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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Ectopic IVF

6 replies

TTC112 · 07/10/2021 18:00

Hi Ladies,

Looking for some advice and to see if anyone has been in the same boat as me. We had our first round of IVF at the end of August which we thought had been successful. I then had a very heavy bleed last week and we just thought the IVF had not been successful and I was miscarrying. However when we went back to the fertility clinic for our scan a few days later to have everything confirmed and the clinic found that the pregnancy was ectopic and I was then rushed straight to surgery to have the embryo removed from my Fallopian tube before it ruptured. During the surgery they couldn’t save my tube so it had to be removed alongside the embryo. This has been so upsetting for me and I just can’t it straight in my head how this could ever happen - I just feel like we have had the worst luck ever.

Looking for some advice to see if anyone has been through the same situation and how long you left it before you tried another round of IVF? I know it will have to be a few months as it’s going to take a few weeks for my body to recover, but I really hope this doesn’t happen again or if it will affect any future rounds of IVF Sad

I just feel so down, all we have ever wanted is something so simple as to wanting a family and I feel like we are so far away from getting there.

OP posts:
Gardenlady543 · 07/10/2021 18:13

I'm so sorry @TTC112 I haven't had the experience of an ectopic but I know other ladies on these boards have and I'm sure you'll get some helpful comments from those that have been though this. I just want to say how sorry I am, this sounds like such an awful experience, sending you hugs Thanks

Honeyloop · 07/10/2021 20:30

Hi I’m so so sorry to hear about the ectopic. It’s the last thing you would have been expecting and feels like such a kick in the teeth. We also had an ectopic after first round of IVF. Only for us we thought it was BFN as neg pregnancy tests at OTD and the hcg rose after what I thought was a withdrawal bleed from stopping progesterone (so was super fortunate it was picked up early as the situation was rather unusual!). As it was early was given choice of methotrexate or surgery but told it was similar time to have to wait to try again for both (minimum 3 months). So not exactly same scenario but to give you idea of timelines, ectopic found in Feb and started next cycle in July with time taken to rebook for follow up consultation/ coordination appt wait for right time in cycle etc etc. If it helps at all the next cycle was successful and I’ve subsequently had two IVF pregnancies with a positive outcome. Both times I had early scans and blood tests 48 hours apart for extra reassurance. I was so frustrated by the wait but ultimately in hindsight needed that time to recover both physically and mentally. Sending lots of hugs and wishing you lots of luck for the future. XX

Honeyloop · 07/10/2021 20:31

Sorry forgot to tag you @TTC112

TTC112 · 08/10/2021 07:22

Thank you so much for your advice and kind words. Yes I imagine. 3 months would make sense as it’s going to take so much time for my body to recover and to get back into some kind of rhythm again. Yes, when I got the withdrawal bleed we had accepted the miscarriage we didn’t imagine the situation I would be in a week later!

Thanks so much for your positive great news, it’s reassuring to know that it hopefully won’t happen again and hopefully they will keep a closer eye on me during the next round to ensure it doesn’t happen again. Xx

OP posts:
tiggerwhocamefortea · 08/10/2021 08:29

So sorry @TTC112

I had a naturally conceived ectopic and lost my left tube and 18 months later had a second ectopic and lost my right tube after my 2nd Ivf transfer

Take some time to heal mentally and physically- I've had several miscarriages as well but found getting my head around losing a baby and my fertility especially difficult and not something many people can understand/empathise with

It's better that the tube is gone as it mustn't have worked so as hard as it is you have a better chance of success at your next IVF transfer without it

(A year after losing my second tube I did a final IVF transfer and had twins)

LemonyT · 10/10/2021 20:26

Sorry to hear all these ectopic stories but lovely to hear some positive outcomes at the end!
My second transfer I knew something was up pretty much straight away- insisted on multiple blood tests which showed blood as going up incrementally , stopping, then going up again. Docs were a bit useless and basically said things were ok- but I insisted on early scan, and it turned out to be an ectopic!
Luckily I demanded an early scan at 6 weeks, so they caught it early enough for medicated treatment (despite my doctors still recommending surgery to remove my only good tube.) I felt bad at the time as I thought I was being a nuisance but looking back - my intuition was spot on!

I’m about to have my third transfer next week. I had to wait for 3 months for the drugs to leave my system which was torturous as I wanted to get back on it!

Unfortunately we are at higher risk after having had an ectopic of it happening again. I also have endo so that’s another factor. But it is still v rare and I think we were just unlucky. I am def going to be extremely vigilant this time!

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