recurrent miscarriage tests and endometriosis diagnosis

[Snapper81]

Hello,
I'm hoping I might get some support from anyone who has been through or is going through something similar to me. I have one healthy 2 year old daughter but this year, I have had two consecutive missed miscarriages. I am now 39 years old so I assumed it was age related but my husband and I decided to go ahead with tests to see if there is an obvious underlying cause. Today I had an internal scan and bloods done and I was floored to be told I have endometriosis! I had no idea and i will have had it for years. Today I have been put on Estradiol Valerate (oestrogen) and in 2 weeks I start Norethisterone (progesterone) so as to bring on a period. I haven't bled yet since my miscarriage and my endometrium is very thin. I will be having a endometrium biopsy in 3 weeks time. My husband has also had his sperm tested and we are waiting for results.
I feel a bit overwhelmed by everything. Really, I could have done with more time to get over the miscarriages but I just don't have time to wait at my age. We have had to go private for these tests because the NHS waiting list is a year. I also found out today that I have diminished egg reserves but I expected that at 39.
The three times I have got pregnant, it has happened in only 1 cycle of trying. Conceiving is not the issue. It seems my immune system is in overdrive and I'm attacking the embryos which was so disheartening to hear.
Has anyone had any success stories with endometriosis? Is anyone else going through these tests for recurrent miscarriages? I'm feeling really alone at the moment.

They can give you an endometrial scratch which may help. Are you a member of the Facebook groups for trying to conceive/infertility? I got a lot of advice from them.

@LouiseTrees I haven't heard of this so i will look into it. I've just joined a support group. I think it's just the unknown that is scaring me. I'd barely even heard of endometriosis before yesterday!
Thank you for your suggestion.

Hi I have endometriosis and recurrent miscarriage. Got diagnosed at 30 and had excision surgery at 31 (2 miscarriages in between). No explanations for the miscarriages (had all the testing) but I do know there are studies which say endometriosis makes it more likely for you to miscarry. I have been pregnant twice since the excision surgery and neither has miscarried - well, yet (22 weeks now but still pretty nervous), tho sadly my 3rd pregnancy ended at 16 weeks as we chose to have a termination for medical reasons as baby was very very poorly. So I do think the surgery helped in some ways, but it's clear the medics still aren't really sure why. I'd be a bit wary of the whole immune thing (unless you are diagnosed with thyroid, sticky blood etc.) - I have never been treated for this in any of my pregnancies (e.g. steroids) and the outcome has therefore not been dependant on this. Endometriosis is also known to affect egg quality and I'm afraid at 39, this is still the most likely reason for the miscarriages (sorry, that's not intended to be harsh). I read 'it starts with the egg' and took the supplements recommended there, as well as high dose folic acid (because of TFMR) and got my DH on vits as well. I have no idea whether this contributed, but we got pregnant fairly quickly (2 cycles after the TFMR - which had actually been an IVF cycle, this one wasn't) and as of 22 weeks, everything looks ok. I did take progesterone in the early weeks and consultant prescribed aspirin from 12 weeks. Wishing you lots of luck - I think in this case perseverance is key, you likely will get pregnant again, and it has more chance of being successful than not. Easier for me to say now... I can vividly remember how it felt to be in your position.
Anyway sorry for long post, in a nutshell, you could push for surgery (hormones do NOT treat endo whatever they might try to tell you) and you could begin taking some supplements if you're not already doing so. Best of luck

@Lavienestjamaisjuste thank you so much for your response and ok offense taken regarding my age. It is what it is. Once I've had all my test results back, I'm keen to try the supplements suggested in the book. I really appreciate you sharing your story and what worked for you. Congratulations on your pregnancy too xx