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Guest Post: “So many people are living with undiagnosed osteoporosis. They’re the people we want to empower.”

21 replies

RayaMumsnet · 20/10/2025 10:30

Craig Jones

Craig Jones is Chief Executive of the Royal Osteoporosis Society and has held executive and non-executive leadership roles across charities, regulators and membership bodies for more than a decade. Before joining ROS from the Advertising Standards Authority, he served on the Board of the Royal College of Anaesthetists, was a Lay Member of the National Organ Donation Committee at NHS Blood and Transplant, and is currently a Trustee of the MND Association.

Broken bones aren’t just a normal part of getting older — they can be life-changing. The Royal Osteoporosis Society is calling on Mumsnet users to take part in The Great British Bone Check and spend five minutes checking their risk, so more mums and grans can stay strong and healthy for life.

We don’t often think about our bones — until something goes wrong. Most of us assume they’ll quietly do their job, keeping us strong, steady and upright for life.
But here’s the truth: our bones hit peak strength much earlier than you might think — around the age of 30. After that, we all start to gradually lose bone strength. For women, menopause speeds that process up dramatically, which increases your risk of developing osteoporosis.

Osteoporosis makes bones so fragile that even a cough, sneeze or a hug from the grandkids can cause a painful, debilitating break (also known as a fracture). Half of women over 50 will break bones because of osteoporosis. That’s every other mother, every other grandmother. A fifth of men over 50 will suffer with it too.

Many of us think broken bones are trivial and even a normal part of getting older — in reality they can be life-changing, even life-ending. Broken bones caused by osteoporosis are the fourth biggest cause of disability and premature death in the UK.

The good news? There are safe, effective medicines that stop osteoporosis in its tracks. The bad news? Two-thirds of people with the disease aren’t getting access to these vital medicines — thanks to a postcode lottery for NHS bone health clinics.

That’s why we're demanding change. Together, we’ve already won a major victory: the UK government has promised to roll out Fracture Liaison Services (the gold-standard bone health clinics) everywhere by 2030. That will save thousands of lives.

But tackling low awareness is just as important as giving people access to clinics. Too many people are only diagnosed after breaking numerous bones — breaks that could have been prevented.

For example, one of our volunteers lived with ten broken bones in his spine, because his GP mistook his back pain for “age-related wear and tear” and didn’t consider osteoporosis.

Cases like this are a needless tragedy. That’s why the Royal Osteoporosis Society launched a five-minute Bone Health Risk Checker — with the help of our President, Her Majesty The Queen, whose own mum and grandmother both suffered so badly with osteoporosis. Our Risk Checker helps you understand your risk factors for osteoporosis, from your genes to your lifestyle, and provides you with personalised bone health results in less than five minutes.

Since the tool’s launch, over half a million people have checked their risk. And 66,000 of those people got an early diagnosis and access to treatment afterwards.

Now we’re going further, by launching The Great British Bone Check with the encouragement of the Palace. We want this to be a national event – with as many people checking their risk of osteoporosis and broken bones as possible.
Our aim is to help three million people check their risk by 2030.

And we’d love Mumsnet and Gransnet users to lead the way. It’s been so good to have the support of this platform, especially since so many members will be living with undiagnosed osteoporosis. They’re the people we want to empower.

Osteoporosis is one of the most urgent threats to people living well in later life. But with an early warning and a prompt assessment, people can get the treatment they need to live well.

So take five minutes to keep your bones strong and healthy for life – check your risk today.

Let’s achieve the future for mums and grans we all want – No more broken bones, no more broken lives.

Craig Jones, CEO, The Royal Osteoporosis Society

Guest Post: “So many people are living with undiagnosed osteoporosis. They’re the people we want to empower.”
OP posts:
carrotcakeagain · 20/10/2025 10:35

How?

RayaMumsnet · 20/10/2025 10:42

carrotcakeagain · 20/10/2025 10:35

How?

Hi @carrotcakeagain you can take the bone health survey on the ROS website, I've added the link to the guest post too! Thanks

OP posts:
TanteRose · 20/10/2025 10:49

Done - not at any risk at the moment, phew! (57, post meno)

BadgernTheGarden · 20/10/2025 11:02

I think I should probably start taking vit D and maybe a calcium supplement not at particular risk apart from age. Trouble is I forget to take those sorts of things after a while. Wouldn't it be nice if you could just get a bone scan to see if yours are good.

Chickydoo · 20/10/2025 21:24

I took the bone health survey following the above link, it came out as no risk…
Yet, I am 56 and have recently been diagnosed with severe osteoporosis after a DEXA scan.
(T score -3.8)
I had the scan due to arthritis being diagnosed in my shoulder and wrist. My GP suggested the DEXA scan and I am now on Alendronic acid medication for my bones, HRT and am taking vit D and calcium. It just demonstrates the survey is not always going to be accurate, so beware.

RhiannonEMumsnet · 21/10/2025 11:50

Chickydoo · 20/10/2025 21:24

I took the bone health survey following the above link, it came out as no risk…
Yet, I am 56 and have recently been diagnosed with severe osteoporosis after a DEXA scan.
(T score -3.8)
I had the scan due to arthritis being diagnosed in my shoulder and wrist. My GP suggested the DEXA scan and I am now on Alendronic acid medication for my bones, HRT and am taking vit D and calcium. It just demonstrates the survey is not always going to be accurate, so beware.

Thanks @Chickydoo - the ROS asked us to flag that The Great British Bone Check risk checker is not for people who have been diagnosed with osteoporosis or had their bone health assessed by a healthcare professional (FAQs here). But there is more support and information available here.

Dolphin66 · 28/10/2025 18:24

I only found out i had osteoporosis after being sent for a dexa scan a few months after breaking my wrist when I fell walking in the park. I had been on ppi medication for gastric issues for over 10yrs. No one tells you this could also be a risk if taken longterm.

FourHoursPlease · 28/10/2025 18:30

Interesting and important post, thank you.

It’s also important to add that if you have ever been on Prostrap (a prostate cancer drug) to treat endometriosis, and/or been through IVF, then your risk is also raised.

Do chat with your GP if you feel this might apply to you.

junebirthdaygirl · 28/10/2025 19:10

I was surprised to learn being coeliac increased my risk. I was only diagnosed at 60 and am now 65. Is the risk factor high now l am on a gluten free diet. All other risk factors do not apply to me..thankfully.

Summerhillsquare · 28/10/2025 22:10

4th biggest cause of disability AND premature death in the UK?! Sounds unlikely.

rockstuckhardplace · 29/10/2025 06:24

Thank you for this post. I'm late 40s and have just broken a thumb after a fall. My mum has just told me to push for a bone scan: both she and her mother had osteoporosis and she started taking calcium and vit d in her early 50s.

OccultGnuNew · 29/10/2025 07:17

why do you need to submit an email to get your results?

Is this a data gathering exercise?

Soontobe60 · 29/10/2025 07:25

OccultGnuNew · 29/10/2025 07:17

why do you need to submit an email to get your results?

Is this a data gathering exercise?

I’ve just done it and got my results without submitting my email.

Twiglets1 · 29/10/2025 07:27

Soontobe60 · 29/10/2025 07:25

I’ve just done it and got my results without submitting my email.

Same.

Thank you for this post @RayaMumsnet

My results were reassuring. However, I will take on board the suggestion that more vitamin D in the winter months could be beneficial.

CameltoeParkerBowles · 29/10/2025 07:29

OccultGnuNew · 29/10/2025 07:17

why do you need to submit an email to get your results?

Is this a data gathering exercise?

Just what I was going to say. If the questionnaire is genuinely intended to help us, why not give us the results immediately, via the landing page at the end? What a waste of time that was.

Darragon · 29/10/2025 07:37

Have you put a geoblocker on it? Currently abroad and none of the links will load. The internet bringing the world together, eh?! It’s a shame as I’m worried about osteoporosis and likely would have shared it, but I will have forgotten by the time I’m back in the uk. Kind of confirms pps that this is likely some sort of data capture exercise, because if you are passionate about this, why would you deny access to anyone, anywhere except to limit demographics for clean statistical analysis? Where is the informed consent on this use of people’s health data?

Twiglets1 · 29/10/2025 07:47

CameltoeParkerBowles · 29/10/2025 07:29

Just what I was going to say. If the questionnaire is genuinely intended to help us, why not give us the results immediately, via the landing page at the end? What a waste of time that was.

I don't understand this because I did get my results at the end.

Was only asked my email if I wanted my results to be sent to me which I don't.

FourHoursPlease · 29/10/2025 08:00

OccultGnuNew · 29/10/2025 07:17

why do you need to submit an email to get your results?

Is this a data gathering exercise?

You don’t - you only submit your email if you want advice/strategies to be sent to you, and to be kept updated.

staringatthesun · 29/10/2025 08:18

Done, thank you. I'm 57 and all looks okay. A good reminder to keep an eye on my calcium intake and to be more consistent with my exercise

catipuss · 23/02/2026 15:38

FourHoursPlease · 29/10/2025 08:00

You don’t - you only submit your email if you want advice/strategies to be sent to you, and to be kept updated.

So do I assume they have nothing to tell me? There isn't anything specific to me on the final page with this paragraph on it. I would have liked to see the foods and resources, or a link to that. I did expect to get a personalised breakdown of risk factors or scores out of 10 or something. I know I'm at risk due to age if nothing else.

'Please enter your email address and tick the box to receive a printable copy of your results and a range of bone-healthy food and exercise resources. By providing your name, email address and telephone number, we’ll be able to keep you up to date with our latest news, blogs, information, and campaigns as well as membership and fundraising activities, campaigns and more.'

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