I’m in a similar boat. No positive new- yet!
I had my latest FET yesterday, so i’m hopeful the additional medication has done the trick this time.
If any help this is my experience with Care Woking.
My clinic needed to use all my frozen embryos (3) before further investigation could be carried out using NHS funding. I am fortunate I was able to challenge this, and insisted on paying for private testing for the follow on investigations after my last FET failed. This was to avoid using anymore embryos without an answer. We are were referred as unexplained. All embryos are PGT-A tested and confirmed Euphloid. My body responded perfectly to the meds for egg collection and FET prep last time so I wanted some answers before potentially wasting another embryo repeating the same protocol.
I asked if I could try aspirin and fragmin on the next cycle anyway, but he wouldn't allow it.
He did however support me by agreeing to order a Thrombophilia Screen and TH1:TH2 cytokine ratio testing. I paid for this privately.
The primary screen results revealed I have elevated Beta 2 glycoprotein antibodies and I also have an elevated TH1:TH2 cytokine ratio so I have now been prescribed fragmin, aspirin and prednisolone steroid in addition to the usual oestrogen and progesterone to prep my womb. It’s not supported by a huge amount of research, but an intralipid infusion was offered too so I have taken that on the basis evidence suggests it can potentially help, there is no evidence to suggest it hinders.
The waiting between each step is a killer! For a confirmed diagnosis the 12 weeks between tests makes sense, but if the outcome is you end up taking aspirin and fragmin I would challenge the value in waiting to confirm it. I didn’t, once it’s there you’re almost certainly going to end up on aspirin and probably fragmin too, your end goal is a pregnancy.
The healthcare system in the country is unfortunately event driven, there is no long term strategy for individual patients unless you challenge things.
I visited my GP several years ago with symptoms of lupus and Raynaulds syndrome and no investigations were progressed as there is no treatment. Now I have a better understanding of my situation these tests I have just paid for and a course of prednisolone would have likely avoided IVF in the first place. It was never considered as part of the fertility referral, I didnt know enough about it at the time to think it relevant and raise it. I dont want to count my chickens before my eggs hatch, but the most obvious answer tends to be correct. Aspirin and a steroid course cost pennies by comparison to my costs to the NHS this past year. All from a reluctance to follow up or progress screening. Or review the patient history as part of a referral.
I asked the consultant if a second positive result would impact the medication and he said not unless something new was identified.
Ask more questions is my advice, never accept a wait without a reason being provided.