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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Azoospermia support - Part 2

727 replies

WhiskeyInTheJar33 · 21/10/2023 15:48

@2022ttc
@Ljp2022
@lemons44
@IslaO
@Carla2601
@TheFanciestPants
@HoustG
@Sleeter0893
@Creatingspace
@Nats140
@pomdownunder1
@Annies1992
@Lily1994

As the old thread is almost full, I thought I'd start up a part 2 so that we can all continue our journeys together!
Apologies if I have missed anyone x

OP posts:
Thread gallery
6
2022ttc · 29/04/2024 19:17

@donnie12 congratulations ♥️ wishing you a happy and healthy pregnancy x

lemons44 · 29/04/2024 19:32

Congrats @donnie12 xx

pigbabe · 29/04/2024 21:47

@RubyStar22 I'm sorry to hear the result wasn't the one you were wanting. I definitely resonate with the feeling you described of double grief. My Husband also had a hard time talking at first, I think men and women process things differently generally. I know I'm someone who just wants to talk it out so much but my Husband wants to have a lot of self reflection first.

We are currently waiting for our FET sometime soon and used donor sperm. At first, before we had even had any SA or investigations my husabnd said he was against donor, but then I think when confronted with reality he came to accept it. I've mentioned it before in an earlier post but the book " Three makes baby" was so useful in helping imagine what our family could look like.

We will definitely be telling our children about their route into this world. I work in mental health and from experience all I can say is family secrets always hurt, and they always get out. I want to raise children that know they were so wanted, so loved and have nothing to be ashamed about...so I suppose if I kept their origin story away from them that would be counter productibe of what we are trying to achieve.

Saying that, I do think that a lot of the hesitation surrounding the decision to tell stems from insecurity and it is really difficult to come to terms with- the 'What if they want to meet and see them as their parents..'. I totally get why some people would be unsure about how much to tell. Our fertility counsellor recommended some really good age approrpriate children's books to help introduce the idea of their origin story- some charities even do personalised ones!

The way we chose our donor was really simple, our fertility clinic has its own bank, but can also use ones abroad if needed. Our donor profiles didn't have photos, but had all their demographics, occupation, education level and some info about if they carried any genetic diseases. That bit felt really simple to whittle it down to people that vaguely represented my husband physically. There was also a section about why they chose to donate, a little bit about them and then a goodwill message to any potential children. I think the goodwill message to any children was actually the most important bit for me. It was a bit surreal and felt like looking at dating profiles really, but we both just clicked with one profile luckily. Don't get me wrong, I do wonder if I should have gone for one from abroad where I can see their pictures, but a little bit of me thinks it's better not to know in a way.

Hope this is useful, we are all here for you and we will all get through this.

IslaO · 02/05/2024 08:45

Hi everyone,

haven’t been on here in a long time so catching up with everyone and trying to piece together the different stories. Always thinking of you all and hoping for success, whatever that looks like for each person. @donnie12 so happy to read your good news! You must be over the moon. @lemons44 have you been through your egg retrieval yet? I know you mentioned April but these things have a habit of not going exactly to plan. Hoping you have and you are happy with results. @WhiskeyInTheJar33 how are things with you?

All is ok with me. We had the one year anniversary of my husband’s Tese the other day and it brought back all those intense feelings of unknown, what if etc. Such a huge mental and physical journey as a couple and we’ve all been forced to go on it but I hope that we all get the happy outcomes we want, in whatever form that might be x

lemons44 · 02/05/2024 09:25

So nice to hear from you @IslaO ! how are you doing?!
We had an egg collection and fresh micro tese in Feb as a freeze all, and we finally managed to create blastocysts. We got 2 and I'm in the TWW with one now with the other in the freezer 🤞🏼 xx

WhiskeyInTheJar33 · 02/05/2024 11:23

@IslaO have been wondering how you've been getting on?? I'm good thanks. Recovered now from OHSS. Just waiting for FET now.

@lemons44 how are you doing in the TWW?

OP posts:
lemons44 · 02/05/2024 12:07

@WhiskeyInTheJar33 been driving myself a little bit crazy! Was testing early but kept getting BFNs so have stopped now until OTD which is next Thursday at 14dp5dt. I have a feeling this one isn't going to work but I'm hoping that if this one doesn't we will have more luck with our second one 🤞🏼

When do you start your FET? How are you feeling? xx

24b · 02/05/2024 12:09

So sorry and sad to read about some of the recent updates. I echo everyone else in that this journey really can be so unfair and that we’re all always here.

It’s CD 1 which means we’re officially starting IVF, I’ve had the timeline through from the clinic so it’s starting to feel real and I’m feeling all the emotions of nervous but excited.

Welcome any tips and advice from anyone who’s been through it/going through it x

IslaO · 04/05/2024 20:21

@WhiskeyInTheJar33 so glad to hear you’re recovered from OHSS and about to start the next leg. Will be wishing you all the luck in the world from afar 🤞

@lemons44 very excited for you to be at this stage but know the TWW is torture. I didn’t let myself have any tests in the house and didn’t test before 10dpt because I couldn’t bear the thought of any squinters or ambiguity. A girl I met in my clinic on the day of transfer messaged me 4 days after and was like ‘I think I see a line’ and it drove me crazy but I just couldn’t give into the temptation
because it’s too unreliable that early!

generally I’m doing fine. I would say I started to relax into things late in the 2nd trimester but the trauma of the azoo journey to get here never really leaves you. A team member in work came to tell me she’s pregnant and really surprised as it was the first month they tried and I spent the car journey home crying.. husband couldn’t understand it but I just think as the female partner in something like this, you take on the burden of your partner’s feelings as well as the heartache of the situation and it’s just so hard to shake, even when you get good news!

will be thinking of you all over the next few weeks. Sending so much luck and good vibes!

lemons44 · 06/05/2024 17:10

Thank you @IslaO 💗 I will definitely update once I know. Totally understand what you're saying, I said to my best friend the other day that I think this journey is giving me and DH some actual PTSD I'm not sure we will ever recover from. How many weeks are you now?

@24b how are you finding things? My main tip that I wish someone had warned me about is to buy some super comfy, stretchy leggings. Towards the end of stims and also when you're put on progesterone it's really common to get really bloated and your normal clothes may feel uncomfortable.

Sending love to everyone on this group xx

lemons44 · 09/05/2024 09:51

Sadly my FET didn't take. Keeping my fingers crossed our next frostie is the one 🤞🏼

Hope everybody is doing ok on this brutal journey. I realised the other day it's been 2 years since our azoo diagnosis - seems like it's been going on forever x

Magix86 · 09/05/2024 11:41

@lemons44 I'm so sorry to hear this, I've been thinking of how you were doing. Really hoping your next frostie is the one 🙏 it's a tough journey for sure, I do hope you're taking some time for you and being kind to yourself x

We're at 2.5 years since we first asked for investigations and 1.5 since the diagnosis. Finally have our first appointment at bourn hall in 5 weeks time. I had a scan at the local clinic this week and they told me my scan a year ago showed a polyp but no one ever told me this 😒 have to go back in 2 weeks for another scan when my lining is thinner so they can see if its still there. It feels like it's never going to end sometimes. I'm so glad to have this group where other people know what you're going through.

2022ttc · 09/05/2024 17:33

@lemons44 so sorry to hear this, but praying your next one sticks! Hope you're as well as can be, sending you lots of love. X

2022ttc · 09/05/2024 17:34

@sackofpotatoes123 how are things for you?

IslaO · 13/05/2024 20:07

@lemons44 i am so sorry to read this. I just came on to check up on your news and feel your disappointment so much. Nothing can prepare you for the negative outcome after coming so far in your journey and for so long but knowing you have another chance in the freezer is huge. It only takes one and this one could well be it 🤞 hope you have planned in some nice things for you and hubby over the next week or so to just chill and be kind to yourselves x

Amy194 · 14/05/2024 20:33

Hello everyone!

Firstly I want to say thankyou to all of you for sharing your stories❤️ I have been reading through them all and it has helped me immensely!
In this journey you feel you don't have anyone and nowhere to turn to for advice or knowledge of the dreaded azoospermia!
Not to mention just understanding what shit we're are dealing with day to day!
So here's my story, sorry it won't be short I want to share as listening to all of your stories has really helped me to navigate and feel less alone ..
Me and my partner were ttc for around 3 years (I know it sounds ridiculous but I'm so laid back and wasn't to worried) I went for blood tests in August 2022 firstly which all came back ok. I finally talked my OH to go and get checked out and he first went to the doctors in October 2022. He got sent for a sperm sample at the hospital and got sent to the wrong department and they explained the sperm had all died by the time it was checked..2nd sample done 0 sperm and a third one because the first one didn't count which also came back 0 sperm.
How much of a pain is it to even get a sample pot and approval for sperm sample?😱literally had to ask the doctors,collect pot then had to make a separate appointment for drop off at the hospital, each one had to be a month after and waiting for results in between so 5-6 weeks between each!!
We were told in May 2023 that OH had azoospermia and had to wait another 3 months to see a consultant which was a obstetrician and gynaecologist(we've not even seen a urologist thoughout this whole process!). He explained the reasons which could be causing the azoospermia and OH was sent for blood tests for genetics/cf/klinefelter/ testosterone all of which came back normal suggesting it was a blockage.

We had so much miscommunication with the gp I was having to chase things all the time after waiting weeks upon weeks without updates on paperwork for nhs funding etc. Make sure you are persistent and keep chasing things otherwise it seems to take even longer! Nothing seems to get passed on which was driving me to dispare at times!

We were then asked if we wanted to go to Care fertility or Nurture around September/October 2023 so we chose Care. I had an internal scan over the Christmas period and a consultation with another consultant about next steps for SSR which we persumed would be performed at Care we were clueless that they didn't even perform the procedure there at the time. We were then transferred to Leicester fertility centre for the SSR which was scheduled for 15th April 2024.

We feel so lucky that the Tesa worked and we have got 3 vials in the freezer now. It was the happiest I've felt since this journey began and although we still have a mountain to climb it was a very much needed Happy day!! We are booked in on the 23rd May to talk about what's next and for me to learn how to inject myself.I had lots of bloods taken last week and it's come back saying I haven't got immunity to Rubella although I've had my vaccines AND last August I had a blood test taken and it was fine?! So that's going to hold things back now as I've got to have a booster jab and wait 4-6 weeks to see if my body makes antibodies which they said I might not and I would just have to be extra cautious during pregnancy!

I totally understand the whirlwind of emotions everyone has described, the strain on your relationship is so hard and OH doesn't talk much about it. He wasn't bothered about having sex because he said it doesn't work anyway, his self esteem has been hit hard although he won't say it has.

One of the hardest things for me personally has been pregnancy announcements I've sobbed my heart out when people have told me (not infront of them but at home) my best friend came off the pill and was pregnant within the month it's just so hard. I'm happy for them but it's killing me on the inside 💔 I constantly worry that someone who doesn't know what's going on with us is going to ask when we are having kids as when you get to 33 and 38 and have been together for 11 years it gets harder to make up excuses so I feel like I'm shut down and not myself in social situations anymore as I'm constantly on guard for the dreaded questions!

Anyway thanks for listening lovely ladies and I feel better for letting it all out to the only people who really get it! ❤️ my heart goes out to all of you!

Appl3Pips · 14/05/2024 20:36

Oh @lemons44 so sorry to hear it didn’t work 😞 pleased you have another chance and we are all rooting for you! Sending love.

We had our first consultation with J Rams last week, felt so good to actually see an expert in the area and he was very nice and reassuring. He thinks my husband’s poor count was down to his undescended testicle and then having Covid tipped it to nothing. He is trying him on anastrozole for 8 weeks and we will see if it has brought any sperm into the ejaculate- if not we will go ahead with mTESE (we have an initial nhs appointment in August in UCL, if waiting time for surgery is long after this we will go private). He gave us a 75% chance of success… not sure if this is good or bad. I’m not fully convinced on the covid theory or that the meds will help but worth a try and just trying to trust the best man in the field!

Appl3Pips · 14/05/2024 20:44

Welcome @Amy194! thanks for sharing your story. So pleased the SSR worked for you, that’s the first hurdle down. Am so with you on the announcements 😔 such a stab in the heart hearing it and I get so frustrated that people don’t understand how hard it can be for some. Xx

sackofpotatoes123 · 14/05/2024 21:38

@2022ttc thank you for the message. How are you doing? Hope you are feeling a little better and your husband is doing well?
We aren't doing great to be honest so I took a little while off mumsnet. I'm finding my husband's low mood really hard. I'm not sure if it's the enormity of it all, the medication itself which has been upped again or both but he is in a dark place although won't admit it. We aren't seen Mr Ramsey again for another couple of months and it's an odd waiting game.

@Appl3Pips - undescended testicles and covid is what he told us too, our 8 weeks passed and now we are on another 3 months of the medication. You should take some reassurance from the 75% though. He initially told us 40% and then at the last appointment said maybe slightly higher but not as high as 50%

@lemons44 I'm really sorry to hear this. I've read a lot of your posts in our early days of a diagnosis and I'm praying for success for you with the frozen embryo xx

sackofpotatoes123 · 14/05/2024 21:47

@Amy194 sorry to hear your story but pleased the SSR worked for you xx

I can really relate about pregnancy announcements. I've been tipped off that a girl at work is going to announce her pregnancy in a meeting next week and I'm happy for her but I'm driving myself crazy worrying how to look unphased in front of everyone. I feel daft just saying that. I think if I didn't know beforehand I could manage it but I've built it up now. It's really hard xx
Sending you love and wishing for success in your next steps xx

StarJasmine93 · 15/05/2024 08:07

@lemons44 ahhh my heart breaks for you that your latest cycle didn't work. I've followed your posts from the early days too and I'm also really rooting for you. I have everything crossed for your next go with little frosty ❤️.

An update from me...
We finally had our appointment with Dr Ramsay and it was so refreshing talking to an expert in this area. We left feeling positive and the next step was to do a SA as our last one was last August and there were few immotile sperm there. So with lifestyle changes, we were all hopeful. However, the latest SA shown 0 sperm again. I think this one hit harder than the first one if I'm honest. Both of us took it hard.

My husband also had another scan to measure his variococle but Dr Ramsay doesn't think it's big enough to be impacting so we've decided not to progress with that.

Now my husband is on anastrozole and Dr Ramsay has given us a 30% chance of it resulting in sperm returning to the ejaculate.

Meanwhile, the NHS are unaware of our meetings with Dr Ramsay and also want an updated SA with the hope to freeze anything they find. We are trying to finesse the timings so the SA is about 4-6 weeks since my husband started taking anastrozole as Dr R reckons if it's going to work, it should start showing by then.

Also trying to get on the MTese waiting list as I think that's where we will end up.

We've had all of this sprinkled with some friends' pregnancy announcements and some really low moments. This journey is so hard. Sending everyone love xx

@Amy194 sorry you find yourself here but so pleased on the Tesa results!! Fingers crossed for your next steps. Keep us updated x

Magix86 · 21/05/2024 11:25

Hope everyone is doing OK. Thought I'd reach out as feeling completely overwhelmed by this whole process atm and not sure how much more of it I can go through. I mentioned in my previous message that a polyp was seen on my scan in June last year. No one at the clinic told me and I found out 2 weeks ago when I attended for a follow up scan. I went back today for another scan as they wanted my lining to be thinner. The lady said she's "never seen this before" and looked so confused....eventually telling me that I either have some small polyps or some folds of skin in the place that any baby would implant. I have no idea what this means or how much of a problem it is. We just have to wait for the consultant to follow up.
On top of this, we waited 7 months for genetic counselling after my OH had confirmed y chromosome deletion. The outcome of that was that we needed further genetic tests for a condition in my family. We went for the bloods last week and they were rejected as the samples weren't labelled correctly. So we've repeated them again today.
It just feels like one thing after the other and constant delays, and I'm starting to feel like we'll never even start treatment 😕
I'm not even sure what I'm looking for by posting here but I know how supportive this thread is and I guess just needed a bit of an outlet. If anyone has any advice for staying sane through this process I'd be grateful!

2022ttc · 21/05/2024 13:01

@Magix86 so sorry to read all that, sounds like things have been really stressful. I hope things become easier for you. I know what you mean about not knowing what you're looking for by posting, but I have always felt it to be a good outlet to let out your hurt / frustrations / feelings when you don't know what else to do.

@sackofpotatoes123 sorry to hear things haven't been great, I took a break as well for a bit. Hope things improve for your husband, its such a tough situation and if he's anything like my husband, it took him a while to really open up and talk about things. I feel like we are in a state of limbo with no idea what's next, but its just an anxious and uneasy place to be in..

Magix86 · 21/05/2024 15:02

@2022ttc thank you for your reply. It's been a hard time and I think it's just all built up! Hopefully acupuncture tonight will help me feel a little calmer.
I'm certainly with a lot of you all on the pregnancy announcements...had another yesterday at work and was a little hard hearing how she'd only just started trying and how easy they'd found it.

Disco24 · 23/05/2024 08:28

Oh @Magix86 that does sound like a lot! I hadn’t even considered the journey after the first fertility appointment as it feels so long just to get to this point. I think not knowing what’s coming next doesn’t allow you to prepare either so you can’t even prepare.

@sackofpotatoes123@2022ttc im glad you’re both listening to yourselves and what’s right. Taking a break when needed is really important. This is a long, tiresome, unknown road 💖

Update from us, I’ve managed to get a cancellation at UCLH, so our first fertility appointment is now in June not October! The first step after my husbands Y Chromosome deletion diagnosis in January. Not going to kid myself that this is us done, but will be nice to get a plan.

Sending love to you all! Keep those positive updates coming too 💖