Can I point out that, while I am concerned by the future fragment ideation of the NHS, the thing that someone else mentioned upthread of a locally run HS deciding not to fund, say, cancer treatment, already happens - though not with things as high profile as cancer treatment.
For the last 6 years, my PCT has not had a Neurologist. If you needed to see one, the PCT sent you to a PCT 60 miles away. You are allowed to go once a year, even if that Neuro wants to see you again in 3 or 6 months time.
If you have a 'Cinderella' illness, then local PCT's rationing treatment, and deciding that your illness isn't a priority has been going on for longer than just the Coalition. That process was started by Labour, and is being continued by the Conservatives and Lib Dem.
I may be a leftie at heart, but in this issue, they started this process, and the Coalition has taken that idea and run with it.
All I want is to know that I will be able to go to A&E if I injure myself when having a seizure. That I can go and see the GP for follow up treatment. That I can regularly see a Neurologist. That I can continue to have an annual MRI scan, and EEG's whenever my seizure rate changes. That I can continue taking the epilepsy meds that I am on, that might be bloody expensive for the NHS, but give me the best seizure control/adverse side effects balance, without me being severely allergic to them, having them cause me early liver failure, having no seizure control whatsoever, and losing my peripheral vision (permanently) on them.
I want to do this without being forced to pay for insurance that A) I can't afford due to being disabled, and B) will be excluded from cover because it is a pre-existing condition.
I want to do this without a personal health vouchers booklet that will run out after 4 months because the only suitable med for MY epilepsy is incredibly expensive. Because then I would be 8 months of the year without any seizure control, and in almost permanent Status Epilepticus - well, I wouldn't, because without emergency treatment that I wouldn't have vouchers to pay for, I'd be dead.
I want the NHS to be run MORE Nationally, with every PCT being FORCED to either provide every service, or being forced to pay both the PCT that does for that service AND the patient and Carers travelling costs if it is out of PCT. (This already seems to be vanishing.)
A PCT (or an even more 'locally run' health service) shouldn't be allowed to decide that because only twenty people in their town have diabetes that they won't provide any diabetes services. Or because cancer is a higher priority, they won't hire a Neurologist to replace the one they sacked. For 7 YEARS. With no plans to ever do so. Meanwhile, a complete rebuild of a perfectly functional hospital is ongoing, including opening a brand new oncology department. Costing £3.5m. And a brand new medical centre with A&E Dept in an outlying town is only staffed 9-5 Mon-Fri. People regularly die from heart attacks in that town as it is a 30 mile journey to A&E outside of office hours. It was meant to be a 24 hr A&E. But isn't because they can't afford to staff it. 