Disability benefits should be cut

[benandoli]

OK so if a family has a child with a disability which results in that family having extra costs then they should have disability benefit and use the money to cover those costs. I am sure that many families in this situation should receive more. However, can someone please explain to me why a family who have a child with a disability, adhd or autism for example , where extra costs do not result , where the earning potential of the family has not changed as a result or indeed where the family never worked anyway should receive extra funds courtesy of the tax payer. Also why should parents in this situation receive a carers allowance and then work less hours as a result of the allowance rather than as a result of the caring that needs to be done? Many families are well deserving I know and they should probably get more, but many are working the system and getting their kids over diagnosed.

Sancti (fab name btw)

MrsDeVere I'm so so sorry for your loss.

Sancti Sorry, just caught up with the thread. And I don't know what to say really. I'm just aghast that anyone with a shred of humanity could begin to spout the tripe that the OP has but then to learn that they are employed as an SENCO makes me want to contact the DfES (or whatever they are now) tbh.

OP, have you thought about getting some careers advice from somewhere? Because you really really shouldn't be anywhere near education.

And the eugenists are here already? Thank God MNHQ deleted the thread. Amazing how little it takes for views like this to crawl out into the daylight isn't it? God help us all after the 20th.

Apologies. Got the top of my post horribly muddled.

Clearly I am not fit to type at this time of night. Especially not when watching Newsnight.

I cannot multi-task.

Apologies to you both, Sanct and Mrs de Vere. That came out really crassly.

2shoes that is OK, it was a very badly written post which I hadn't finished well as I was doing several things at once, I can see where you thought that from. I need to preview my posts!

No it didn;t, don't be silly!

You should see how scatter rbained I am right now after a zumba session and a bad night alst night PMSL... hanging

no worries, I know that I am a bit defensive at the moment, after the defective crap last night

I didn't see that one

for once mn hq in the end deleted the posts

I know; well done them.

I think they must have got a lot of complaints, that were better than mine lol

I don;t think I flagged it- was too busy taking the piss

Glad some people were more responsible

well I got the normal crap from them as you do about anti sn posts, but well done to them as they must have had a re think

Do you think they deleted for content, or becuase she posted then C&P'd onto barious threads?

since when were senco's known as 'inclusion managers'? FFS.

Ah yes now I remember why I am so pleased ds1 has spent the last 6 years in an SLD school. Funnily enough he's far more included there than he ever was at mainstream.

FYI I reckon autism has cost us (in terms of hands in pocket) about 25 grand so far. About 15 grand of that will have been on what I call basics - that should have been state provided without any argument - SALT, specialist consultation, hearing tests, big nappies, communication aids and so on and so forth. The rest is things that we felt might help, literacy programmes for non-verbal kids, intervention programmes, conferences, specialist autism holidays, biomed etc etc

It has cost us more in terms of my lost earnings. I work when I can but we have no access to regular after school or holiday childcare. And I suppose ds1 will be at home (needing 24 hour care) into his twenties at least.

Thank you, Sancti. I was mortified at my cackhandedness.

Time to turn my self in before I go binary...

Is the OP a teacher or not (I can't get the hang of all these high faluting titles)

Either way OP I'm not sure you can be doing much good maybe you'll loose your job in the next round of public sector job losses?

I love the bit about working less hours (do you mean fewer?) as a result of the 50 quid rather than the caring

your evidence for that is what exactly?

Hmm go get a job can imagine it school ..ds has had a fit you need come get him or like other time ds fitting ambulance is on itsway meet us at the hospital
no sorry I can't I'm working bye hangs up phone

or dr I like see ds on this date so can't do nope can't do that I got to work

yes course can work ds at 5 can let himself in opps did I leave ramp up oh well just dump him in the yard it's raining well he has a coat

opps ds you been sick now to send you to school let them look after you and spread your germs or leave youhome alone or keep other dc to look after you and wipe your arsr

see how quick ss be on my back for neglect if did that and you really begrudge me my carers allowance because if ds could be a nt 5 year old you could have it really could infact if ds could say mummy or write you could shove it up yourarse and set fire to it

i dont think that parents with children with sn need to explain to others what theyre money goes on.
this is discraceful.
its like having to appologise.

years ago you had to explain to the bloke from the social why you had had five chairs-when there was only four of you s[for eg]
and you had to get rid of the extra chair before theyd give you any more money.

i thought we d moved away from stuff like this but we havent as we are now doing it to each other.[in a way]

this is horrible.

You have a principle and you stick to it. You know that some (only some) will milk the system. You do not then punish the many because of the few.

I'm sick of people saying things like the op here.

Well I'm not spending the dla on plasma tvs ,boob job or expensive holidays or designer clothes

More like a decent lightweight wheelchair that ds can acurally self proppel cost £2.5k his splints cost 600 a time often twice a year as the nhs ones lists to long call up there hurting him oh well can't see him for 10 weeks that's a short wait or cast one week come collect in 2 months might not fit but hey your have to make do

the travel to hospitals the extra childcare for dd because I'm not going be back pick her up as in London still

the extra theraphy I pay for as the nhs can only offer once a year for 6 sessions ,the voca equipment ds needs

Think that's about 10 years Dla just there

"the voca equipment ds needs"

See this is crap isn't it? Why are we all buying communication aids for our non-verbal children? They should be bloody provided as a basic.

I have just discovered that somewhere in my local social services there is a secret fund that provides communication aids. But I have no idea how to access it (yes yes I have a social worker but no-one actually tells you these things). I presume they are not going to want to fund one given public sector cuts - but why in the world are we funding basics. (and a wheelchair ffs - the NHS should be able to provide one light enough for a child to propel).

It's false economy on the State's part. Communication aids and wheelchairs develop independence and it's independence that leads to lower care costs in the long term.

I have always known how much we've had to fork out but reading this thread has made me realise how many of us are having to do this nationwide for basics. I take the point that if I want my son to have a healing experience on a horse then I am going to have to pay for that - fair enough - but why are we paying for speech therapy and communication aids etc etc?

The PECs stuff ds3 used to use cost us a fortune; it's ridiculous how they milk it isn't it?

And the other stuff- we just paid to have the garden done as the neighbour ws (understandably) threatening a complaint but we were simply too exhausted to do it ourselcves and every time I tried ds2 would end up with a balck eye or similar- £300 that cost! DLA for month gone l;ike that, entirely out of costs arising for disability, I used to like gardening so much I was looking at doing a garden design HND.

'dh is about to lose his job because of the amount of times dd end sup in hospital. 2 days off work this week as she had a seizure monday night.'
We're pretty sure in our ehads that the reason DH was picked for redundancy above far less capable people (and his appraisals were always 100% performance) was the fact he was the only one to have requested flexible working due to SN children; can't prove it of course. We had no choice, I simply wasn't coping with ds1's kick off time and the others (we would frequently end up locking purselves in a bathroom to be safe whilst he tried to kick a door down).

saintly he does have one of the nhs that they class as self propelling it weighs more than him and wheels set so far back to make sure its stable he can barley reach them.with headrest etc his weighs in at just over 18k he weighs just over 15 k

Since buying him lightweight one the differance is fantatsic it weighs in at 8k and is set up as active chair