Just been told not suitable for IVF aged 41

[cherrypiepie]

I can't really reconcile all the emotions right now.

I've be told I don't qualify for funding and I can self fund but a low chance 5-10%

I'm bereft really. I'm 41. I don't want to go to work tomorrow. We've Been trying for 5 years since we met when I was 35. Three miscarriages which over 5 years is low conception rate. Fed up of trying.

Has anyone been through this? Hoping for a hand hold. We can keep trying but increased risk of miscarriage.

I'm so sorry @cherrypiepie ❤️ were you refused on age, or did they check your amh / afc?

Have you done any investigations into your losses? I have recurrent miscarriages, 4 from natural conceptions over 3 years, nhs testing found nothing but I went private and was diagnosed with overactive nk cells so on a full immune protocol but we couldn't conceive naturally after that, so we did a round of ivf in May but I had a chemical pregnancy.

If you can take some time off work, I would, give yourself a bit of time to process this and think about what your next steps might be xx

Hi @cherrypiepie I’m very sorry for your losses. I have had 4 losses In a row, 3 late first trimester.
I did ivf to find a pgs normal embryo and also did an untested ivf fresh transfer. I was given 5% success, amh was terrible hardly any follicles. Now in third trimester with fresh transfer.
Like Venus I also did immunes. I was told it’s not possible to have so many losses in a row and all be age related. I would suggest ivf with immune testing beforehand either with argc, Gorgy or Shehata . You could even try naturally but immune test first. I think immune issues are more common then people think

Thank you Venus Star it was Amh of 3.8 and needed to be over 5 for funding in my CCG.

Had the NHS investigation but not private. Will look into NK cells

@VenusStarr keep going and hopefully you’ll find the good embryo and the immunes will support it. Wishing you the very best of luck

The k you @Hulahoopla I will have a look a those clinics

NHS criteria can be hugely variable between CCGs/health boards/etc. - where I am in Scotland they don't even have a cut-off for AMH (although they are clear that success rates are lower with low AMH) but they use age as a deciding factor between funding 3 cycles or 1.

So, I wouldn't take your local CCG's policy as gospel. If you can, it may be worth checking out some private clinics or even clinics abroad - some people on here have had great success abroad.

Good luck!

Sorry if this is a dumb suggestion, but is it worth asking them to retest your AMH or doing it privately as I have seen people on here with a bit of variation (a number or two) in their AMH reading

I'm sorry you're going through this Op.

I'm not in your situation but if I were you I'd make a plan.

I'd try one go using my own eggs but would explore of going abroad to do this. I've no direct experience myself but posters on Donor Conception section have posted about better outcomes in other clinics abroad.

Then if not successful I'd consider/discuss using donor eggs (in the UK) as anonymity rules are different from those on the continent.

Fwiw, I am a single female and underwent IVF aged 39 so received no funding from the NHS (due to the eligibility criteria). I'd spent around 7/8k as this was my only chance of conceiving (without having to explore 'private'/more vulnerable routes).

Thank you @Hulahoopla I'm in my tww with an untested embryo - FET. I'm under Dr Shehata and do believe that now we know the reason and I'm on a treatment plan, it can work. It's just a long slog. Congratulations on your pregnancy ❤️

Interestingly @cherrypiepie I've read that amh can be lower with immune issues (mine is low age 38) and also if you're tested soon after a miscarriage it can lower your reading.

I'm with Create and did mild ivf which worked week for me, I ended up with 3 top quality blasts. As @Hulahoopla says the likelihood of recurrent losses being due to chromosomal abnormalities is around 2-3% (according to my specialist) xx

Good luck @VenusStarr I really hope this is the one 🤞🙏