marina,when we got told she had cf,the paediatrician said he got told that you can tell if they have cf from licking aswell!!its the salt that they sweat.(he never did lick dd,i wouldve been mortified!!)
we'd commented on how salty she was when we kissed her forehead,so it all made sense when we found out!
i never knew much about cf before dd was diagnosed,all i knew was that it was something to do with the lungs.
teh day we got told (hv came round and told us,and we had to go to the hospital the next day for sweat tests) well,it was the worse day of my life.id had a bad pregnancy (dd was twins but i lost one at 12 weeks) and then to be told she was so ill,was heartbreaking.
but to look at her now (shes 2) shes so fit and healthy,shes putting weight on for the first time and has grown in height aswell.it is a horrible disease,and hard work,but you just get on with it,and tbh,there are so many more worse diseases out there.