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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Care Fertility Chester - just been referred

205 replies

ChristmasJumpers · 24/08/2021 11:50

Me and Dh have been referred to Care Fertility in Chester for IVF. I'm 30, DH 27 and we're diagnosed with unexplained infertility after completing all of our tests at RPH.

We don't have an appointment date yet but apparently should get an appointment within 6-8 weeks.

Has anyone else been referred for treatment recently or is at roughly the same stage of diagnosis/waiting to see a clinic? It would be really nice to start the journey with others who are in a similar situation.

I've been reading IVF boards but it is blowing my mind reading about down regs/stims/egg collection etc. while we're still waiting for our first appointment!

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HJen22 · 24/08/2021 13:51

Hi there 👋🏻 I'm not at the same clinic but hope you don't mind me replying. Myself and my OH have also just been referred for IVF due to low egg reserve for me 😔

Still struggling to come to terms with going through IVF. I knew it was a possibility but doesn't make it any easier. How are you?

We've been told 4-6month waiting list. I had AMH bloods done on the day of internal and HyCosy last week so waiting for them and a follow up with the Dr, as I found it hard to think of any questions at the time I was told. Are you now just waiting to hear back to?

Xx

ChristmasJumpers · 24/08/2021 14:08

@HJenn22 it's so tough isn't it. I'm not sure how I feel about us being unexplained. The doctor told us we could be referred for IVF but could also just "keep trying" as there are no identified issues (we've been trying for 2.5 years so definitely going for the IVF).

It's hard to come to terms with, I'm obsessed with looking at the process and we don't even have our first appointment! My DH is feeling it too and is worried about me with all of the upcoming injections and procedures.

We had all of our tests done at the local hospital before being referred so we're not waiting for any more tests or results - just an appointment at the IVF clinic. It does seem like most people have at least some of their tests at the IVF clinic so I don't know why we didn't!

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HJen22 · 24/08/2021 14:19

So tough 😞 yeah definitely worth keeping on trying, we will too even though I'm not sure what the chances are (I hope to ask at my follow up) as it does happen to people. But I'm not going to bother with OPKs or BBT or anything.

Same, I've been reading up too but everyone is different so it's hard to know what process and protocol it would be for us. I guess the Dr will be able to tell more.

I think everywhere seems to be different to be honest, the only tests I had done at my GP was day2 bloods. And my OH got a referral to call and do his SA which was at the the fertility clinic. But you've had them done so that's good. I only had my internal scan and HyCosy on Thursday after a 3 month wait.

I've downloaded a book called the injustice of infertility that I like so far and I've been listening to a podcast. I'm struggling not to cry a lot of the time or put into words how I'm feeling to my OH which is hard. I really feel for my OH too, he's being so sweet which makes me cry; and the thought of injections scares me a bit too. But we can do this 💪🏻

ChristmasJumpers · 24/08/2021 14:29

I keep asking my DH if he's sure he wants to do this. I feel it in my bones that I need to do whatever it takes but my worry is that he's just going through it for me. He reassures me every time but I still worry!

I hope your HyCosy went okay? I got myself in to such a state about that after reading horror stories but it was absolutely fine, no pain or discomfort whatsoever so I feel very lucky.

I've not heard of that book but I'll look it up now, anything that helps!

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HJen22 · 24/08/2021 14:33

Yeah I've been thinking the same, I've not really had much chance to talk to my OH since as we have his daughter with us staying so it's taking all my efforts just to hold it together and not cry! I now also have such guilt at being so miserable for the last year and a half when it's down to me 😔

Hmm it wasn't the best, I had been more worried and the results than the actual procedure but it was pretty uncomfortable. I don't get bad period cramps so I'm not used to that feeling! The Dr asked if I wanted to stop but I persevered. I was probably just being a bit of a drama queen! I'm glad yours went ok!

The podcast is called The IVF This podcast too which is good. I've been thinking about acupuncture as have seen others talking about it, have you ever had? I tried reflexology when TTC but didn't overly love it. Going to just try and get as physically and mentally healthy as I can the next few months xxx

ChristmasJumpers · 24/08/2021 15:02

Oh no, sorry to hear it was uncomfortable. I think mine was unusual as the doctor seemed as surprised as I was that I didn't feel anything.

I've just found IVF This on Spotify so will give that a listen!

We've really taken a minimal approach to TTC, no ovulation sticks, no temping or anything but a few people have mentioned acupuncture so I'm going to look it up. It scares me as it's needles even though I know you're not supposed to feel them! Haha

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HJen22 · 24/08/2021 15:36

Yeah the Dr afterwards said something about not recommending it or something I guess unless really needed. I had the option to just get an internal first but I didn't want to then need a HyCosy and wait on another list so opted for both same day.

That's good you have, I hope it's been less stressful. I started off like that but the more I read about people doing tracking the more I thought I should be. I think I can ovulate they just may not be very good eggs. Cos i always got high OPKs and raising temp; I need to ask the Dr again about that too.

I think they are teeny tiny needles and you'll not feel it. I know what you mean though, I'm very squeamish and come over faint at the slightest of things! Do you do yoga or meditation or anything? I do both on and off xx

ChristmasJumpers · 24/08/2021 15:58

I don't do yoga or meditation but I am joining a gym this month! I'm living a pretty sedentary lifestyle with working from home haha I want to make some positive changes so I know that I've given the IVF my very best shot!

How many cycles are you eligible for? In my area we only get one NHS cycle and then that's only if neither partner already has a child, it's very strict!

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HJen22 · 24/08/2021 17:10

I've just joined back to the gym too! Really hoping to get properly back into it as I know it will help me mentally as well as physically.

I think it's 3 NHS cycles where I am in NE Scotland but I'm not 100% sure. I know; I'm lucky I'm not somewhere that doesn't allow if one of you have a child. Doesn't seem fair I'd not be eligible somewhere because I have a step daughter!? Some places are so very strict aren't they!

ChristmasJumpers · 24/08/2021 19:52

They really are strict! I had to have BMI under 30, neither of us can smoke, and neither of us can have children already and even then it's one cycle only. It adds so much more pressure for the first cycle to be successful!

I've done it, signed up to the gym and booked onto classes for the next week, wish me luck!!! I also listened to the first of the IVF This podcasts :) Hoping it helps me to keep my head straight

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HJen22 · 25/08/2021 12:27

I know, a lot of criteria to meet isn't there! I really hope in the meantime it waiting it happens naturally for you 💞

Fab well done you! It really makes me feel better and takes my mind off things, because I'm too busy sweating and trying not to pass out 😂 it's a Pure gym I go to that has some good classes I've started back at.

I like the podcast, I listen whilst walking the dog! I've also today organised an appointment for counselling through the clinic so I have that in September. The nurse on the phone said it's really worth while and she was so sweet it almost had my crying. Has your clinic said anything about them offering it? Xx

CurbsideProphet · 26/08/2021 11:32

@ChristmasJumpers we are from the same area. We had our 1 NHS round at Chester earlier in the year and have stayed there now we're self funded. After referral we had a Skype appointment with Mr Haddad and he put together a treatment plan.

I will warn you that CCGs in Lancashire will only pay for a certain number of IVF cycles per month. You will be told to phone on the first day of your period, but you might find that you have to wait another cycle. I'm only telling you this because no one told me and I was absolutely gutted that I was put back a month. I hope it helps, I just wouldn't want you to have that shock.

Mr Wood does a lot of the egg retrieval and embryo transfer procedures. He is really very nice. I've also had a woman called Dr Sephton (I think she's the medical director) and I really liked her. I think we're going to try and have our review with her.

I've had 2 different anaesthetists who were also very nice, especially the woman. The embryologists all seem to be female and are all absolutely lovely when they call with updates and on embryo transfer day.

You can have 3 free counselling sessions per cycle. We had ours via Skype with a really nice woman. I think we might pay to have one with her again soon.

I will say that it can be a little bit hit and miss with the nurses. A few are absolutely lovely. One is a bit brusque. You ring the nurse helpline and leave a message, then someone calls back. I don't find this ideal, but I appreciate that they can't have someone sat by the phone all day.

It has been hard doing the injections etc. DH worries very much about the physical impact of it all on me. We find it easy to talk to each other about how we feel, so that really does help. I've cried a lot throughout the whole thing, but that's just how I am.

When you go in for egg retrieval DH is not allowed to wait on the ward. The rest of the hospital is open so for my 2 egg retrievals my DH has used the loo and vending machines in the main hospital and sat in his car. You can now have someone with you for embryo transfer which was such a relief.

Unfortunately I recently had a bfp then miscarriage (no heartbeat at the early scan). I've been looked after by RPH and am waiting a few months before we hopefully go back to Chester for FET.

I hope that's a bit helpful. I didn't know anyone who had been to Chester. Clinics are so different. I have a friend who has been to Care Fertility in Manchester which has different ways of doing everything to Chester.

Best of luck to you 💐

ChristmasJumpers · 26/08/2021 12:15

@CurbsideProphet thank you so much for giving such a detailed response, I'm feeling really apprehensive at all of the things I won't know until we get started so it helps to hear about the staff and some of the processes Smile

I'm so sorry to hear about your miscarriage Flowers. Good news that you have a frostie rather than having to start from scratch all over again.

I saw a previous post of yours where you were told about the limited cycles each month. Is that standard or a consequence of Covid do you know?

How long did it take for you to have your skype call? And was it one skype call - plan made - start treatment, or did you have some more appointments in between?

Sorry for all the questions!! I don't know anyone else who is having or has had IVF before, never mind at the same place as me!

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ChristmasJumpers · 26/08/2021 12:35

@HJen22 They haven't mentioned counselling yet but I haven't had any contact from the clinic yet since my local hospital made the referral. I know they offer counselling though thanks to the lovely @CurbsideProphet so I'll definitely make use of it when we get started :)

I hope it happens for you while you're waiting too Flowers Flowers

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CurbsideProphet · 26/08/2021 13:24

@ChristmasJumpers I don't mind you asking questions at all. It's so hard when you don't know anyone who has been through it. I have 1 friend who has been to a different clinic recently and 1 who had IVF 10 years ago. Everyone else either doesn't want children, or had them easily.

I have found family and friends not very helpful, as they just spout the usual "if you stay positive IVF will definitely work" 😬 I'm quite private too, so I don't want to share everything with my family and my mum in particular has been nagging for details.

We had a phone call from the office / booking team to arrange the Skype appointment. DH thinks they also sent an email of instructions in using the Skype service. We think we received this call 4 ish weeks after the referral. The Skype appointment was approx 4 weeks later. We had Christmas in the middle of this and they do close from approx 18th December to early January, so you might find you wait less time.

Mr Haddad seems to do all of these appointments and not the procedures (we think possibly because of his age, as DH works for the NHS and believes doctors are not allowed to do procedures after a certain age), so the wait time shouldn't be extreme.

Around this time we also did legally required paperwork for the HFEA. This is all done electronically through the Care Fertility portal. They will get you logged into this. You will also need to complete "educational modules" through the portal. I found this really stressful and in hindsight we should have clicked through it all as quickly as possible. I found myself agonising over the information and what it all meant. I know that you need all of the info, but I found it too overwhelming to do so many online modules in such a short amount of time.

Mr Haddad created the treatment plan and passed it to the nurses. Once I had called to say my period had started (for the second time) the nurse arranged a phone call with us to go through the plan and dates.

You will have to go for blood tests to check for HIV and various types of hepatitis. It's legally required before starting IVF. We had to drive to their other building in Chester to collect the blood forms and then drive to the hospital to have the bloods done. A long drive just for bloods 😬

All of the CCGs across Lancashire follow the same policy for IVF. It's our understanding that the funding per month is not related to Covid. The nurses were completely clueless about this and I was really upset that they couldn't say why I needed to wait another month before starting. We only found this out afterwards.

The Covid restrictions have been changing over the year. At first I had to go for a covid test and isolate before procedures, but later on I only needed a covid test and to be "sensible". They can only arrange for you to go to Chester for a covid test, so I would book one locally and upload a screenshot of the results to my patient portal.

We decide to stay with Chester now we're self funded as although some things seem disorganised my GP was of the opinion that there is nothing to be gained by changing to a different clinic, especially not at this stage. DH and I felt the same. They often describe the first round as a starting point to learn what does or does not work. The doctors definitely listen to you at Chester and the team is quite small that you won't just see a different person each time. DH checked success rates across the NW and Chester are up there in the ratings. It's no guarantee, but it's some comfort.

Hope all of that makes sense. There were no recent threads for Care Fertility Chester when I looked in January so hopefully this will also help others!

CurbsideProphet · 26/08/2021 13:34

I will also add that they arrange for the drugs to be delivered to your home address by the pharmacy company, so you don't need to collect them.

If you end up going self funded (hopefully not) there were no wait times and you could start whenever you wanted. The limits were purely down to how many your CCG will pay for each month. In Lancashire they are very stingy. Mr Wood said originally we would have had 3 cycles, then it dropped to 2. And of course now to 1. He thought the CCG should have kept it at 2 cycles, as statistically that would have been fairer. Also when you consider the amount of money they save it is nothing when you think of what is likely being spent on GP appointments and MH referrals to cope with the stress of that 1 IVF cycle failing and needing to move onto self funding.

ChristmasJumpers · 26/08/2021 16:23

@CurbsideProphet thank you so much, honestly it really helps. I've taken notes of all of the timescales and things you had to do! Haha

We're 1.5 weeks in since our referral so hopefully should only be 2-3 weeks before we get our phone call now Smile

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Mrsallenxo · 26/08/2021 16:43

Hi, i am not under care chester im under nurture, we were told on monday our ivf funding was approved. Finally! We were told the ccg would send our details to our chosen clinic and told it would take around 3 weeks to hear from them! On Tuesday they had already contacted us and asked to fill in alot of forms, health questionnaires ect and told it would be within 12 for an appointment but today Thursday we have been booked in for a scan and blood test on Tuesday 31st and our first consultation on 17th September! Its all moving alot quicker than we expected. Hopefully you will be seen alot sooner than the time frame they have given you. Best of luck Smile

Mrsallenxo · 26/08/2021 16:52

Too add i had alot of my investigations at chester, all my scans, hycosy, bloods & different medication such as metformin, letrozol & clomid and i had such a bad experience i had contact pals in regards to mr haddad to make a formal complaint. I hope your journey with him is alot easier than mine. Because of him its taken me 2 years in November to get my ivf finally sorted. Not to scare you at all but i wanted to share my experience

CurbsideProphet · 26/08/2021 17:10

That's awful @Mrsallenxo 💐
Luckily once you are with Care Fertility Chester, as opposed to gynae services at Countess of Chester, you are on the path to start IVF.

ChristmasJumpers · 26/08/2021 17:37

@Mrsallenxo sorry to hear you had such a bad experience but thank you for letting me know.
I'm hoping it will be different for us as we've all of our investigative work done already so it's straight to IVF for us once the clinic get in touch.
That's amazing how quickly it's going for you now though!!

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Mrsallenxo · 26/08/2021 18:30

In all honesty im a firm believer everything happens for a reason im just grateful its finally happening now, i wish you all the best of luck, its all super daunting isnt it. I think ill be in a better head space once ive had the first consultation and i can ask the questions ive got. Thank you for starting this thread. I think its so important being able to speak about it as i don't know about you but my family as amazing as they are dont really understand. They seem to think ivf is a guarantee and as much as i try explain it isnt. It dosnt seem to sink in! Best of luck and i pray your journey moves equally as quickly as mine has x

ChristmasJumpers · 26/08/2021 18:50

@mrsallenxo I know what you mean about family. Mine are a mixed bag but DHs mum keeps asking "are you sure about the IVF?" And telling us that we have plenty of time to think about it. My mum is very "if it's meant to be, it'll happen" and telling us stories of people who have naturally conceived before or after IVF treatment. Lots of you can relax now so might get pregnant anyway! ...🙄

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CurbsideProphet · 26/08/2021 19:00

@ChristmasJumpers my mum immediately cried and said she was so worried and and what was I going to do about all of the injections. Not overly helpful 🙄

ChristmasJumpers · 31/08/2021 19:47

An update on our progress:
I got a call from the clinic on Monday - exactly two weeks after our referral! The call was just to confirm our contact details and tell me about the portal they'll use to communicate with us from now on. I got an invitation to the portal straight after the call and our first appointment date is on there 😊

We're booked in for a Skype call with Dr Haddad on 12th October which will be 8 weeks from initial referral! We really can't complain

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