Ectopic; told remaining tube was scarred

[chestnutbear]

Hello.

I went for a dating scan on Friday just gone as I fell pregnant whilst on the mini pill.

Scan was at 4.20pm. My HCG was 1177. But they couldn’t see anything in my uterus. They did see something near my right ovary.

I’m obviously heartbroken at this point. My partner isn’t with me as he wasn’t allowed in. I was told to come back Sunday for more bloods to see what the best treatment plan would be.

Yesterday, I went out for lunch to just try to forgot about what was going on. I then felt very dizzy and spaced out. Asked my partner if we could eat as thought it might make me feel better... if didn’t. I then had shoulder tip pain.

I called the ward up and they wanted me to go straight to the EPAU. I did this and they actually let my partner in with me; we had a private room. I went for a scan. I was told it was 100% ectopic and that I had bleeding in my abdomen.

By this point it was around 3/4pm. My partner went to get my overnight bag and I said goodbye. I had surgery at 6.30pm last night.

I was in surgery for 2 hours due to them attempting to get the camera in my belly button SEVEN times! I was in recovery for 3 hours with a lot of pain.

I was told my tube was a mess, and I had 200ml of blood in my abdomen.

I was not expecting the next news that I received today... my other tube is very scarred. So I am left with a scarred tube. My partner and I wanted to try for a baby come spring and we are devastated by this news. I can only think that this is due to endo surgery i has two years ago? As have had no other gynae issues.

I am not eligible for NHS fertility as I have an 8 year old. What would my next steps be? I know I need to recover first but I’m so desperate for us to have a baby. What should we do?

I was discharged tonight at 7pm. Home with a catheter as couldn’t pee. Back Wednesday to see if I can pee and an appointment with EPAU on Friday for bloods.

I’m just gutted and it’s just been such a rollercoaster journey the last week. We only found out a week ago Friday I was pregnant and decided to go ahead with the pregnancy over the weekend. So for this all to happen in a couple of days is just so traumatic and it hasn’t sunk in that i possibly might not be able to have a baby.

Thanks for reading this far 😞 xxxx

I'm sorry you've been through this

I've had 2 ectopics both ruptured and lost both tubes. At this point if your remaining tube is scarred I would request it be removed as it just makes you incredibly high risk probably almost guaranteed to have another ectopic

I had an older DD as well and so not eligible for NHS IVF so we had to pay privately for IVF - took us 5 rounds and a LOT of money and I'm now pregnant with twins

Oh I'm so sorry to hear that but congratulations with the twins! Amazing news.

I think I'd like to get the dye test done?
To see if the inside of the tube is scarred. The doctor only saw from the outside... so might be with doing that. Unsure if I can get that via nhs or if I'd have to go privately

I had to fight to get a HSG test from the NHS but did eventually get them to agree. The waiting time even before Covid though was minimum 3 months and that was pretty standard across the country. It's expensive privately for the proper one with the dye and X-ray - about £3k when I had a quote privately and you can only get it done certain places as it requires an x ray machine. There is the cheaper test which is just with an ultrasound though

To manage expectations though I would say that the test can give false hope. It can only tell you if the tube is blocked or not and it can't tell you if it actually works (there is no test for that). They checked what was my last tube at the time during my first ectopic removal and it looked healthy and clear "perfect" it what I remember the surgeon saying.....I still lost it 12 months later.

I had a c section with my DD and the doctors think now that neither tube worked again after that