Has anyone conceived naturally with Hydrosalpinx?

[Uhtredwaere]

Yesterday I received the news that my right fallopian tube is blocked with fluid. They aren't sure about the left side but everything I'm reading suggest it's in both tubes most of the time. I'm devastated and haven't stopped crying. We were hoping to start TTC after Christmas.

Is there any hope at all? IVF is just not affordable at all and we already have a 2 year old so not eligible for NHS treatment.

The problem is hydrosalpinx is toxic to a developing embryo so causes implantation failure or early miscarriage. My IVF clinic refused to treat me when I had what they suspected was hydrosalpinx and said it would have to be removed first. Also there is the increased risk of ectopic (I ultimately lost both tubes to ruptured ectopic pregnancies)

It can go away on its own naturally but takes a bit of time and there is no current fast fix treatment you can take to get rid of it except surgery

Thank you for replying @ivfgottostaypositive

I've been given an urgent referral to gynaecology so hopefully I will find out more then, but I am truly devastated and cannot stop crying

Hi @Uhtredwaere

When they say that they 'aren't sure' about the remaining tube did they go into any detail at all?

I had my right tube removed for the same reason last year during a laparoscopy and the consultant confirmed afterwards that my remaining tube is 'normal'.

So there are cases presumably where it does only occur in one.

Unfortunately I still need IVF as my chances of natural conception are low (he didn't go into any further detail and my review was cancelled due to Covid!).

I'm due to start IVF soon.

It's shit. Especially when you're left feeling uncertain.

I did but after having one removed, like PP said it can leave you at risk of ectopic and create a hostile environment for implantation so better to get it dealt with before trying

@DarrellRiversTuckBox

On the ultrasound they could only see fluid in one tube but advised me that even if the other tube is not blocked it is often damaged/scarred.

I'm just hoping against hope that my other tube will be salvageable. It's really reassuring to know this can be the case @Lauren83

@Uhtredwaere

I had this - after I lost my first tube to a ruptured ectopic I had another scan done on the remaining tube - all came back fine, no blockages. I still went on to have another ruptured tube 18 months later and also lost that one. In the end I was relieved - it felt like I was playing Russian roulette with my life every month TTC and even my second ectopic was following IVF. Now I have no tubes I feel less anxious about proceeding with IVF

Yeah part of me wishes I'd had both removed for peace of mind

I'll have to put my faith in the consultant that he left it there for a reason, although given that my chance of natural conception is practically nil according to him, I can't think what that reason would be?

The thought of having to lose both is just unbearable to me, we have no way of financing IVF

@Uhtredwaere

We thought the same about IVF. So we waited until DD was 3 and eligible for 30 hours childcare. People think they can't afford IVF but I took out a 5 year loan which is £275 per month which is about 1/3 of the cost of what I was paying for full time childcare (£900 a month) - a lot less than the cost of losing a full salary if my DH had had to be a stay at home parent (I'm the main earner). We both have to work full time to pay for it all though but in the end it will be worth it

Thank you for your post @ivfgottostaypositive obviously it's early days and we'll have to wait and see what the gynaecologist says but DH has promised me we can explore options if we need to.

Hi

I wanted to revive this thread as I recently had an ectopic pregnancy which resulted in the removal of a ruptured tube. In my discharge notes the doctor has said I have small hydrosalpinx in my left tube. It was indicated to me that I might have to have the left tube removed and then have IVF to be able to conceive.

I wonder if anyone has looked into massage therapy for the treatment of hydrosalpinx? I have also been looking into acupuncture. As someone who has always dismissed this in favour of science and modern medicine, I'm sceptical to say the least. But would love to hear from anyone else who may have gone down this route.

Resurrecting this as I'm also having hydrosalpinx problems. I had my left tube thermo blasted (not the technical term) which meant that they intensionally scared my left tube to seal off the fluid from flowing back in to my womb. At the time, I was told my right tube was good. 3 years down the line, just about to start IVF and boom the right one now has one. The clinic won't proceed with treatment and I have no idea how long I may need to wait for surgery on the NHS. I'm heartbroken as I'm fast approaching 40 and running out of time.
I'm looking into the possibility of going privately but think it will be out of our budget, even if we borrow money.

Hi there - I was a responder on this thread last year but changed my username. I lost both tubes and ended up having twins via IVF

Are you having IVF via the NHS? What about just having the egg collection done - freezing any blastocysts whilst you wait for surgery and then having a transfer once it's done?

@ivfgottwins Thanks for the reply.
That's what we're going to do. We have done egg collection already. We only got one egg but that egg fertilised, got to day 5 and is now in the freezer

I'm really impatient. It's been a Flippin' long journey with miscarriages along the way. We thought we'd nailed it by having a day 5 and were due to transfer this coming Monday. Soooo close. I really just want to get on with it and get the hydrosalpinx gone... and begin the healing process if it doesn't stick.
Still not ok with other people having fun when making a baby

Hi, I too am having the same issue. I suffered 3 CP this year and I knew something was wrong, I am awaiting my referral to the recurrent miscarriage clinic but decided to have a private scan to see if everything looked ok. They discovered hydrosalpinx in the right tube and as it was seen on ultrasound I’m guessing it’s pretty bad. I’m devestated by the news as I have an 11 year old so would not be eligable for IVF. I also have no idea how long getting surgery will take on NHS as even if the left tube is ok now in time it might not be. It’s particularly hard because I had a c-section with my daughter and that potentially caused the issue. I’m not even on the waiting list for surgery because I have to wait for my referral to go through and have initial appointment before any of thing can happen. I am really worried the other one will go the same way before I can even try to concieve. I feel hopefless, how long did it take for you to be referred and then have surgery?

Hi - I have come across your discussion. I have too recently found out hydrosalpinx in both tubes. I am currently on the waitlist (9-12mnths) for the operation. I have been given the choice to freeze or wait until after the op to do a fresh transfer. There are lots of mixed reviews and opinions on whether to freeze embryos or not. I’m at a cross roads of what to do….help & any advice is welcome 🙏

Hi , could you please give an update x

My ultrasound showed fluid in my right tube and he booked me in for tube removal like it was so casual. I read if your tube shows on an ultrasound then it's ussually severe since tubes aren't normally seen on ultrasound. I'm having a hsg to see if it's on my left but I'm told if its on right that both are usually affected. Can someone give me an update as to weather you proceed with the tube removal or not. Does it definitely affect both? I just really don't want the surgery it'd so devastating.