Low AMH Level - anyone had success with IVF?

[Sarah110683]

Hi there,

I'm on the waiting list for IVF treatment, and about to start it soon, but i got the letter regarding my AMH Level test.
It said it's below 0.5 and that i had to be aware that IVF might not work because my ovarian reserve is very low, so they may need to abandon it.

I'm absolutely devastated. I was praying that my levels would come back medium at least, but low, and the thought of abandoning IVF has just left me numb.

I had never imagined a future without children. I'm only 34. I just totally feel broken at the moment. (sad)

Has anyone had success with low AMH Levels and IVF?

Hi Sarah,
Thank you for your kind words, it's really important for me to know there are others out there having experienced and are experiencing the same challenges as me, though I wouldn't wish it on anyone, its comforting and normalising.

I really wish you the best with egg donation, it's such a rollercoaster of emotion! I wish you every success and please let me know how you get on!

The same support to you too, if you ever want to talk, please keep in touch!

Best wishes
SJ.x

100% @Sarahjane186 it's such a lonely process. I've not really told anyone what I'm going through, which probably makes things harder, because on the hard days, you can't really say why you are feeling like crap!

First scan on Friday, and hopefully onto the drugs after that....

If you aren't sure about egg donation, please get in touch. I know you will be feeling a bit lost at the moment, and unsure of what to do. Sending you lots of hugs. . xx

Hi @Sarah110683
This is an old thread so not sure if you’ll see this, but I found your thread due to endless googling and researching after I was told a few days ago that my AMH level is too low to be eligible for IVF on the NHS. I was absolutely devastated as I feel like the future looks very bleak indeed.
We are going to try private IVF anyway, as we have to give it a shot even though the chances are small, and I’m so sorry that it didn’t work out for you.
I see now that you’ve gone down the egg donor route and I’m wondering if that has all worked out ok for you?🙏 If I can’t have a baby with my own eggs I will definitely try this option too. I’d be really interested to hear how things have gone for you. Thanks in advance xx

Hi @Misty84
I'm so sorry to hear your news. It's awful. I feel for you. I remember that day well, take the time to grieve, because that's what it feels like. Sending lots of hugs.
Fingers tightly crossed for going privately - I do always wonder if going private - that they take more care, investigate things further etc.
Unfortunately it didn't work - my first go at donor eggs. I'm trying again in May. So hope/pray maybe this time things might work.
I do sometimes wonder if I'm destined not to be a mother - it's a horrible thought, and one I don't want. So will try and be hopeful/positive.
I'll keep everything crossed for you. I really do hope it works out next time for you.
It's a long road, but hopefully we will get something beautiful at the end of it. xxxx

Oh my goodness Sarah I’m so sorry that you’re still on this journey, it’s just unbelievable, heartbreaking and unfair that some people have it so easy while others have such a battle. Of course you should be and are entitled to be a mother, I really hope that in May some good luck finally comes your way because you so deserve it by now🙏
We’ve been trying naturally for 2 years and I’m 37 so there isn’t any time to lose but the future does scare me very much. I’m trying to have faith and be positive but it’s hard when there are no guarantees. I guess we just have to pray that we will get there eventually.
Thank you so much for replying, I really appreciate it. 💐

I totally get how you feel @Misty84. 5 years I've been going through this. Its probably the hardest part of my life. So many ups and downs.
If you ever need someone to chat/moan to please do. It's a lonely time. Everything crossed for you. 😊🤞🤞🤞 xxxx

@Sarah110683 Thank you so much. The last 4 days since finding out about my AMH have been awful, I’ve cried so much and wake up early in the morning feeling panicked and sick about it all. I just know I’m likely to have such a battle ahead now, which is going to be incredibly costly, pressurised and emotional.
You’ve endured 5 years of this journey, wow. Do your friends and family know what you’ve been experiencing?
I’ve been obsessively researching clinics and it’s a bit of a minefield but I think I’ve settled on the Lister in Chelsea, will have a consultation next week and then things really begin!!😕🤞 x

I remember that well @misty84. It was almost like an outer body experience. The world carries on around you, and you just feel broken.
Did the hospital offer you the option of donor eggs? Or are you wanting to try private 1st?
I will try private if I it doesn't work this time round. I have looked at clinics, and you are so right - there are heaps of them. 😬
Some of my family know, but they only know parts of it. I don't know about you, but I find people don't understand if they haven't experienced any hardship with having kids. They feel sorry for you initially, but just expect you to move on, and get on with life.
Does your friends and family know?
I've definitely found my emotions have been worse over this period of lockdown.

That's good you've got a consultation - hopefully that will make you feel a bit better, or at least a bit of clarity. 🤞🤞🥰🥰

@Sarah110683 So I had my FSH, LH and AMH redone yesterday and have an NHS consultation on 13th April to discuss results. Thought I might as well listen to their free advice/opinion before embarking on the costly private route!
I’m at a bit of a loss with it all.
No one has mentioned donor eggs to me YET but I haven’t had a proper conversation with anyone yet. I would like to try with my own eggs first just to see how I would respond to treatment. The prediction is bad 🙄 but I guess they never really know until we try!
I feel so tired from thinking about it all the time!
Some of my friends and family know but not everyone. You’re right, if they haven’t had fertility issues then they just don’t get it. I can’t help feeling resentment towards those that have no struggles.

That sounds like a good idea @misty84. If you've got your own eggs, then they might let you go ahead. 🤞🤞 i'll keep everything crossed it's good news for you.
I was unfortunate that I didn't generate any eggs.
I totally get what you mean re tired. It really drains you.
I got the news yesterday that my sister is pregnant. Talk about a blow. I'm happy for her, but totally like why me. . Why can't I be normal...... 🤷‍♀️🤷‍♀️ xxx

@Sarah110683 Oh I’m so, so sorry to hear that Sarah. The worst part is your struggles prevent you from being truly happy for someone/ being able to fully experience the joy with them. I can totally understand how crap it makes you feel. It’s frustrating, unfair...I would feel exactly the same as you, just wishing to be normal.
My best friend had a baby a few weeks ago; she conceived on her second month of TTC, honestly it blows my mind!!!! I’ve had lockdown as a perfect excuse not to meet up and I still don’t want to. It’s just depressing hanging out with a newborn and seeing that parent-baby relationship.

May I ask how long you had to wait for donor eggs? Is it the same donor that you’re having for your second attempt?
Xxx

Totally @misty84 - my good friend had a baby a few weeks a go too. I can't bring myself to meet up with her. I know I should, but yeah the thought of being round a new born is hard. I don't even want to see my sister yet either. 🤦‍♀️🤦‍♀️
Lockdown didn't help - as a donor came up just as we went into lockdown so had to wait. But it was about 18 months. It is awhile I'm afraid. I think it's all down to whether they find a match or not.
They try and match with your hair, eye colour etc, and yes it's the same donor throughout. I have 13 eggs that I can use. So just say a miracle does happen and I got pregnant, you get to keep the eggs for further tries/children. It is quite good, obvs you have to get your head round it not being your own eggs, but in the end you are carrying/providing for them. 😊 xxx

@Sarah110683 Hey OP, I wanted to ask how you got on with your treatment? Did you get many eggs / embryos? Same boat 🚤

thanks 🤩