Molar pregnancy: Tell me your story.

[LuluF91]

Hi,

Me again... I'm just looking for others who experienced a molar pregnancy to talk through it with me as when I've gone on to Facebook support groups they seem to be less than positive :(
Does anyone know when I get confirmation of diagnosis from the lab? I had the procedure to remove on Wednesday and afterwards was when he said that would be his diagnosis but needed confirmation.

Secondly, just where to go from here? I physically am pretty OK...in a much better state than I was in as my body had been trying to miscarry for weeks without success and just causing alot of pain. Emotionally things are not so good. I am grateful to have closure to it all, I am relieved i didn't have to terminate "a baby" as such. I don't mean that to disregard others feelings but it is what helps me not to crumble. At night though I just cannot sleep. I have alot of support but I feel very overwhelmed. I'm not crying day or night but I'm just in constant search of answers and information. The Facebook groups scared me with regards to the potential of chemotherapy if it was not fully removed.

Just I'd love to hear others experiences. Whether you are going through it or out the other side. It feels like this is going to be a long journey.

Shameless bump...

Hi, I've not had a molar pregnancy, but I know someone who had a partial molar pregnancy in the past. She was really worried but has gone on to eventually have a baby, so there is hope.

I think one of the scariest things for her was that because it's rare, even professionals may not have much experience of directly treating people with the diagnosis. But, they referred her to a brilliant specialist centre which had lots of experience and were able to support her.

If you're diagnosed with a molar pregnancy, I'd suggest asking to be seen by a specialist centre.

I'm really sorry that you're going through this. Sending virtual hugs.

Thanks for replying.I'll be put directly under a molar clinic the dr said, so no need to ask for that at least. I actually might move this to the miscarriage/pregnancy loss topic. Is there a way to do that?

I think you can ask the site, but I'm not sure how to, sorry...

That's ok, I'll copy and paste it. Still learning this whole thing! Thanks so much for replying, wishing you all the best ❤

I had a partial some years ago. I'm not going to lie, mentally I found it very tough. Don't know if was the change in hormones or the fact that I was in my late 30s and wasn't sure if I'd get another baby. DS was about 18 months at the time and still not sleeping so I don't think that helped my mental state. I did end up having some ADs and CBT and did recover quite quickly once I had those.

I was under Sheffield for a while but didn't have to travel there, just had to post off a lot of wee samples.

They told me not to TTC for a year. After 6 months I spoke to the Nurse Practitioner who agreed that I could TTC as my hormone levels were right down and my age.

Pleased to say I had DC2 at 39.