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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Natural Killer Cell Tests

12 replies

cwalsh2002 · 06/07/2020 21:00

Does any one know of any places in the London / Home Counties area where you can get tested privately for natural killer cells.

After 5 consecutive miscarriages, and nothing found through standard NHS tests, I need to explore private options.

Thanks in advance.

OP posts:
Janefx40 · 06/07/2020 21:40

I'm so sorry to hear about your miscarriages

ARGC do testing and immune work. It's pricey. I go there but haven't done immune stuff so not sure how it compares to other places. Good luck xx

cwalsh2002 · 06/07/2020 22:15

Thanks Janefx40. I'll check them out.

OP posts:
LASandOtto · 07/07/2020 07:55

Hey OP

I was at ARGC and had the immune tests done privately - called Chicago tests. It's a blood test sent off to the US. It's about 800 + pound for the test, and treatment for elevated NK cells is via Immunoglobin IVs which are 2000 pounds a round. Test has to be repeated to see if levels improve. It's very costly. Having said that I had treatment for it worked for me I think.

You can also go to Professor Quenby in Coventry who does uterine NK cell biopsies. I don't know much about this but read about it on here.

VenusStarr · 07/07/2020 08:59

Hi @cwalsh2002 I'm sorry for your losses. I went to the Coventry implantation clinic for the nk cells biopsy - that is closed until September though, but it's about £500 for 2 biopsies and a consultation. I've only had one because of covid, but my first was normal. I've been prescribed cyclogest to take from 7dpo and we're waiting to start ivf (NHS funded).
There is a thread on the miscarriage board and lots of people there are seeing Dr Shehata who is down in Epsom - he tests using blood tests, so different to the Coventry approach, but is more expensive.

👋 @LASandOtto good to see you, hope all is well

VenusStarr · 07/07/2020 09:00

Here's the thread I mentioned www.mumsnet.com/Talk/miscarriage/3914106-Immune-NK-Issues-aka-Pred-Thread-no-25

LASandOtto · 07/07/2020 09:55

@VenusStarr oh so nice to read you! Have often thought of you. How are you doing? All ok with me!

VenusStarr · 07/07/2020 11:17

:) @LASandOtto I'm not too bad - we're hopefully starting ivf in a month or so (just waiting to hear from the clinic). Had a third loss in February and not really tried since then, but going to give the cyclogest a try 🤞
Glad to hear you're well x

LASandOtto · 07/07/2020 12:53

I'm so sorry to hear that @VenusStarr. It's such a long and tough journey. When you look back you surprise yourself at what you've overcome already on this journey to hopefully becoming parents. We should be proud of that, it really is hard. Wishing you all the success with your IVF round. Did the investigations you had lead to this being the most feasible option? Sending big hugs x

VenusStarr · 08/07/2020 09:13

Thank you @LASandOtto, it's been a long, tough road. The nk cells consultant told us we just need to get pregnant and as we've struggled to conceive it does feel like IVF will enable us to understand a bit more about the eggs and sperm and gives me some hope. He thinks we will concieve again on our own but we're both at the stage (over 2.5 years now) that we can't keep just trying on our own, we want to try something different - it's the definition of insanity to just keep repeating the same behaviour :)
Sending you lots of love ❤️ xx

cwalsh2002 · 08/07/2020 18:43

@VenusStarr @LASandOtto thanks for the info. I have emailed prof. Q's secretary but haven't heard back yet. The other option sounds too pricey as I'm on the verge of quitting my job!

OP posts:
Lauren83 · 08/07/2020 19:51

You may struggle with immunology testing and treatment at the moment, the HFEA have put a stop to immunosuppressants since Covid so most clinics aren't offering tests/treatment with steroids/intralipids etc, in May they said a year but unsure if there's been any more updates

Lauren83 · 08/07/2020 19:51

You may struggle with immunology testing and treatment at the moment, the HFEA have put a stop to immunosuppressants since Covid so most clinics aren't offering tests/treatment with steroids/intralipids etc, in May they said a year but unsure if there's been any more updates

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