Adenomyosis and pregnancy?

[kungfoofighting]

Just told today at an unrelated US appointment that it looks like I might have mild adenomyosis. The sonographer seemed to think this is nothing to worry about in terms of TTC and has no implications for fertility, pregnancy. A very small bit of initial googling says otherwise! For a start, miscarriage rates are higher.

NB: I’m currently gearing up for a frozen embryo transfer following IVF retrieval. My initial googling seems to suggest adeno can potentially affect/impede implantation and increase the risk of premature birth.

Anyone with any experience of this? Trying to work out next steps and how much this is likely to affect things.

Hi,

No personal experience in this but it might be worth asking your clinic about whether it's worth doing a down regulation protocol to try help calm down the adenomyosis before the transfer. I think it's common approach in cases of endo/adenomyosis etc.

Hopefully someone else on here has personal experience and can help.

Good luck with your FET x

Thank you! :)

Yep
Agree with this.
My experienced consultant suspects mild endo or ademoysis hence down regulation / long protocol

Sorry I can't help but I'm due to start my first IVF cycle and I was told 8 years ago from an (non fertility) US that I had it and then I have been told in 2 recent (fertility) scans that I have it. However when I asked my consultant if we would do anything differently with the cycle he looked at the scans and said that I most likely didn't have it and that my uterus was just tilted so causing a dark area. Even if I did have it he said that they wouldn't do anything differently. I'm not sure who is right - the consultant or the 3 nurses who scanned me but it seems to me like there's not enough known about the condition when it comes to IVF.

Good luck with your FET .

Thank you! And thank you for sharing, that’s very interesting. I haven’t spoken with my clinic yet, will be interested to see what they say.

And it sounds like in your case it hasn’t progressed either? (This is something that has been concerning me – people clearly suffer terribly with the pain when it’s more advanced. I’m also now concerned that a C-section might exacerbate it.)

Good luck too with your first cycle, hope everything goes well :)

Hello. I have quite bad adenomyosis and, other than delaying my treatment, it hasn't had any affect and we are pregnant with our first fresh embryo transfer.

My treatment was initially delayed as they wanted to do a few extra tests to see if my womb cavity was clear and I had a saline scan so instead of starting in early November, we started in late December.

They also offered me the 'long protocol' which is where you down regulate (via tablets or nose spray) before injections - this apparently gives them more control of timings but has the added bonus of stopping the body producing estragon which inflames the adenomyosis. They told me it would help calm my adenomyosis down and my final period would be lighter and less painful - it was to some extent.

I read the stuff about increased chance of stillbirth and miscarriage but my clinic didn't seem to think it was any concern and I'm not deemed an 'at risk' pregnancy.

Hope this is somewhat reassuring. Good luck.