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Infertility

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Low sperm high fsh

31 replies

Lopst23 · 19/01/2025 21:41

Sorry I am posting a lot. Google is being no help.
OH has oligozoospermia, so low it wasn't even recorded. But still there are some sperm. Further tests showed very high FSH (29) and high LH (10). Waiting to hear back from the clinic but me being me I am searching the Internet so I know what to expect.
Some people talk about still going for ISCI whilst others talk about needing karotype testing done first.

Has anyone any experience of this?
Panicking that it will be another set back since I already was told I can't wait too long for treatment with my low AMH

OP posts:
Cornish13 · 04/04/2025 10:49

@Lopst23 I think in a way I want the treatment to be done because then it’s off of my partners hands and in mine. Me and him are very different in how our minds work and I’m very much rip the band aid off and get on with it but at the minute nothing is in my control.

Ergh that’s so annoying for you! Especially when you’re anxiously waiting on those results as well as to whether the TESE will help.

Well she’s also wanting to test for the cystic fibrosis gene as well for some reason! Although we do already have a daughter (who these consultants keep telling us it’s a miracle she was conceived. Not sure if I find it condescending or not) and she’s fine and carries no gene. But yes the consultant said she’d rather be sure before starting treatment 🙄 which is annoying as they’ve known all along that it’s a 6 week wait for why not suggest that back in December as it would have been done by now

Lopst23 · 04/04/2025 11:06

Cornish13 · 04/04/2025 10:49

@Lopst23 I think in a way I want the treatment to be done because then it’s off of my partners hands and in mine. Me and him are very different in how our minds work and I’m very much rip the band aid off and get on with it but at the minute nothing is in my control.

Ergh that’s so annoying for you! Especially when you’re anxiously waiting on those results as well as to whether the TESE will help.

Well she’s also wanting to test for the cystic fibrosis gene as well for some reason! Although we do already have a daughter (who these consultants keep telling us it’s a miracle she was conceived. Not sure if I find it condescending or not) and she’s fine and carries no gene. But yes the consultant said she’d rather be sure before starting treatment 🙄 which is annoying as they’ve known all along that it’s a 6 week wait for why not suggest that back in December as it would have been done by now

I have a friend who's husband carried the CF gene and is also affected his vas deferens which stops the sperm being carried from the testicles. They had great success with tese.
I'm exactly the same I just want to know now, it feels cruel to keep saying we will know after this test then say oh actually we need another. I have been ill with stress over it. And i very much struggle with the lack of control. It's horrible.
My partner acts so laid back about it all but I can see through it. He hates how much it's affecting me and it worries me that that's his main concern. I'm worried it will catch up with him if we get more bad news.
I can totally appreciate how frustrating it is to have made a start with treatment by freezing sperm and then asking for these tests. We have very much been the opposite nothing will be done without them which while massively annoying is maybe easier.
Hopefully your partner will come round to the tests so you will have answers.
We have no children together but I keep getting told oh well you have your other children focus on them. Seriously hurtful and not helpful in any way. That desire is the same whether it's your first, first together or second,third etc.

OP posts:
Cornish13 · 04/04/2025 11:27

@Lopst23 my partner has said he won’t have anything surgically removed so it still won’t help us 😂 but will do the tests anyway just to say we’ve done everything they’ve suggested. I went into the follow up yesterday after his last freeze thinking this was it, we’re finally at the point of discussing treatment and got my hopes up, to then be told oh actually you need to do this now 🙄

Yes I struggle when I’m not in control and sometimes it also then makes me feel angry towards my partner as he has the control and I struggle with how he takes so long to make a decision. It causes so much stress and tension in relationships I don’t think others realise!

Ergh it’s so frustrating when people make stupid comments. I always get “be grateful you have one”. Of course I’m grateful, anyone should be grateful to have children but it doesn’t take away the fact we would like more. It’s hard to describe the yearning for more children but our bodies aren’t working in the way they should, so that yearning becomes pain

Lopst23 · 04/04/2025 11:38

Cornish13 · 04/04/2025 11:27

@Lopst23 my partner has said he won’t have anything surgically removed so it still won’t help us 😂 but will do the tests anyway just to say we’ve done everything they’ve suggested. I went into the follow up yesterday after his last freeze thinking this was it, we’re finally at the point of discussing treatment and got my hopes up, to then be told oh actually you need to do this now 🙄

Yes I struggle when I’m not in control and sometimes it also then makes me feel angry towards my partner as he has the control and I struggle with how he takes so long to make a decision. It causes so much stress and tension in relationships I don’t think others realise!

Ergh it’s so frustrating when people make stupid comments. I always get “be grateful you have one”. Of course I’m grateful, anyone should be grateful to have children but it doesn’t take away the fact we would like more. It’s hard to describe the yearning for more children but our bodies aren’t working in the way they should, so that yearning becomes pain

Have they said you have enough frozen for ICSI? We were both really hoping to avoid surgery as well. Extra cost for one but I think both of us are scared as it's the last option and if it doesn't work it's another very painful conversation.
My partner has always said we will do whatever it takes, but doesn't want to spend money if it's very low chance of success.
He was fine with surgery until his GP told him to find out the chances of finding sperm so we don't waste our money which was so unhelpful and sent him into a bit of a wobble.
I get the anger completely. He does seem so hesitant at times and doesn't push if the clinic are giving us mixed info. He won't chase results or put any pressure on and we have wasted so many weeks waiting for results that have probably been sitting ready for a long time.
It drives me mad. I'm much more pro active and more of an advocate for us. But since it's his issues I can't do much.
I have been the one doing all the calls and researching and planning.
I am the same in that I want this surgery done so then it's all on me.
Why is waiting so bloody hard!
Oh and don't get me started on comments people make lol. We haven't told many people at all but I've had comments like just get a donor and my personal favourite which I presume was meant as a joke, would you not just go and sleep with someone else!?!

OP posts:
Cornish13 · 04/04/2025 11:53

@Lopst23 yes the embryologist and the consultant have confirmed we have enough frozen now to go ahead with ICSI (fresh batch also on the day of egg collection). So I was fully expecting to go in and come out with a planning date etc. but no 😂

Yes it’s so hard! As I’m very much get on with it attitude and he’s not. But I can’t say anything as it’s not my decision/issue to deal with so I have to sit back and bite my tongue. I done the registration for access fertility yesterday as we’re hoping to do 2 cycles with a 50% refund, which requires a medical review that takes 2 weeks. But they can’t go ahead with it until he sets up his account and signs the declaration, which I know he won’t do until I nag at him. Which then annoys me more 😂

We also haven’t told many people as he’s asked me not to. Oh my gosh that last comment!! 😬 that’s savage. At least once a week I get “oh are you going to have anymore” or “I think she’d love a younger sibling”. I used to make excuses to save these people from any awkwardness or embarrassment on their part for asking such a personal question but now I outright say “we can’t naturally have another child so require IVF”. I quite enjoy the look on their face now. Maybe this journey has made me quite unstable 😂

Lopst23 · 04/04/2025 12:05

Cornish13 · 04/04/2025 11:53

@Lopst23 yes the embryologist and the consultant have confirmed we have enough frozen now to go ahead with ICSI (fresh batch also on the day of egg collection). So I was fully expecting to go in and come out with a planning date etc. but no 😂

Yes it’s so hard! As I’m very much get on with it attitude and he’s not. But I can’t say anything as it’s not my decision/issue to deal with so I have to sit back and bite my tongue. I done the registration for access fertility yesterday as we’re hoping to do 2 cycles with a 50% refund, which requires a medical review that takes 2 weeks. But they can’t go ahead with it until he sets up his account and signs the declaration, which I know he won’t do until I nag at him. Which then annoys me more 😂

We also haven’t told many people as he’s asked me not to. Oh my gosh that last comment!! 😬 that’s savage. At least once a week I get “oh are you going to have anymore” or “I think she’d love a younger sibling”. I used to make excuses to save these people from any awkwardness or embarrassment on their part for asking such a personal question but now I outright say “we can’t naturally have another child so require IVF”. I quite enjoy the look on their face now. Maybe this journey has made me quite unstable 😂

Haha sorry that last bit really made me laugh as I feel the exact same. My oh says I'm like a roller coaster. I spent 4 days crying when the clinic said it could be May before our next appt and that wasn't even to get started.
That's fantastic though you have enough sperm to start, although I'm sure it's just made you even more ready to get a plan in place.
We looked at access fertility as well but i didn't qualify for much due to my age other than the multi cycle. We decided against it as it didn't include medication and initially we thought it was much more than we would need to spend. Although now with all the extras it might be worth looking into again. Does the surgical sperm retrieval have to be paid separately?
Those questions are the worst, are you going to have more. We thankfully haven't been asked much if we are planning on having kids. I was the one didn't want anyone knowing but he has told quite a few and encouraged me to at least tell a close friend and few family members. Must say though with all the delays I am regretting telling them so soon. But they've all been supportive.

Hopefully you can get through to him soon and he will get the declaration done and get booked for bloods, least that's his part done.
It's such a personal journey isn't it. I cant fathom being as laid back as my partner and just going with the flow. Suppose it would be much worse if we were both the same though we would either get nothing done or both be emotional wrecks 🤣

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