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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

How did you know you had pcos?

3 replies

snapcracklepop10 · 19/07/2023 18:33

So we've been trying for 3.5 years, never had a hint of a line on a test, never been pregnant, nothing.
When I've had my fertility tests done, the only thing picked up was potentially low progesterone but the clinic were never worried about this.
The hycosy I had was fine, said I was ovulating and I've always had positive opks. Partners sperm has had the all clear.

The only thing I can think of is could I have undiagnosed PCOS? My mum has it. But I have mostly regular periods, nothing too crazy in the way of cramps. I really want to fall naturally pregnant. Does anyone have any experience with diagnosis like symptoms etc? I'm at my wits end with all this! It's heart breaking. I just want to know why!!! X

OP posts:
Omgdnswv · 19/07/2023 22:58

If you've had bloods and hycosy it's unlikely you have undiagnosed PCOS. You'd need a combination of symptoms, usually Polycystic appearance of ovaries (which would be seen during the hycosy) and hormonal imbalances, which are the reason for irregular periods and anovulatuon. If your period and ovulation are regular, your blood tests didn't give them any indication of PCOS, and your ovaries look normal, I doubt you have PCOS.

There are other things it could be, I have PCOS and thought it was the reason for our infertility (tubes clear, sperm okay) but I was put on letrozole and have had perfect textbook cycles with ovulation for the last 10 months. Still never even had an evap or a chemical.
There are a couple of things I can think of that might still be possible causes (so might be worth for you to look into too):

-How's your uterine lining? Can you get an ultrasound to check?
-I read in "what to expect when you're expecting" that when doing fertility checks, doctors also test how the sperm and the cervical mucous interact by taking a spern sample from the woman after intercourse. Sounds horrible and I've never come across it on any forum so I think the book is a bit optimistic about what sort of checks you can get in the current NHS, but might be worth asking.
-I'm worried we might have damaged genetics. I don't know too much about it but every now and then an egg will not be viable. Loads of sperm are not viable. In IVF that seems to get tested for if you fail multiple cycles or if you have repeat miscarriages, not sure if it could also show by just never getting pregnant.
-bad luck. I think every cycle you get a 30% chance it works even if you have sex at the right time. Maybe we have bad luck with probability.
-unexplained. Plenty of people get diagnosed as unexplained. Maybe something the doctors missed, maybe something science doesn't know about yet. It sucks. Usually still manages to be overcome with IVF. I never wanted to go down that route because the idea of IVF terrified me, now I'm desperate to go to my home country because there I can have multiple IVF cycles whereas in the UK I'm only allowed one and I'd have to wait another whole year without any other treatments they can try. Eventually you just get desperate enough and won't care if it happens naturally or if you needed medical help.

snapcracklepop10 · 20/07/2023 10:02

@Omgdnswv thank you for your message. Very kind of you.

I agree with you, pcos is unlikely having read what you've said. Unexplained infertility is so difficult to deal with because you just want to fix it but you don't know how and there's no answers. I just feel like everyone else's body works and I look at pregnant women and wonder how on earth they did it.

IVF may have to be an option for us, but until our time comes I will keep trying everything I can to try and get our baby. I hope your journey is successful and you get your little one too. ❤️

OP posts:
Omgdnswv · 20/07/2023 10:08

When did you start your investigations? If you've been trying for over 3 years than I think you qualify for IVF. Might be worth checking your local requirements.
I don't know how old you are, but I would at least check early because in my area the NHS thinks that 35 is already too old and you can't get IVF funding at that age.

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