge about this, but have you tried SANDS as a source of advice?

Part of your healing process may need to include complaining or giving feedback to the hospital. It may not be a case of negligence, as others have said, but what you have described is a world away from good patient centred care. You don't have to go in all guns blazing, but a letter describing where you felt the hospital could have done better, and spelling out what you want to happen, would be perfectly reasonable. You can say you realise they were busy with conflicting priorities - this still doesn't mean that you have to shut up and put up.

I don't know what you want, but I think I would want

  • acknowledgement that your patient experience was considerably less than optimal
  • assurance that your experiences would be used to make improvements
  • the opportunity for a de-brief with a senior midwife
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