Costs of private Laparascopy. ?endometriosis.

[MachinesOfGod]

(have crossposted in here and in Women’s health).

Hi,

Just wondering if anyone has sought a private laparoscopy or even had a quote that you didn’t proceed with, to check for Endometriosis?

Could do with an idea of what sort of price point I’m looking at, consultation with a private Gynaecologist isn’t until August.

I’ve got very low AMH for my age - 0.6, and I’m 36 (and single)- Antral Follicle Count is 3. I was about to proceed with three cycles of Natural Modified IVF with donor sperm to make embryos, and then my pre-treatment scan revealed a huge surprise - that in the space of a month my right ovary was measuring 5x it’s previous size, with four haemorrhagic cysts, free fluid in the adnexa and inflammation of the tube and broad ligament.

I’ve been referred to for an NHS scan by my GP which takes places on Thursday, to see if/how things have progressed since that last scan. But I know that if I do need a laparoscopy then I’m just going to be sat in the generic “possible endometriosis” queue waiting for that procedure, with absolutely no mind paid to my very urgent fertility situation. I recognise now that endometriosis may well be what has damaged my ovaries and diminished my ovarian reserve in the first place.

I have about £20k for IVF/donor sperm, and that’s the limit of what I’m prepared to throw at any of it. As far as I can find out so far, a private laparoscopy is going to take up a significant chunk of that, perhaps a third of it?

Any ideas?

Thank you.

I was told that Laparoscopy would be in region of 6-8k but I never went through with getting official quote.
I am getting hysteroscopy to remove fibroid. The doctor said no sign of endo on scan and I have no typical symptoms but doctor said worth considering a laparoscopy to check things just in case. I decided against it as rather not have surgery based on something I may not even have.
I have been told I can be put on waitlist with nhs for laparoscopy which has a wait of about a year if I want to..

How you getting on OP? I am in a very similar situation to you 37 - trying for 1st and have found out I have low AMH and AFC and suspected endo. Its completely crushing. I am starting ivf now but having had two natural miscarriages already in the last year I fear my egg quality has been compromised by the endo that I wasn't aware I had. Let me know how you get on xxx

I’m not really any further forwards tbh.

I had my NHS ultrasound and the sonography couldn’t have given less shits, he was so dismissive. His report doesn’t mention half of the problems pointed out by the private sonographer and he has actively advised against further investigation in his notes. He didn’t mention any of the inflammation of the tube or broad ligament, he only noted one cyst, but the other sonographer had to scan around for ages to find them all, etc.

So I’ve got an appt with my fertility consultant on Thursday to go over both scan reports, and see what he recommends. He runs a list at my local private hospital in Nottm, as well as through my clinic in Leeds, which is handy because I can see him to have these conversations with less of a formulaic/rushed IVF focus.

I think I’m going to ask if he can rescan me in two weeks time, which will be six weeks from the original private USS, and see what everything looks like. I’m going to pay for a HyCoSy to check if my tubes are patent so I know whether there’s any chance of a natural pregnancy, and I will ask for costs for private laparoscopy (if he thinks that’s needed), but may still push to get that done on the NHS.

I think I’ve reached the point now where I don’t want to pursue IVF, it’s so, so expensive, and so stressful, and my chances are so poor with my AFC at 3, and possibly one ovary out of action due to the cysts at any given time. All of this without even taking into account that I am not totally sold on the idea of Solo Parenting anyway.

I’ve known about my AMH since January and feel like I’ve been mentally battling all of this for too long now, it’s taking such a toll, and I’ve started the process of drawing my lines in the sand about how far I’m prepared to go and when I accept that it’s just not going to happen for me.

I can update after my appt on Thursday if you like?

I know it’s very little comfort when you’ve had two losses, but that does mean that you can get pregnant and at least one of your tubes is open and working.

I don’t think Endo would have damaged the quality of the individual eggs, but it may well have scarred your ovarian tissue causing the low AMH. What was your result?

Hi @MachinesOfGod I am sorry to hear you are not much further forward but it really does sound like you are doing all the right things and you should absolutely keep pushing forward with understanding all the options with both fertility consultant and NHS.

It is all such a shock when seemingly everyone else around me at our age is popping out babies left right and centre. It has literally been such an horrific year and i've not even started IVF yet.

I completely understand your rationale ivf is super stressful and a money pit - we are going to have to throw all our savings at this as we really want to look back and say we did everything we could but it is really hard to take and I am so scared where this is going to lead too. I also completely understand your viewpoint. I know this may be a long thought or way off and something that of course may not be applicable to you but have you / would you consider embryo donor. I am seriously considering egg donor if the ivf doesnt work out as i am at the stage i would rather maximise my chances of being a mum even if the traditional route isn't something that can happen. I am still early days of all this but it is something I am actively thinking about.

Thanks i know having losses has made this hard I am also not ovulating now for the last few months, not sure if declining fertility or stress or everything but I know i need medical intervention to stand a chance. Apparently endo lowers your egg reserve and egg quality depending on the severity. I will know more after first egg collection.

Hope all goes well on thursday - definitely let me know how you get on and hoping you get positive news. xx

@MachinesOfGod forgot to say my AMH is 6 and AFC 9. It was 16 in Oct 22 when i first tested after first miscarriage but dropping off a cliff which is super scary!