The week before I sat down to write this, I heard that the great journalist, presenter and advocate for women Dame Jenni Murray had died. Many of her obituaries recalled her playing I Am Woman to close her last Woman’s Hour, a programme she’d presented for decades on Radio 4. The music may not be everyone’s cup of tea, but the lyrics will chime with women everywhere:
Yes, I am wise
But it's wisdom born of pain
But pain shouldn’t be part of the plan, and, frankly, women have got wise to it. We shouldn’t have to experience pain during medical procedures, and our voices should be heard when we do. Even as someone working in and around healthcare for more years than I care to admit to, I’ve been told that I was mistaken about my experiences of medical procedures, gaslit about what I’ve requested and warned that non-compliance will probably see me ending up on a long waiting list.
The College of Sexual & Reproductive Healthcare (CoSRH), which represents doctors, nurses, midwives and pharmacists, is actively seeking to change this around the fitting of intrauterine devices (IUDs or coils). We produced guidelines back in 2021 to ensure both that pain is no longer normalised, and that women have access to appropriate pain relief during coil fittings. Those guidelines make it clear that pain relief should be discussed and offered – and that women should be able to pause or stop at any time.
However, we know that five years on from publishing those guidelines, this is not everyone’s experience. In fact, it wasn’t my experience. The couple of paracetamol that were suggested, not as part of a consultation but via a standard form, were woefully insufficient.
Most women having a coil fitted will experience a bit of discomfort, perhaps, but nothing untoward. But everyone’s experience of pain is different — and the relentless amplification of negative fitting stories on social media can add to existing fear long before the appointment. We need to ensure that this is borne in mind, before, during and after the fitting.
In an ideal world, the clinician - whether a GP, a nurse practitioner or a doctor in a sexual health service – has time to discuss options, to talk about the procedure and to address any concerns. We know, though, that time is a luxury that many NHS services simply they don’t have. That’s why we are working with services, and the NHS across the four nations, to ensure proper time is allocated to coil fitting appointments and that women are given the reassurance, including the discussion of pain relief options, they need.
Our guidance also makes it clear that an assistant should also be present to support the patient. We don’t talk enough about the invaluable role HCAs and nurses play in coil fittings. The HCA who supported my coil fitting was brilliant. She held my hand – literally – throughout and she kept me talking, not just for my sparkling conversation, but so that she could make sure that I was doing OK. All of this enabled the doctor to focus on what she needed to do. Making sure there are the right staff available to support patients is vital. However, we know that, on paper, it may look like overstaffing. Ensuring NHS managers understand the value of ‘alongside’ support is crucial.
We’ve also heard from our members that they are often restricted in the pain relief they are able to offer, sometimes because the time allocated to the appointment doesn’t give enough time for it to take effect or because appropriate methods simply aren’t authorised by their service. There are some great options available, including sprays, gels and creams, but services have been slow in making them available. This must change, and the College is leading those discussions. We want women to know that if their preferred pain relief option isn’t available, they can be referred to a service where it is.
Getting this right – for women and for clinicians – is vital, because coils can be absolutely game-changing. Again, I’m speaking from personal experience: having a hormonal IUD fitted during perimenopause improved my quality of life exponentially. For younger women, it can reduce period pain and heaviness and lasts up to eight years. Copper coils are hormone-free and last between five and 10 years. Both allow an immediate return to fertility after removal.
Coils have the potential to make women’s lives so much better – but we shouldn’t have to experience pain to achieve that potential. There are some brilliant clinicians up and down the country who are desperate to offer appropriate pain relief and to improve women’s experience. We need services to make this available.
Because pain shouldn’t be part of the plan.
Find out more and explore CoSRH’s patient toolkit here.