NHS/private care for pregnancy following recurrent mc

[suchomimus]

I'm almost 12 weeks pregnant and have been ttc for 4 years with a history of recurrent mc. I have my 12w NHS scan next week and my booking in appt a week later.

I was seen by privately at The Lister and diagnosed with APS and low thyroid. I'm taking clexane and levothyroxine for this. My thyroid was in the NHS normal range but my private consultant said it was too low for someone ttc. I'm also taking prednisolone and progesterone- which are due to stop at 12w.

My concern is who will cover my care once/if all is well at the 12 week scan?

My private consultant is a fertility expert and I'm not sure how much input he wants to have from here on. On the other hand, will the NHS support/prescribe/manage my private diagnosis? Does anyone have at experience of this point and what happened for them?

I was on clexane, steroids, gestone and aspirin prescribed by my consultant at a fertility clinic, the hospital just kept me under consultant led care but wouldn't get involved in anything else

Thanks. Did you maintain contact with your fertility consultant? If so, did they run any extra tests after the first trimester?

I'm a bit worried the NHS will do as you say- keep me under a consultant but not take an interest in monitoring my private results.

No I had no further contact with the prescribing Doctor beyond them giving me a prescription to last me until 12-14 weeks, it was an IVF pregnancy with donor eggs and once I was under the NHS antenatal clinic they just took things from there, I just advised them of my meds and when I was coming off them

I would not trust the NHS with something like this. At all. If you can continue to see a fertility expert. The NHS will follow basic protocol if you're lucky. Sorry to be such a downer but I've had really bad experiences (with fertility care overall not miscarriage) and I work for them.

I’m in the same position with the same meds as you OP. I will be making a private appointment with an endicronologist because I don’t trust the NHS to treat my thyroid appropriately. The Steroid treatment should be fine to let go provided the thyroxine continues because my antibodies come from my body attacking my thyroid.

My thyroid was above the normal range and I had 160 antibodies. Yet my Gp refused to treat me on the NHS because my free thyroxine was just in the normal range. Hence the lack of trust.