That's an amazing article Squiffy. It makes me feel so grateful that my son, who may never walk unaided, or be anything but doubly incontinent or be able to care for his own needs in any way shape or form, has a quality of life and without doubt, can feel happiness.
I so know what that journalist means about "five years without sleeping through the night". After 6 years of this, social services were still saying our DS was "too young" to spend a night in overnight respite care. In other words, six years without sleep was not enough for us to have been through. We had to suffer another year and a half before we got this service. And then we have to fight tooth and nail, with no energy, to get that. And then it was only 1 night every six weeks. And that got cancelled when the respite carer couldn't cope with him being awake most of the night.
It is so so easy to see how people reach breaking point. And then break.
(If that is what happened in this case.)