Recurrent miscarriages and now bleeding again.

[WatchOutLurkerAbout]

7 miscarriages in four years all before 12 weeks. 4 in the last 12 months.

I should be 8 weeks. Early scans have put me at 5. No HCG tests done despite me asking for them. I have another scan in two weeks to see if a heartbeat and pole have grown to confirm viability. I started spotting yesterday and this has increased to a lot of red blood when I wipe.

Hospital are saying unless I fill a pad just got to ride it out. Spoken to the Tommy's midwife line and they've said it sounds like a miscarriage and the hospital aren't being honest with me.

I'm a bit of a wreck not going to lie. Anyone else been here? Don't know why I'm posting I'm just so lost and hurt.

Crap crap crap. That really must hurt.
I’m really sorry to read what you are going through.
I have just experienced my first miscarriage so I’m not in a position to give any advice.

What testing have you had done to look into the causes? Obviously don’t answer if you don’t want to.

Whilst I’m no expert it doesn’t sound particularly positive. It must just feel crap that the doctors aren’t watching out for you.
Can you go back in a week and insist you are scanned?

I was referred for testing last year after a positive smear test for HPV and I thought I was getting testing and help but turns out they've barely testing anything and are refusing to do so until my BMI is 28. According to Tommy's this isn't right they should be investigating so feeling completely let down just to boot.

Sorry for your loss it's horrible isn't it.

have you had any testing done on any of the tissue after the miscarriage? I understand that wouldn’t be possible if you miscarry naturally. But my understanding is that after 3 miscarriages the NHS would look into the genetic testing for you so you could check for chromosomal abnormalities.

I asked and was refused. To be honest they've not looked after me in any way at all

Are you in the UK? I’m struggling to comprehend this. You have had 7 losses. I can’t believe (I mean, I do believe you but I just find it so saddening to believe) that nothing has been offered to you. The NHS guidelines are clear that you should be offer f genetic testing after 3 miscarriages.

What did they tell you the significance of the HPV virus was?

So sorry for your losses OP. I have also miscarried. I was already privately treated for ivf so did not go via the NHS but as I understand it you would qualify for testing. I appreciate now is not the right time but please do push this in the future as you deserve more support and care.

So sorry you are going through this and all your losses. Are you in the UK? Sorry if this is TMI, but I suggest getting a sterile urine type jar and collect the products if you pass large clots or anything that looks like the pregnancy.
I did this, and the EPU sent it for testing. As it was only my 2nd MC, they woudln't do genetic testing, but they did check for a molar pregnancy and confirmed there had been a foetus there (until that point I thought it was possibly a blighted ovum). Having a report provided some comfort is knowing it was real, and thankfully not molar.
Do you have rhesus negative blood? If so, have you been given Anti D with each loss? Have you had any testing at all such as deficiencies, clotting factors in blood etc? Or a scan/hycosy to check the shape of your uterus?

Yes I'm in the UK and honestly the refusal to treat me has astonished me too. My husband has been pinging round the rooms at appointments asking why and getting no answers.

I'm going to try and collect anything I can and camp out at the EPU until they do some testing this time. Last time they refused because my GP hadn't sent me.

I am rhesus negative and I had the injections with my son but then they didn't give me it after I had him because he is also rhesus negative. They've refused to give me any since.

It's even to the point I asked the doctor if I should try taking aspirin as I'd heard that helps reduce the risk of miscarrying. Their words were "there's not really much point until your BMI is under 30". I was so shocked I couldn't react.

I've been in touch with Tommy's today and got some good advice about referring myself to them so when this passes that's my plan. I'm just at rock bottom at the moment tbh.

I am not surprised you are at rock bottom.
It’s shit and on top of that no one is helping you.
Please hang on OP. You did really well to call Tommy’s today. There are things that can be done and other people on here I’m sure have better advice than me. Keep talking to us and seeking advice

Genetic testing isn't routinely done even with recurrent miscarriage- I've also lost 7 - it's only really possible if you have a D&C and then it depends on the size of hospital if they are able to offer that and also depends how far along you are - less than 6/7 weeks they won't really have anything to test

Complain to PALS?

It seems different, in various locations, but I previously worked in a clinic and any women having a miscarriage was given Anti D- at any pregnancy stage too. I've heard others say they never got it, but I do wonder if you have built up antibodies and this might be a cause for all the MC?

Sorry you're in the same bot @itwasalovelydreamwhileitlasted it's horrible isn't it.

@Elouera honestly I don't know I'm definitely a layman when it comes to that stuff I don't understand it tbh. It's quite interesting if that's a possibility as my mum is rn and she's had 6 mcs in her time.

@Mutedgrey thank you I really appreciate your comments it's been really helpful

I'm really sorry @WatchOutLurkerAbout

You are eligible for testing, your GP should be able to refer you. My experience of epu is not great, sadly your experience doesn't sound unusual to me.

My recurrent miscarriage tests haven't shown anything and there's not much more they're offering at the moment so I self referred to Professor Quenby's implantation clinic. They look for nk cells via biopsy.

I'm rhesus negative and was told that unless I bled after 12 weeks, I wouldn't need the anti d (my miscarriages were all before 10 weeks). There is a lot of disparity between areas and what is routinely offered in some areas in terms of miscarriage after care and testing. I did a lot of research and reading about possible reasons. This helped when I saw our recurrent miscarriage consultant - he advised us to advocate for ourselves and keep pushing. Professor Regan's book miscarriage what every woman needs to know was very helpful.

It's so shit. I'm sorry this is happening to you ❤️

So sorry what you have been thru... miscarriages are painful physical and emotional... but after 3 losses there should be testing etc done... you should not have been let to get to 7 miscarriages and nothing been done about it.. they start to investigate after a 3rd where i am (Leeds) xx

Have they said they are going to give you the tests once your BMI reaches 30?

If so, is there any chance you could get there?

Have a friend who's on a list for fertility treatments for a health condition which can be passed to baby but NHS would not do anything (not even tests) until her bmi is under 30.

She is been struggling for years getting just below 30, then going for a test, getting re-weighted and get sent away because she increased a bit (also because I think high bmi is part of her health condition - so very difficult to address) but she's now doing park runs and doing really well. So hopefully she'll be able to start soon.

Appreciate the miscarriage reason might have nothing to do with bmi, but unfortunately, from experience, they tend to be quite strict with it.

I'm so sorry for what you're going through xxx