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Cystoscooy...HELP!

6 replies

Luluringo · 03/09/2017 16:16

I am writing this in the hope that anyone has any advice or words of wisdom.

In a nutshell, we have been ttc since January this year. In feburay we got pregnant which resulted in a MC in March. Since then, DH and myself have been feeling extremely down and stressed. Then in June DH had pains in his kidneys and lower abdomen then found blood in his urine. He went straight to doctors who gave him antibiotics, an ultrasound and numerous blood tests to find the cause. Unfortunately, everything has came back normal. This now leads us to tomorrow's cystoscopy.

Has anyone been though this? We are worried that it will be something serious and are also concerned that it may damage DH's reproductive organs and affect out chances of conceiving. We thought the blood and pains may have been due to kidney stones, as he has had them before. I just wish there was another way they could investigate rather than sticking a tube down his Willy!

OP posts:
Tanfastic · 03/09/2017 16:31

I only know a cystoscopy from a woman's point of view. I had one last year and I won't beat around the bush, it was to rule out bladder cancer. It's the gold standard test to rule this out. However a cystoscopy can also pick up other bladder related problems which can cause blood in urine. Or, as in my case, it could just be "one of those things".

Normally they will do the non invasive tests first (i.e. Kidney and bladder scan) and if this shows nothing then cystoscopy. Mine was the other way round though as there was a mix up with my referral.

With regard to the procedure, I only know from a woman's perspective but I didn't find it that bad. NO worse than a smear (different orifice obvs!). Just a little bit stingy when the camera goes in but once it's in it's fine. They have a little look all around your bladder and you see it all in the screen and they tell you the results straight away. I think it's slightly more uncomfortable for a man due to his anatomy but it's all over and done with pretty quickly. I found the staff and consultant to be amazing.

With regard to fertility I don't think you'd have anything to worry about there.

Luluringo · 03/09/2017 17:16

Thank you tanfastic. I appreciate your resonse. I know that he needs the cyscoptopy to rule out anything untoward but I thought they would give him more scans first as he has only had an ultrasound. What time of scans did you have, if you don't mind me asking?

OP posts:
Luluringo · 03/09/2017 17:18

Type of scans!!! Oops!

OP posts:
Tanfastic · 03/09/2017 17:56

I had an ultrasound of my bladder and kidneys. This was a couple of weeks after my cystoscopy. I do know others who've had a scan with the dye (sorry not sure what it's called). I think maybe it depends on the consultant and whether the blood is visible or non-visible. Mine was non-visible.

For what it's worth I still have non visible blood in my urine and probably always have. I'm just one of those that just does.

Luluringo · 03/09/2017 18:23

I'm pleased all ended up well for you tanfastic . The body is certainly a strange but marvellous thing! DH has visible blood in urine which comes and goes. Hopefully they will find out the cause, treat it and we can eliminate one stress from our lives and focus on ttc!

OP posts:
Tanfastic · 03/09/2017 20:05

Good luck op! And with your TTC 😊.

If it helps to put things into perspective the consultant who did my cystoscopy said that he only finds something in 1in 20 ish. When he says "find something" he wasn't just referring to sinister findings. He meant any findings! With me he found nothing, all looked healthy.

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