ERA / EMMA / ALICE testing thread 5(!)

[VenusStarr]

Just setting up a new thread as we're coming to the end of thread 4.

@Janefx40 @birdbybird @seven201 @Gardenlady543 @patientpatient @MyEasterEggs @thislittlebird @Yuliaaa @Violette22

❤️

@thislittlebird yes it's my liver function.

@MyEasterEggs good luck for Friday xxx

I caved this morning after waking up from the strangest dream about my clinic. I was telling myself I shouldn’t test but couldn’t resist the urge. Anyway. So far, so good. Two lines came up straight away and I’m so relieved the process has gone well so far. Now to see if the treatment itself works. Trying to remain grounded as this, for me, has always been the terrifying part. All I can see ahead of me at the moment is the need to get past 16 weeks since my first loss, and the latest of our six losses, was around that time. But today I am pregnant and feeling hopeful 🙂

Aww that’s lovely news @MyEasterEggs ! Congratulations.

I’m sorry for the worrying test @Janefx40

One day at a time @MyEasterEggs. Enjoy today.

That's great @MyEasterEggs and really early to have strong lines. Have everything crossed for you x

@MyEasterEggs omfg that's amazing! Eeek!

@Janefx40 will they keep an eye on your liver function more now then?

I just received this from CRP

"That’s sounds fine, and then you would just adjust your letrozole to CD 3-7.

I just looked at Mr Jan's letter to you and he advised to try after your next period, I know you do not want to wait for another cycle to pass without trying but it may be worth considering, just to allow everything to settle down especially given the uncertainty as to whether your cycle is starting or not. Let me know what you decide, I know time is precious and can totally appreciate why you wouldn’t wish to wait."

I didn't know the dr wanted me to wait another cycle. What should I do? I probably should wait (AGAIN) shouldn't I. Aghhhh

@seven201 oh dear!!! Ugh. The delays are torture. I hate to say it, and I know how awful it is waiting, but it might make sense to wait and see what your body is doing.

But I know nothing about letrozole and whether it's something you can take a chance with. In my case we're always talking about transferring hard-won embryos so I have erred on the side of caution because I can't make more. Your situation is different so maybe there is nothing to lose (other than money and time!) by trying?

Sorry that's not much help xxx

Thank you for the well wishes. It all feels a bit surreal. But I’ve had some really encouraging chats with GP surgery and local PAU so feel well taken care of. With the clinic being so far away I suddenly felt a bit lost this morning!

I am of no use on the letrozole side of things @seven201 but I really did benefit from breaks between testing and treatment this year. It was so hard to make the call because I’ve often worried about time in the past but I don’t regret having those breathers and giving my body some extra time to recover x

Hope the liver function side of things improves @Janefx40 I’m glad you’re being so closely monitored x

@seven201 I would probably have a cycle off, my surgeon said no trying to conceive, no biopsies, no saline scan until after the third bleed and no vaginal medication for 4-6 weeks. Because he wanted the areas to heal. Mine was super invasive though.

I'm struggling this week, got burning pain around the uterus area and at the scar site, I think it's from sitting in the office chair all day.

Congrats @MyEasterEggs

@Gardenlady543 @seven201 have either of you considered maya abdominal massage? I think it’s been mentioned on the thread before but I’ve been going to a friend for about two years now and think it may have helped with some scarring. I rate it for relaxation and hormone balancing to be honest. But the Arvigo therapists often have scar training too. Just a thought if it’s not too soon to have some kind of treatment x

Thank you all. Had a bit of good news. A nurse checked with the dr who did my hysteroscopy/adhesion removal and he said it's fine for me to try this month. Someone got confused somewhere! So I have started the letrazole after all. If they'd said not to, then I'd have waited.

@MyEasterEggs I'm glad you've been given some reassurance from local medical services. Bet you don't know how to feel! Enjoy the moment.

I don't think abdominal massage is for me. I am incredibly ticklish, and cannot stand anyone touching my stomach (it's flabby!) - my husband has never been allowed to.

@Gardenlady543 oh, sorry you've been having pain. Can you try and build in more moving around a bit breaks, or even standing up when typing emails whatever.

@seven201 that is great news. Now it is recommended by the consultant you can go ahead without worrying.

@Gardenlady543 that doesn't sound great. It's ringing bells of post section for me so I think it's normal but still annoying for you to deal with.

@MyEasterEggs glad you have good care xxx

@MyEasterEggs congratulations!

I’m jumping back in here, my BFP lasted a few days before failing. The EPU are sending me for second bloods tomorrow to confirm but there was nothing on the scan. I have an appointment with the Lister on 13th October that I had already arranged, hopefully our private attempt will be more successful than the nhs ones. Not that I feel like doing it right now, but time is not my friend. I suppose the positives are at the very least I achieved implantation this time.

I forgot to add: A question for those of you who have had a positive and then it’s failed early, how long do they usually make you wait before you can do an EC again?

@thislittlebird I'm so sorry. 💐 Do you mean that your tests have turned negative? It's very early to have a scan.

In terms of starting again, you usually have to wait 2 cycles. So you bleed after this cycle, have a whole cycle and bleed, have another cycle and then start on the next bleed. If your cycles were exactly a month you would start in 2 months time. But it does depend on the clinic.

Let us know what they say about your bloods. Sending love x

Oh no @thislittlebird I'm so sad to hear this :( have they been doing blood levels?

Thanks @Janefx40 glad to hear what I'm experiencing isn't out of true ordinary, I'm absolutely exhausted at the moment. I'm doing full time work this week and it has completely taken it out of me.

@Janefx40 @Gardenlady543 I stopped testing a good few days ago. I started bleeding on Monday and my symptoms stopped. Went to urgent care Monday and my test was light, they referred me to EPU, saw EPU Wednesday and there was nothing on the scan and they called today to say my progesterone was 30 and my HCG 84. She said they should be able to see a sac with an IVF pregnancy at 5 + 1 because there's less room for doubt about dates. Going back for repeat bloods tomorrow but I'm not expecting it to go up, pretty sure the HCG is going down since a week or more ago I had recurring mild nausea and twinges and that all vanished on Monday when the bleed started, that night I had cramps very low down in my pelvis for hours, felt rough and just went to bed and slept for a long time. They think the Cyclogest is holding it off properly, but it is becoming more period like.

It's very shit, but I got a bit further than before just by getting a positive test. I took low dose prednisolone and aspirin and did the antibiotics and probiotics before transfer. My nhs clinic haven't been helpful and have stressed me out a lot this week, don't want to go through it all again but hoping for a better experience at a new clinic.

Thanks @Janefx40. I'm trying to work out what the Lister will say. This cycle will likely start properly at the weekend, and if they go back to normal my next one will start late October/early November, so would my EC have to be the late November/early December cycle? Or am I getting that wrong? I'm thinking it'll be January, from what I remember they don't do much in December. I set out to avoid that all the way through, because I'm 40 in May, I really wanted to do another EC this year so that's a bit upsetting. I hit December last year too and had to start the end of January, it's a crap delay.

Is the pain from your procedure @Gardenlady543?

@thislittlebird I wish I could come and give you a hug. This stuff is just so hard.

I think if it was early December you could possibly get it in before Christmas? Most clinics have a cut off date for starting so you could ask - the Christmas thing drives me mad as my old clinic literally never shut. Still doing procedures on Christmas Day. But I have learnt not to let myself get too wound up about the stuff I can't change. You have to pick your battles

@Janefx40 thanks, I’m all over the place but had my appointment in place already in case this failed so we’ll go ahead with it to make sure we can get the access package in place. I’ve taken some time off work and I’m probably going to turn down a job offer. This has made me reassess my priorities a bit and I don’t want to lose the flexibility and understanding manager in the role I have, the peace of mind is valuable right now and I’m worried the new role will make me more stressed just as we start ivf again.

If I had a freeze all, I could possibly do an EC is early/mid December and a transfer in January. Maybe. If not maybe they’ll let me have the meds and start late December/early January. Can’t quite work it out in my head. Annoyingly I was in this position a year ago (just before nhs funding came through) and Lister had Christmas closure dates online and now they don’t, instead they have a new (bad) website with that HCA healthcare company. I don’t mind them closing but I just hope it’s not all of December.

@thislittlebird so they are going to do the blood test tomorrow to see if hcg is going up or down? I hope that things will be ok and this is just early, it's hard to know at this point, you must feel a lot of stress and uncertainty.

Yes pain is because of the op, I have to sit in a chair all day at work and that's putting a lot of pressure on the area. I've tried using a foot stall today.

@thislittlebird not the news I wanted to be reading. I’m so sorry. It truly sucks. Sending you so much love and strength and hope you get the best of care at Lister 💛

@Gardenlady543 go easy on yourself. You’ve had so much to contend with. I now realise my suggestion of abdominal massage was a bit premature given you’re in pain but I hope you can do some nice things so for yourself over the weekend.

@seven201 I felt the same but it’s helped me connect with my belly and womb again. Quite empowering really and you kind of stop worrying so much about it how it looks but how it feels? Hard to explain!

@Janefx40 good luck for tomorrow. Will be thinking of you ☺️

Thanks @MyEasterEggs how are you feeling?

@thislittlebird I'm so sorry to read your updates. It's just incredibly shitty.

@Janefx40 best wishes for tomorrow

Nervous @Janefx40 as I’ll likely test again tomorrow and Sunday to give myself peace of mind. I keep worrying that my
line will be faint and it will be over. So I really hope I can quit that after getting bloods done on Tuesday and Thursday next week. Once those are compared and shown to be rising I’ll be onto a scan then more intralipids at 6 weeks. Day by day eh 🙂