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DAILY MAIL ARTICLE 2 PAGES RE: COULD WE FACE THE RETURN OF CJD?

19 replies

Beaaware · 02/11/2011 10:06

In yesterdays Daily Mail Good Health section there was a doube page article about Human Mad Cows Disease. It also focused on Holly Mills aged 26 years who first showed the symptons of this lethal disease at 16 years of age, fatigue, fainting, "Holly is one of three people with CJD and is being kept alive after her family battled through the courts to get the drug 'Pentosan Polysulphate, this is injected into the brain to prevent the final stages of the disease.
This articles also highlights that as many as 1 in 1,000 people could be infected, this is based on findings which receive little publicity, it also mentions that CJD might be more prevelant in older people, this may explain why older people are offered a CT brain if they are suffering memory problems or dementia.

John Collinge, a professor of neurology and a leading expert at the Government's CJD research unit at Universiy College, London has developed a simple blood test which can check if the disease is present by detecting evidence of the so-called prions or infectious proteins known to cause the disease.
So far there is little official interest in investing the several million pounds needed to turn the blood test into the high speed screening tool needed to bring into routine use. Critics say this is because the Government fears what it might find.

New data from the Health Protection Agency suggests the rate of infection is much higher than currently thought.

Contrary to popular belief, BSE had not been wiped out. In fact, 11 cattle were diagnosed with it in Britain last year, although none entered the food chain.

Normal sterilising techniquesdo not remove the abnormal proteins which cause CJD from surgical or dental instruments because they survive high temperatures.
There have been at least 6 transmissions from hospital operations and 4 cases of CJD infections passed from 3 different blood donors. All those infected in these ways have died."

All of the above information is just part of the article from yesterdays Daily Mail, on November 12th 2011 there will be a memorial held in London to remember the innocent victims who have died.

If only our government would introduce the latest simple blood test on every individual we could stop the spread of this lethal disease.

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OldLadyKnowsNothing · 03/11/2011 00:04

Can you link to the HPA data? Because all I found on their website is this, which shows nothing scarey to me. Further research is needed on the blood test.

Just another DM freak ya out story.

Beaaware · 04/11/2011 08:45

Sorry I dont have a link to the HPA data, the information is quoted from the DM double page spread on CJD/vCJD. From what I can understand the new blood test is ready for use but needs funding to have it widely available, if the government were to re-direct resources from current practices to minimise the risk of CJD/vCJD transmission in the DOH then not only would we have a clearer idea of how many individuals have vCJD the blood test it would actually stop the spread of infection/transmission if each and every one of us had this test before donating blood, having an operation or simply going to the dentist.

This is not another freak story unfortunately I wish it was, I have met people who have been told that after their brain surgery they are now at risk of vCJD because the surgical instruments may have become contaminated as a previous patient had died from vCJD. I have also met the parents of a man who was given a blood transfusion and died of vCJD as a result of contaminated blood.

I think many of us are unaware of what actually goes on unless it is in the news on a daily, weekly basis, if you talk to medical staff they are fully aware of the risks of transmission, but will be unable to give you 100% guarantee that you are risk free should you come into contact with blood products and stainless steel surgical instruments.

The only answer to this is to test each and every individual with the new blood test.

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WhollyGhost · 04/11/2011 09:00

do you give the same energy towards worrying about every possible tragic eventuality?

2BoysTooLoud · 04/11/2011 09:46

This is obviously something that has touched your life personally Beaaware.
I am sure we are unaware of lots of things and vCJD is so terrifying I for one DO have my head stuck firmly in the ground ostrich style.
However that does not mean I am right to do so.
I am sorry you have known people with this terrible infection.

fivegomadindorset · 04/11/2011 09:51

Oh its you again,

Haka · 04/11/2011 09:54

This reply has been deleted

Message withdrawn at poster's request.

Beaaware · 04/11/2011 11:13

I'm just a member of the public who happens to be concerned about health issues that affect all of us, if there is a blood test for vCJD (and there is) to screen all individuals for vCJD then it should be in use, the fact that it is'nt highlights as the DM suggests that the government are worried what they might find.
We can carry on being ignorant and pretend that vCJD does'nt exist anymore, but if you read the small print on UK blood bags and NHS blood transfusion patients leaflets you will see in black and white that indeed patients are being put at risk of vCJD.
I see nothing wrong with raising public awareness.

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FantasticVoyage · 07/11/2011 13:32

Specialists in the field have believed that vCJD is a ticking time bomb long before the Mail got their scaremongering paws on it.

WhereTheWildThingsWere · 07/11/2011 13:40

Christ Beaaware how much time do you spend worring about this shit?

From VCJD to Vaccines to Dental X-Rays to Deoderant to Donated Breastmilk to Farmed Sodding Prawns you are all over it like a rash, no doubt caused by the prawns.

You spend too much time worrying, stress is super bad for your health you know.

Beaaware · 09/11/2011 09:29

How very insensitive to call it 'shit' last poster, I hope it never affects you.

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WhollyGhost · 09/11/2011 09:37

OP, have you discussed your anxiety with your GP?

Beaaware · 09/11/2011 09:39

Just to let you know a young man in his twenties from the Gloucester area and a middle aged woman from the south of england have recently died from this disease, the woman contracted it through a blood transfusion in 2002.

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Beaaware · 09/11/2011 09:43

' Alzheimer's And CJD Scientifically Linked'

www.rense.com/general46/alz.html

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claig · 09/11/2011 09:48

Thank God there are people like Beaaware and 2BoysTooLoud.

There are so many people who haven't got a clue. All you can do is pity them.
Reminds me of that statement
"Forgive them for they know not what they do"

LaPruneDeMaTante · 09/11/2011 09:52

Here is the www.rense.com/ home page.

If you wait long enough you'll see a clickable link to 'David Icke - Radical Truth'.

claig · 09/11/2011 09:57

Beaaware has got the patience of a saint with all the idiots who are abusive to her.

God bless her and all the sufferers of this terrible disease.

claig · 09/11/2011 10:07

In case anyone has been influenced by LaPruneDeMaTante's post to disbelieve Beaaware's post, how about the British Broadcasting Corporation?

Alzheimer's and CJD 'similar'

Beaaware · 09/11/2011 13:44

thankyou claig for your comments, so much has been written about vCJD I am surprised some people are ignorant about it, did you know that in England alone over 140 children have lost a mother or father to this disease and it continues to kill people of all ages, if this was about cancer deaths or motorway deaths I cant imagine people calling it 'shit' so why the insults, and as for people suggesting I have anxiety problems because I put links to stories about vCJD which have been in the Daily Mail & Guardian recently written by journalists is bizarre, each to their own I suppose.

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