Give me hope

[Georgina125]

I lost my first son due to prematurity three years ago. He was conceived naturally and relatively quickly. After a year of ttc, I pushed the GP to investigate. I was diagnosed with severe endometriosis and subsequent surgery showed i was very unlikely to conceive naturally. I took medication for three months after surgery to control the endometriosis then tried IVF. We got 2 blastocysts. The first one transferred sadly failed and I went back on my medication to control the endometriosis. We did a frozen embryo transfer for the second blastocyst last October and it worked! It was like a beautiful dream and our son arrived two weeks ago, totally perfect. Horrendously he fell ill at 36 hours and passed away a few days later. Still no idea why and doctors don't think there's any link to the loss of our first child.

We can only imagine carrying on if there is a happy family in our future. I have to heal from my c section so IVF will be, at the earliest, January 2022. I will be 35 in May 2022. To help our chances, I've gone back onto my endo medication plus coenzyme q10, vitamin d and fish oil. I'm hoping that, despite my age, we stand a good chance due to our previous pregnancies. Is this true or am I kidding myself?

Hi @Georgina125 I am so so sorry to hear about your loses, what an awful experience, are you getting some help with the grief? I really hope so because this sounds really tough.

As for the fertility side of things, I think that your ability to produce embryos that implant and result in ongoing pregnancies is a very good sign. Often the issue in endometriosis is egg quality and the embryos don't implant. Clearly that isn't the case with you. Taking the treatment to keep the endometriosis at bay as much as possible, while you recover from your recent surgery sounds like a good idea. I think once you've recovered speaking with the specialist about whether you require further investigations prior to a retrieval will be a good idea, you can then go from there.

I’m so sorry -how absolutely heartbreaking for you. You sound so brave. I hope a specialist can investigate this for you. Would they perhaps suggest testing your embryos before putting them back in on another round of IVF?

Sorry I can’t be of any help but I wanted to send my love and thoughts to you.

No advice for you, but I'm so very sorry to hear what you've been through so far - that is absolutely heartbreaking

I really hope you get your rainbow baby and sending you all good wishes that that's just around the corner for you.

OP I'm so sorry to hear what you've gone through, how heartbreaking. I would second a few opinions about making sure you've got the right support to process this. I know they don't think there is a link between the 2 but I'd also echo maybe genetic testing/blood tests (embryos and yourself and partner) I think the doctors can advise more.
I agree in terms of the IVF you've successfully gotten pregnant and given birth which are 2 massive hurdles with IVF and I think stand you in good stead.
Sending so much love xxx

No advice but just to say I'm so sorry and sending you lots of love xx

Thank you all for your replies. There is a post-mortem and Coroners investigation ongoing so if there is any genetic component, that will be found. I think it will be a case of hospital negligence but they will check everything, they have promised me.

Thank you, I need to believe the IVF will work again. It won't replace either of my boys but it gives me a reason to carry on.

Support wise, I have my bereavement midwife calling two or three times a week and starting counselling next week. My IVF clinic is willing to do a consultation when I'm ready to discuss what went right with my successful cycle. I might do that once my son's funeral is done.