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News

COT DEATH

270 replies

nannyoakley · 18/04/2005 21:31

I'd be interested knowing what anyone thinks about cot death being in the news so much and what your thoughts are on cot death. Most parents are left confused by what to do and we hear from people all the time wanting to know what is going on - why there are so many cot death parents being released from prison, why they were ever in prison in the beginning. The main gist of our campaign is to make sure our news about mattress wrapping for cot death prevention reaches the public, and give parents an informed choice, we believe it should be the parents who decide what they want to do - and believe me, we hear from people every day wanting to know about the Cot Life campaign.

Please ask questions / tell me what you think about what you are hearing in the news and reading on the internet, your thoughts are valuable to me and I think this is a serious issue that needs public debate.

Hope you can help.
Many thanks
Julee

OP posts:
bundle · 19/04/2005 16:48

there's a radio 4 programme about cot deaths (how the research was led up blind alleys like this) on May 10th (evening - probably 9pm i think) if anyone's interested

tamum · 19/04/2005 16:50

There was me thinking it was just a little something you'd knocked up yourself

I'll try and listen to that bundle, thanks.

lisalisa · 19/04/2005 16:56

Message withdrawn

irishbird · 19/04/2005 16:58

This reply has been deleted

Message withdrawn at poster's request.

nannyoakley · 19/04/2005 17:03

MEDIA RELEASE

1 November 2002

NEW RESEARCH IN BRITISH MEDICAL JOURNAL CONFIRMS AGAIN:
INFANT MATTRESSES CAUSE COT DEATH
Cot death expert Dr Jim Sprott has welcomed new research which
confirms that infant mattresses cause cot death. A four-and-a-half
year study by the Scottish Cot Death Trust(1) published in the
British Medical Journal (2nd November 2002) has shown that the re-
use of infant mattresses TRIPLES the risk of cot death.

"This research finding cannot be ignored," said Dr Sprott. "It is
crucial to cot death prevention."
From late 1994 Dr Sprott has publicised mattress-wrapping for cot
death prevention nationwide in New Zealand, and since that time a
very large number of babies have slept on wrapped mattresses. There
has been no reported cot death among those babies; the New Zealand
cot death rate has fallen by 48%(2), and the European/Pakeha rate by
about 75%.

Earlier this year a German doctor published the results of the New
Zealand mattress-wrapping campaign(3) in an overseas journal,
including statistical analysis carried out in conjunction with the
University of Munich. The statistics showed that the proof of the
validity of mattress-wrapping for cot death prevention was one
billion billion times(4) the level of proof generally accepted by
the medical community as proving a scientific proposition.

"The 100% success of mattress-wrapping has been proved in New
Zealand over a period of nearly eight years," said Dr Sprott.

"Now Scottish researchers have confirmed that mattresses cause cot
death, and a German doctor has demonstrated that the proof of
mattress-wrapping is vastly greater than the accepted medical
standard of proof."

"The Ministry of Health, Cot Death Association and Plunket have been
dithering around over mattress-wrapping for nearly eight years,"
said Dr Sprott. "During that time around 550 New Zealand babies have
died needlessly of cot death. The Ministry, Cot Death Association
and Plunket have been informed time and again about the efficacy of
mattress-wrapping in preventing cot death - yet they have refused to
act on this life-saving information. I hold them responsible for
those 550 deaths."

-----------------
---

Tappin et al, Used infant mattresses and sudden infant death
syndrome in Scotland: case-control study, British Medical Journal
2002;325:1007

From 2.1 deaths per 1000 live births in 1994 to 1.1/1000 in 2000
(provisional)

Kapuste, H, Giftige Gase im Kinderbett ("Toxic Gases in Infants'
Beds"), Zeitschrift fuer Umweltmedizin No. 44; January-April 2002:18-
20

p < 1.9 x 10(exp minus 22) (The generally accepted figure for
medical proof is p < 1.0 x 10(exp minus 3))

OP posts:
nannyoakley · 19/04/2005 17:09

Baby's Bedding: Is It Creating Toxic Nerve Gases?
by Joanne B. Quinn, RMA, PhD

www.lifepassages.net/SIDS.html

OP posts:
tamum · 19/04/2005 17:16

And here's the editorial relating to that BMJ paper in the press release:

BMJ 2002;325:981-982 ( 2 November )

Editorials
Mattresses, microenvironments, and multivariate analyses
No reason to change current practices for reducing risk of sudden infant death

Papers p 1007

Despite the success of "Back to Sleep" campaigns in many countries, sudden infant death syndrome remains responsible for the largest group of deaths in infants between one month and one year of age.1 The importance of sleeping in the prone position as a contributory factor has led to studies of the pathophysiological effects of the prone position on the infant and to studies of microenvironmental factors that might contribute to this risk. 2 3 The carefully conducted study by Tappin and colleagues in this issue (p 1007) is set in Scotland and emphasises the potential importance of the infant's microenvironment during sleep as a contributory factor to the risk of sudden infant death syndrome, but as emphasised by the authors, caution must be exercised in the interpretation of these results.4

Tappin and colleagues have shown an apparently increased risk of sudden infant death syndrome for infants sleeping on a mattress previously used by another infant (54% cases, 28% controls), confirming the observation by the same group in an earlier study.5 The previous Scottish study was criticised because infants sharing beds with adults were included with infants sleeping on mattresses used by another infant.6 In the present study this criticism has been addressed. The earlier study was, however, also criticised for a lack of adjustment of potential confounders related to the use of mattresses, in particular the socioeconomic status and the number of siblings in each family. The only other study that has addressed this question, the Confidential Enquiry into Stillbirths and Deaths in Infancy (CESDI SUDI), conducted in England around the same time, reported similar differences in the reuse of mattresses, but the difference was less marked (70% cases, 53% controls) and not statistically significant after adjusting for either socioeconomic status or size of family, the risk of previously used mattresses approaching unity when adjusted for both factors. 1 7 8

The study by Tappin and colleagues has attempted to adjust for socioeconomic status by using the postcode dependent tool DEPCAT (deprivation category). This is a relatively insensitive tool,9 and, given the low response rate (71%) among "control" families, some of the difference in the use of mattresses may be explained by the higher prevalence of deprivation among "sudden infant death syndrome" families. A careful analysis of mattress reuse, stratified by families of different sizes, would clarify the possible importance of parity, which is obscured by the multivariate model that has been used.

Re-examination of the data from the Confidential Enquiry into Stillbirths and Deaths in Infancy (PS Blair, unpublished data) shows that use of a previously used mattress rose with increasing numbers of siblingsin families with four or more children. Seventy three per cent of both cases of sudden infant death syndrome and control infants slept on previously used mattresses. In a conditional logistic regression model (taking account of the age matching), high parity (more than two children in the family) remained significantly associated with an increased risk of sudden infant death syndrome (odds ratio 2.67, 95% confidence interval 1.81 to 3.92, P

irishbird · 19/04/2005 17:16

This reply has been deleted

Message withdrawn at poster's request.

nannyoakley · 19/04/2005 17:21

Victory Over Crib Death (Cot Death)
Lendon H. Smith, MD, with Joseph G. Hattersley, MA

www.mercola.com/2000/nov/5/victory_over_sids.htm

OP posts:
nannyoakley · 19/04/2005 17:32

I am Julee Oakley's daughter, Charlotte. I have been reading this thread and think that your attacks on my mother are quite disgusting. My mother certainly does not need to seek any sort of psychological help and she is only doing her best to highlight the dangers of cot death. She has been campaigning since 1995 and does not make any money from ordering these covers for people.

I think the person who publicised a letter from my mother from a celbrity board about my disabled sisters birthday has got a damned cheek bringing my sister into this, this was something mum did for my sister because she loves her dearly and wanted to make her 21st birthday very special. You don't know my sister, you don't see her struggle every day to move around, or choking on her food or not sleeping because she is always so ill. Well I have seen my mother coping with my sisters problems all her life and I hope your post about my sister is removed as my sister is an innocent. I'd be happy to give my telephone number to anyone who does not think this is me talking.
I don't think mum is wasting her time, but I think she is on mn, just who are you people anyway?
Charlotte

OP posts:
Gwenick · 19/04/2005 17:42

well actually I don't think I DO Have a 'damn cheek' bringing her into it at all - according to your mother (if indeed you are the daughter) she lost a son and a daughter to Cot Death, lated 'clarified' as nearly lost her daughter to Cot Death. This is a debate about Cot Death seen as though your sister nearly died, I see it as relevant.

oatcake · 19/04/2005 17:44

Charlotte, I've been watching in the wings and whilst things may have got a bit heated, I think the general gist is that your mother's research is not evidence-based, and extremely biased.

Secondly, campaigning is wonderful. But perhaps your mum does it in such a way that it is perceived by many anxious new parents as scaremongering?

Thirdly, it's all well and good posting stuff like this but if you can't back it up without saying 'I'm not a scientist, but contact Dr Sprott and he'll answer anything' then there's no credibility in what she's saying.

Finally, yes life is about making informed choices and I thank your mother for her information and will make my choices accordingly.

There is no need for personal attacks, and I don't remember have read anything of a personal nature about your mum - I'm sorry if offence was caused.

nannyoakley · 19/04/2005 17:46

I did explain to you that what I had written was that cot death was a very emotive subject that I take seriously as it affected two of my children - Adam who sadly died and my eldest daughter who suffered near miss cot death and apnoea. My GP revived my daughter and she survived, but she suffered lack of oxygen to the brain and is left severely brain damaged as a consequence.

Does this now make sense to you.

And by the way, you should not poke fun at my daughter - please leave her alone.

well actually I don't think I DO Have a 'damn cheek' bringing her into it at all - according to your mother (if indeed you are the daughter) she lost a son and a daughter to Cot Death, lated 'clarified' as nearly lost her daughter to Cot Death. This is a debate about Cot Death seen as though your sister nearly died, I see it as relevant.

OP posts:
Twiglett · 19/04/2005 17:49

can't see any fun poked at your daughter

as an aside this is a parenting forum, it is for parents, if your daughter is not old enough to take part in a discussion and listen to views that may be unpalatable then you should not involve her in the website (nor allow her to involve herself)

nannyoakley · 19/04/2005 17:52

GWENICK I am Julee's daughter, and as I said I am quite prepared to give my contact details.
You have mis-read what mum said, that is an easy enough mistake to make.
My brother died due to cot death and my sister suffered near miss cot death.

You seem to have a big problem with my mother, I wonder why?

well actually I don't think I DO Have a 'damn cheek' bringing her into it at all - according to your mother (if indeed you are the daughter) she lost a son and a daughter to Cot Death, lated 'clarified' as nearly lost her daughter to Cot Death. This is a debate about Cot Death seen as though your sister nearly died, I see it as relevant.

OP posts:
Sponge · 19/04/2005 17:52

Out of interest, all the cot mattresses I've bought in the UK have been sealed in plastic and then covered with a further, removeable, washable, breathable cover.
What's the difference between this and what cot life propose?

hub2dee · 19/04/2005 17:52

Hi nannyoakley, and Charlotte.

FYI you might not want to link to:

www.lifepassages.net/SIDS.html
(which you posted at 5:09 pm).

It talks all about the toxic gas theory / mattress covering, but at the bottom it has this text "Editor's Note: Subsequent research has failed to establish the link between baby mattresses and SIDS that this article asserts. Midwifery Today, Inc. does not endorse the research cited above, but presents it as part of the overall effort to prevent SIDS. Other resources you might find of interest include:"

Gwenick · 19/04/2005 17:54

I didn't misread anything - she first of all stated that she'd lost a son to cot death. It was only when someone posted a section from a previous thread (also about Mattress Wrapping) that said she'd lost a son AND daughter. She then 'clarified' to say she's nearly lost a daughter.

tamum · 19/04/2005 17:58

Isirhbird pointed that out too, Hub2Dee.

I can't see why anyone should be allowed to come on MN or anywhere else, peddle a load of falsehoods, and expect to remain unchallenged. It's just not going to happen, is it, especially where you are posting to scientifically literate people. If you want to use this forum to promote your ideas you have to be prepared to argue your case, not suggest that everyone should email Dr. Sprott.

hub2dee · 19/04/2005 18:03

I'm trying to be really helpful here.

In your post at 5:21 your link is badly presented and the link is unreachable because of the underscores.

Allow me to present a link here

It contains one line that shows a blatant disregard for statistical accuracy:

"Before World War II, unexplained infant deaths were unusual."

Do you honestly, seriously believe infant deaths were rare before the Second World War ? Or rarer than today ?

(I'd gladly be corrected on this should I have my facts wrong).

PS - Thanks Gwenick.

Gwenick · 19/04/2005 18:07

Thanks for what??? Now what I have done!

hub2dee · 19/04/2005 18:09

Sorry Gwenick, I meant tamum.

Put your paranoid hat down.

Twiglett · 19/04/2005 18:09

Heh heh heh Gwenick - feeling a little paranoid are we?

nannyoakley · 19/04/2005 18:11

Tanum - sorry I am not scientifically literate like you. I ask that anyone with scientific questions ask the expert because I don't want to give the wrong answers to scientific question as I am not qualified to do so. If I paste onto the board with the explainations I am wrong! If I try my best to answer any questions I am wrong!
Being that you are a scientific person could you not try and understand that I am trying to tell you something and thought you would go off and take a look - but instead you hit me hard with what you believe within minutes of me posting anything- and got all cross. I don't wish to argue with anyone - the facts are there for all to read if they wish.

By tamum on Tuesday, 19 April, 2005 5:58:10 PM

Isirhbird pointed that out too, Hub2Dee.

I can't see why anyone should be allowed to come on MN or anywhere else, peddle a load of falsehoods, and expect to remain unchallenged. It's just not going to happen, is it, especially where you are posting to scientifically literate people. If you want to use this forum to promote your ideas you have to be prepared to argue your case, not suggest that everyone should email Dr. Sprott.

OP posts:
Twiglett · 19/04/2005 18:15

I don't buy that NannyOakley - not at all and I'll tell you why

I am not a scientist, but when my DH became ill we both researched his illness and possible treatments until we got to the stage where we actually know more about the subject than GPs and sometimes his specialist, a fact that has been noted before.

Now if we take you at face value you have a tragic family history that has lead you to campaign vociferously for this plastic wrapping thing - I do not for a second believe that someone who is purely motivated by this background would not know more about this particular issue than the scientist and be able to hold their own (possibly in lay language admittedly) in a frank and open discussion

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